Hi all After a break to let things "settle down", I am re starting rifampin this evening. Not looking forward to it. I am starting at 150mg this time around-a much lower dose. My llmd has told me to try this and gradually increase but am still nervous. I only made it to 300mg last time I tried this but I did feel positive changes in terms of neuro stuff. My stomach was suffering though, despite probiotics. We are going to try one more time. Wish me luck. This bart if tough to get rid of
Posted by canefan17 (Member # 22149) on :
Rifampin didn't mess with my gut at all. I'm on VSL#3 and Florastor.
And wow @ 300mg being your threshold.
I realy like Rifampin and am currently on 600mg... hoping to climb to 900mg soon.
Posted by didogs (Member # 40101) on :
canefan-have you had positive results from rifampin? How was the herxing for you? Good luck increasing your dose.
Posted by kim812 (Member # 17644) on :
I am taking rifampin again too..I am now up to 900 mg and trying once again to get up to 1200mg.. Once I have that accomplished he wants me to add in factive which I tried once before but didn't even get through the week.
Good luck everyone..
I also take VSL 3
Posted by WIGGY (Member # 15377) on :
I started at 150 and now up to 600/day and it has been bearable. I don't feel great but its working - killing bugs.
When I pulse tini I herx bad now - can only handle 2 days....
Posted by didogs (Member # 40101) on :
Thanks everyone. Wiggy-my goal is 600/day. good for you! How quickly did you increase? Did you wait for the herxing to subside or increase a little weekly or what? I don't want to increase too quickly but also want to get on with it!! Thanks for your post-it is nice to hear that others have had to start low and have been able to increase.
Posted by WIGGY (Member # 15377) on :
I read here that some people did better starting slow. I stayed at 150 for 2 weeks than increased to 300 for 3 weeks. I was at 600 after being on it for 5 weeks and this worked for me.
Good Luck!!!
Posted by faithful777 (Member # 22872) on :
The only way I could tolerate Rifampin was to take it with food. Even though directions say otherwise, many can't tolerate the GI issues from taking it on an empty stomach.
I was okay taking 300 mg twice a day with food.
Posted by Jane2904 (Member # 15917) on :
DD started out with 300mg with food.
After a few weeks added in another 300mg with food.
She seemed to improve the best while on Rifampin.
Good luck.
Posted by Hopeny (Member # 35984) on :
Jane how old is your DD? Mine (9) is on 150 MG/day.