2 here with lyme and 2 with Raynauds. Neither of us had this syndrome prior to lyme & co's. How many others are experiencing this and does it go away?
Posted by Keebler (Member # 12673) on :
- Yes, it is fairly common for those with lyme.
Yes, with treatment, there is usually improvement if there has not been too much damage to the nerves.
Treating lyme and other infections (and parasites and heavy metals) is important.
Certain supplements can also help along the way. MAGNESIUM & FISH OIL are the top two but there are also others. -
Posted by Keebler (Member # 12673) on :
Search LymeNet Archives, in the subject line for past threads on this topic. There have been several. -
Posted by Lymetoo (Member # 743) on :
I have had it for at least 16 yrs .. Lyme for even longer. No, it will NOT go away.
I have found some success with essential oils helping the circulation in my feet.
Posted by ArtnSoul (Member # 4561) on :
I have Raynauds Syndrome - have for many years...had Lyme much longer. In much the same boat as Lymetoo.
Posted by Catgirl (Member # 31149) on :
Ditto.
Posted by Rumigirl (Member # 15091) on :
I've had it since I was a kid, although not diagnosed until well into adulthood. I've had Lyme since I was a kid---looking back and figuring it out.
As a kid, I was always having to go to the nurse's office with frostbite in the winter.
I have been treating Lyme a long time, and it is not any better, unfortunately. It has been really bad this winter. If I am out for just 3 minutes in the cold, even with my gloves on and my hands in my pockets, and with boots and socks, I end up with frostbite. Pretty bad. I guess that it will never get better in my case.
In your case, hopefully it will get better, since you haven't had it so long. But you will need good treatment for long enough.
IVIG is often used for to repair the nerves from peripheral neuropathy, which you probably have. For that, you would have to be evaluated by a good neurologist who works with IVIG for this diagnosis. You would have to get a referral for this kind of neurologist from here or from your local Lyme support Group.