Was admitted to hospital last month for apparent appendicitis. After 2 CTs, MRI, ultrasounds, GI and OBGYN, parasite workups and exploratory lap- found nothing. All films have been reviewed by multiple radiologists. Extensive hospital bloodwork showed nothing but low neutrophils. After release, mentioned to GP that I had been also experiencing the frozen feet and hands symptoms I had when originally diagnosed w Babesiosis and Erlichia in 2010. So he tested for lyme panel again and Babesia came back positive.
Still have horrible right lower abdominal pain only touched by trigger point injections and massive pain killers. Should I continue to pursue other abdominal problems or just assume this is all related to Babesia recurrence?
Searching for LLMD but still wondering if dealing with multiple issues or if Babesiosis might explain it all?
Any ideas?
Posted by Winni (Member # 36772) on :
Jen 13,
I have been there. I have been to the ER 3 different times for Abdominal pain. I have had 2 colonoscopies and 2 Endoscopies. NOTHING THERE. It is very frustrating.
Abdominal and pelvic pains were some of my first symptoms. I had MRI's, Cat scans and PET scans and Ultra Sounds. they found some insignificant things unrelated but nothing that could have been causing my pain.
I have Lyme, Babs and Protomyxzoa Rheumatica. I am unsure if you should keep searching or not, I just wanted to let you know you are NOT alone in this. I am sure others will chime in here with their experiences as well. Sorry I cannot offer more.
Posted by fieldbredESS (Member # 39186) on :
Sounds very much like what I've been through & done. My Babesia tests were negative.
Mine literally began with what I thought was a stomach virus, then the abdominal pain started.
I had the parasite testing, C.Diff testing, Colonoscopy, CT, Endoscopy, hospital x 3 days, repeat CT (which showed different results), pill capsule study, a spiral endoscopy, a double balloon colonoscopy, exploratory surgery. My surgeon was the one who actually thought it might be an entrapped nerve, told me that unless we have something concrete to go after on a scan or test that I shouldn't have another abdominal surgery again(history of adhesions).
The only relief I've gotten from this rotten lower right quadrant abdominal pain is acupuncture. I even had an ultrasound guided nerve block done before my Lyme, Mycoplasma & Bartonella dx.
The nerve block helped bring down the nerve pain but it never went away. My joints & the rest of my body went haywire after the nerve block was done as well (steroids).
I still have to use a heating pad. I also use a balance ball when sitting at the computer, otherwise my little entraped nerve goes crazy.
Posted by didogs (Member # 40101) on :
Sorry you are going through this! I have had same experience and all those lovely tests. Everything of course was negative. I am now treating bart which has been my biggest challenge by far. I can tell you I am experiencing some relief from abdominal symptoms the further along I get in bart treatment.
Just my experience and I was diagnosed cliniclly with bart. Tests were negative. I use heating pad everynight too.