My right leg has been twitching on and off for 8 months.
It all started after taking Biaxin for 4 days and I ended up in the ER with tremors.
For a while, both my legs would twitch periodically, but now it's pretty much just the right leg.
It doesn't seem to be any particular muscle. It can be numerous places on the leg.
On two occasions I had really strong joint pain in my right hip. Otherwise, no pain.
My question: Would this be caused by infection in the leg itself, or by CNS involvement?
Posted by nonna05 (Member # 33557) on :
wow! I guess first question ,what did your LLMD say about it?
I had a similar reaction to a drug a few years ago, before I knew about LD.
Mine was sudden pain in legs and low back.
I Googled and by chance found a chat going on about how this was happening to other people when they tried that drug.
Mine was supposed to be for a bladder infection.
So it started by 4th day, I read the post, and stopped the med.
It had taken ,doctors, 4 months to figure what problem was. Only found it with actual scope.
I was in another country by then. So I had Rifampin with me and ,started back on that until I got home.
Recently I had a similar experience with one our meds and was asked/told/recommended to try and push through it. That it could be a Herx reaction.
Back then with first event ,I had no idea what a Herx was....I was very sick but with unknown diagnoses.
I'm not a doctor. Just saying what I went through...was not Biaxin with me.
What else are you taking?
Any other new meds/supps??
Did you throw a cyst buster in there?
I'm sure more help will follow..nonna Posted by VV (Member # 38828) on :
At that time I was on Ceftin, Diflucan, Amantadine and testosterone as well. I stopped them all after that ER visit.
I had other symptoms with that circumstance: gastroparaesis, extreme depression/anxiety, and I became very sensitive to smells/sounds, elevated heart rate, insomnia + more.
I'm still baffled about it. Herx, side effect, disease progression?
I just know that I could not stay on the pharms when that happened. My symptoms were too severe.
If that was a herx, my detox pathways must be screwed bc I have not come back to "baseline" after 8 months.
Posted by VV (Member # 38828) on :
"wow! I guess first question ,what did your LLMD say about it?"
I've been to three Lyme docs in that period and none of them really seemed to elucidate.
The first doc (the one who prescribed all that stuff) wanted me to stick it out when I contacted him, then at the following appointment he suggested I was just dehydrated and offered to put me on a beta-blocker for the high heart rate so I never went back.
He seemed like a very smart man, but I just didn't trust his decisions after that.
For whatever reason, none of these docs have discussed detox with me.
Posted by Carol in PA (Member # 5338) on :
quote:Originally posted by VV: I had other symptoms with that circumstance: gastroparaesis, extreme depression/anxiety, and I became very sensitive to smells/sounds, elevated heart rate, insomnia + more.
I think this may have been a herxheimer reaction, as most of those are symptoms of low magnesium.
When the white blood cells phage (eat) Lyme bacteria, the liver uses more magnesium to make glutathione to detoxify the poisons left behind.
You can provide liver support by taking Magnesium Fish oil CoEnzyme Q10 Undenatured whey (amino acids) Acetyl l-carnitine Alpha lipoic acid N-acetyl cysteine Milk thistle
Posted by kim812 (Member # 17644) on :
My left leg has been twitching 24/7 for over 8 years. It was my first symptom and in spite of years of treatment I still have it. For me I believe it is permanent. I also have nerve pain along with the twitching.
It is annoying but other than that doesn't really stop me from doing anything. Had an EMG done and it was normal....
Posted by VV (Member # 38828) on :
quote:Originally posted by Carol in PA:
quote:Originally posted by VV: I had other symptoms with that circumstance: gastroparaesis, extreme depression/anxiety, and I became very sensitive to smells/sounds, elevated heart rate, insomnia + more.
I think this may have been a herxheimer reaction, as most of those are symptoms of low magnesium.
When the white blood cells phage (eat) Lyme bacteria, the liver uses more magnesium to make glutathione to detoxify the poisons left behind.
You can provide liver support by taking Magnesium Fish oil CoEnzyme Q10 Undenatured whey (amino acids) Acetyl l-carnitine Alpha lipoic acid N-acetyl cysteine Milk thistle
I take almost everything on this list. I take 1.5g mag in 3 doses. Can I up that?
Posted by Carol in PA (Member # 5338) on :
If your Vitamin D is low, your body won't absorb the magnesium as well. Many people here are taking 1000 to 5000 units of D3 daily.
You can take Boron 3 mg daily to help stop the kidneys from removing as much magnesium and potassium from the blood.
You can apply magnesium to the skin with "magnesium oil" or by soaking in Epsom Salts bath.
You can get magnesium in the diet. Almonds, almond butter Dark chocolate Beans, kidney beans, black beans, bean soup, bean burritoes, baked beans.
Which form of magnesium are you taking? Look at the list of ingredients. Magnesium oxide is more difficult to absorb. Magneiusm glycinate, taurinate, and citrate are easier.
Posted by VV (Member # 38828) on :
Carol,
I take magnesium malate, source naturals 3x a day. Comes out to about 1.5g
I tried the baths but I really dislike the posture of lying in the bath (and my hot water runs out too fast as well).
I have magnesium spray. Maybe I will try it on my feet.
nynature,
Bart? Do you know what herbs people take for that? Does bart cause red skin after a shower or in the sun?
Posted by Carol in PA (Member # 5338) on :
Yeah, I dislike baths too. And your skin feels sticky after applying magnesium, like when you swim in the ocean, but worse. So after an Epsom Salts bath, you'd need to shower to rinse it off.
When I first bought "magnesium oil," I tried applying it to the skin. I sat on the rim of the tub and rubbed it on my legs. It was summer, and I was wearing shorts, but the sticky feeling was so annoying.
I didn't last 20 minutes before I sat on the rim of the tub again and rinsed it off with cupfuls of water. The "magnesium oil" is just in a water suspension, so it's very thin. Amazing how much they charge for it.
I also tried using it as a foot bath. I figured I could sit with my foot in a large flat tupperware container, and soak in the solution while I was reading on the computer.
Well....the cat wanted in and then out, and I'd have to dry off my foot whenever I got up. I put the lid on the tupperware, planning to use it a couple times, since it's pretty expensive to just throw away.
After a couple days of this, my foot began peeling, haha. The whole thing was so annoying that I just stopped.
I'd rather eat beans and almonds.
Posted by Carol in PA (Member # 5338) on :
VV, you said, "I take almost everything on this list."
Which ones are you not taking...I may be able to suggest an economical source.
Magnesium malate is good, although I don't remember that it did much for me. You could try a different form and see if it reduces your symptoms.
And I use Source Naturals NightRest, which has magnesium chelate.
Posted by VV (Member # 38828) on :
Hi Carol,
Thanks for the suggestion. For whatever reason, they put a bunch of B-6 in the Ultra Mag. Currently waiting on test results for MTHFR so not sure if the B-6 would be wise, esp if I'm trying to take a lot of the mag.
Posted by VV (Member # 38828) on :
Oh, and I have all the stuff on that list.
I don't take the whey often bc of precautions about glutamate and neuro-excitability.
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