This is topic Thyroid support? in forum Medical Questions at LymeNet Flash.


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Posted by xoxoxox (Member # 18778) on :
 
Hi
No LLMD right now as it is unfeasible so this question is really about ways I can find thyroid support on my own.

My Quest Diagnostics thyroid tests have come always back normal. Then again, all of my Quest tests always come back as normal. I swear, it's Aetna's way of keeping a thumb on the patient. Abnormalities only ever show up when other labs do the testing. But my thyroid has never been tested at another lab, unfortunately.

And although the test came back within the normal range, I have many of the symptoms associated with hypothyroidism - Coarse and thinning hair, dry skin, slow body movements, inability to tolerate cold, constipation, thinning of the outer third of the eyebrows, puffy face, hands, and feet, weight gain, swelling of the legs, poor muscle tone.

I've talked to my Primary about the issues but until something changes in the tests, it's unlikely she will prescribe anything for it.

Every six months or so I gain about five pounds and am now the biggest I have ever been, despite going hard at the gym 3-4 times a week. And despite eating healthier than ever before. Having to buy basically a new wardrobe every six months to a year is way too costly but everything just gets tighter & tighter. Ugh!

What alternatives are there to prescription meds for thyroid support?

Thanks
 
Posted by lymeinhell (Member # 4622) on :
 
Often times, a sluggish thyroid is from iodine deficiency. Look up Iodoral.
 
Posted by xoxoxox (Member # 18778) on :
 
Thanks Julie
I will give it a shot!
 
Posted by n.northernlights (Member # 17934) on :
 
I got worse from iodine in vitamin pills, but I have hashimotos. By the way, LDN lowers hashimotos antibodies.

The normal range is way way too wide, normal TSH is around1. What are your numbers, TSH , ft4, TPO Ab?

Most thyroid forums for those who are hypo can tell you the same things, tests are not picking up hypothyroidism until they get very ill, since the ranges are way too wide.

Also, check the stop the thyroid madness website and forum
 
Posted by Catgirl (Member # 31149) on :
 
Iodine. Start slow, low doses (not 12 mg).
 
Posted by xoxoxox (Member # 18778) on :
 
n.northernlights - according to Quest, these are all within range:
Past TSH numbers have been 1.03, 0.83 and most recently, 0.726.
The free T4 number was 1.3
The free T3 number was 270
The THyroid Peroxidase AB number just says <10

What is LDN and is lowering the Hash antibodies good?
I will definitely check out the website you suggested.

Catgirl, I just ordered the Iodoral and will ease my way into it to see if it makes any impact.
 
Posted by Sammi (Member # 110) on :
 
Can you please post the lab ranges for these tests?
 
Posted by Robin123 (Member # 9197) on :
 
What about trying Armour thyroid to see how you do? It is an Rx, but maybe you could pay for it - it's not too much cost.

It made a huge difference for me - I began to feel "present" again.
 
Posted by nonna05 (Member # 33557) on :
 
Robin , did you get the old formula? How did you start?

Tirate up?

Does a drop of Iodoral in water help it come together?
I'm doing several adrenal support items and some thyroid.......

usually start at 60/1grm........or take a bit of cytomel

still have small mass on Adrenal gland , nobody is concerned about.....
 
Posted by faithful777 (Member # 22872) on :
 
Sometimes the tsh comes into the right range but your body still can't convert T4 to T3 and that is why sometimes adding cytomel a few times a day may help things along.

I did better with Nature Throid vs Armour. Just as cheap to buy and it has a little more T3 in it.

I do take Iodoral everyday.
 
Posted by Robin123 (Member # 9197) on :
 
I take Armour thyroid daily - I break a 60mg tablet in half and take 30mg in the am and pm. I started with 30mg once a day.

We're all different and we have to find out what works for us, re all the advice given here!
 
Posted by jackie81 (Member # 27031) on :
 
How would you know if your body cant convert t4 to T3?
 
Posted by xoxoxox (Member # 18778) on :
 
Sammi
Below are the ranges for the four tests:

TSH 1.03, 0.83 and most recently, 0.726 - Range [0.35-5.5]
The free T4 number was 1.3 - Range [0.8-2.3]
The free T3 number was 270 - Range [230-420]
The Thyroid Peroxidase AB number just says <10 - Range [<35]

Robin & Faithful
Thank you for the suggestions about Armour Thyroid, Nature Throid and cytomel. I will do some reading up on these but it's unlikely my primary would prescribe without the test results to support it. I will talk to her about it though.
 
Posted by Polkahero (Member # 37841) on :
 
Quest's lab reference range for TSH is now 0.35 to 5.5? Are they kidding? When I had my TSH tested through Quest back in 2011 the reference range was 0.40-4.50 which is pretty ridiculous as well! Seems like they skew these ranges towards sick patients more and more. . .
 
Posted by Sammi (Member # 110) on :
 
xoxoxox although your results are in the normal range, they are low normal. There is a lot of room to work within the "normal" range.

I am not a medical professional, but based on your results and symptoms I think you might benefit from treatment. From experience, I know I feel best when my results are in the upper 1/3 of the range. My doctor knows this too. When they have been below this, he has increased my dose. I have been steady now for a long time.

I suggest checking out the About.com Thyroid Disease at http://thyroid.about.com/cs/basics_starthere/l/blforum.htm You may be able to get a doctor recommendation here. Another forum is "Stop The Thyroid Madness" at http://www.stopthethyroidmadness.com/ As with tick-borne diseases, it is important to learn as much as you can.

It can be very difficult to find a good thyroid doctor, but it is not impossible. These sites may be a good place to start.
 
Posted by Ellen101 (Member # 35432) on :
 
I am so confused with all this. These were my results
Free T3. 2.85
Free T4 1.19
Thyroglobulin antibody <20
Thyroid peroxidase 224
 
Posted by Sammi (Member # 110) on :
 
Ellen, can you please post the ranges for these tests? Each lab can be different.
 
Posted by Ellen101 (Member # 35432) on :
 
Free T3 2.85. (2.30-4.20)
Free T4. 1.19. (0.71-1.42)
Thyroglobulin antibody <20. Range- <=40
Thyroid peroxidase 224. Range <35
 
Posted by Robin123 (Member # 9197) on :
 
Here's my test results prior to starting Armour thyroid:

T3 - 82
normal range: 87-167ng/dL
So, clearly lower than normal range

TSH 3rd generation - 2.93
normal range : .400 - 4.500 mlU/L
So, in the middle of normal

With test results like that, I have had a remarkable response to thyroid supplementation - I feel more present, and I can feel time passing now.

Symptomatically, do you feel any of that - that you feel dissociated or that you don't have a good sense of time passing?

Your tests appear to use different parameters than mine, and by them, you appear normal, except I have a question about the last one, thyroid peroxidase 224 - did you mean to type that it should be greater than 35?
 
Posted by Sammi (Member # 110) on :
 
Ellen, it looks like you could have Hashimoto's due to your antibodies being over 35. Hashimoto's shows that your body is attacking the thyroid. Some people who have Hashimoto's have results in the normal range, but treatment is warranted. This happened to me.

As I replied to the other poster, there is room to work within the normal range. Do you have hypothyroid symptoms? Is your doctor treating you?
 
Posted by Ellen101 (Member # 35432) on :
 
Sammi I am on .75 levothyroxine
 
Posted by Thewino (Member # 39086) on :
 
My physician swears by the Armour Thyroid also.

Fatigue is a giant issue for me. Testing of my thyroid levels proved them to be low.

I have been on the Armour Thyroid for maybe two weeks now.

It is too early to see any changes or to be able to tell if it is helping at this point. Time will tell.

Thewino
 
Posted by swimmeredurp (Member # 34305) on :
 
You might also want to check out NatureThroid--some

people have even better luck with it than Armour.
 
Posted by Dove7 (Member # 39546) on :
 
Was on armour for two months withou impact. Doc suggested synthroid (levothyroxine) 100 mcg since my numbers weren't moving.

Everyone is slightly different, and many endo docs won't even look at T3 levels, but depend more on the TSH.

Isn't it amazing how much wider the normal ranges are getting at most labs?
 


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