I've had this sx for over a decade and I used to sleep with a garbage can beside my bed.. fast foward till a few years ago, it got so bad I threw up several x's. I have been to the ER, taken Zofran, other anti-nausea meds, been scoped, scanned, neg for H Pylori, etc.
The nausea had subsided slightly and since March has reared it's ugly head up to the point even the smells of food make me sick. I can barely eat a few morsels of food and I normally have an ok appetite. I tried stopping meds/supps and it didn't meake any difference and though the Mepron I've just started may be adding to my misery it certainly isn't the cause.
My sx include terrible nausea, abdominal pain, chills, zero hunger, etc. If it isn't babesia, then what could it be? parasites? yeast? what else? I am not in the US so doing specialized testing is impossible.
Please tell me your experiences specifically re: nausea et. al?? many thanks!
Posted by OtterJ (Member # 30701) on :
Tailfeathers, have you had your cortisol tested? Lyme is such a big endocrine disruptor. Cortisol
controls how much sodium levels are in your body via the kidneys. Not enough and you get nauseous
and vomit. Cortisol is made in the adrenal glands that sit atop each kidney. The pituitary in the
brain secretes a complimentary hormone that stimulates the adrenal gland, ACTH. Without one
or the other, you can't live. Get your sodium levels tested when you start this cycle of nausea
and if they are boderline or low, have your
hormones checked. I should know, this is how my ACTH deficiency manifested, with nausea and vomiting.
Posted by tailfeathers (Member # 39328) on :
Hi, I think I had a 24 hr urine cortisol test done a few yrs ago and it was 'normal'. Just checked my recent labs and sodium and potassium is within range, not 'low normal' either.
Interesting about your ACTH deficiency, many yrs ago I had an ACTH stim test done and it too was normal.. that was probably 10 yrs ago. Thank you for your input, have to do some more reading about this.. my docs (locally) are so uncooperative, they give you a PPI and send you along your way!
Posted by canbravelyme (Member # 9785) on :
One of the things that has been most helpful in the past couple of days has been the addition of apple cider vinegar + water to my meals. Look up low stomach acid; I have no doubt that has been a contributing factor to my vomiting.
I put 1tsp of ACV in 8oz of water -- I felt a cooling pain relief in that place I have pain, above my navel; below my sternum as I drank it down...seems so illogical to think that taking something acid would give relief, so now I'm thinking the stomach is _supposed_ to be an acid environment, so if I'm low on stomach acid, _of course_ I would have pain...
XO
Posted by tailfeathers (Member # 39328) on :
Hi canbravelyme, I did get a salivary cortisol test done through an ND - and he wouldn't share the reference ranges with me and I didn't get any better on his tx.. what a waste of $$. Perhaps he wasn't a very good one!
Hmm interesting ab the low stomach acid, when I first fell ill many yrs ago and saw a CFS doc he added HCL to my supps - he said we need more acid to help open the pyloric valve, etc. bc I often felt 'poisoned' by the food that sat around in my stomach.
I'll check out the two links above, isn't it nice when you find something that helps? I do have ACV at home- don't know how much to dilute it - it's so strong and I'm afraid to make things worse. Interesting ab the carbs, I have or rather *had* been craving them a bit more than normal but right now the tought of food in general makes me want to run the other way..I really appreciate your feedback, every little bit is an eye-opener!
Posted by canbravelyme (Member # 9785) on :
OOOO, I _so_ relate to the thought of food making me want to run away.
You need the good stuff re: ACV -- with mother, un-pasturized. If you've got that, and you're concerned about taking it, I would dilute 1tsp in 2c of water, and take a small sip (I'm diluting 1tsp in 1cup, and that's pretty dilute). If you're like me, after one sip, you'll feel relief. Let me know if you try it.
CAREFUL re: carbs -- he's suggesting low Glycemic Index carbs; especially green vegetables. NOT white cake Posted by canbravelyme (Member # 9785) on :
PS -- try calling the lab where the jerk sent your test, and see whether you can get the results.
Alternatively, ND's might have a regulatory board, and if so, it could very well be ND's are obligated to give you a copy of your chart (test results), if requested...
Posted by tailfeathers (Member # 39328) on :
hahaha gotcha - no chocolates then?? lol One question: the diluted ACV before, during or after meals??
Oh I have the results, just not the reference ranges which were left blank. Tried the progesterone too and made me worse-never did try the Isocort..
Posted by canbravelyme (Member # 9785) on :
Did you try the bioidentical progesterone?
I assume the lab won't give you the reference ranges as well!?? STTM has a Facebook page dedicated to Adrenals; I'd ask on there about the reference ranges; I'm pretty sure you'll be able to work it out: https://www.facebook.com/groups/STTMAdrenalsDiscussion/
If you have a constant sore spot in your abdomen, I'd just give a swig right now and see how you feel. I know it goes against everything you've now been conditioned by your stomach to do (What?? Get away from me with that Tomato! That Orange! That Avocado; heck, just get away from me with EVERYTHING!!!!), but in my case, when I took my first sip of the ACV+water for the first time, it was like, "ahhhhhh; thank you "
I'm drinking the ACV definitely before and during meals, and now I'm drinking it during the course of the day. Start with one sip; you'll figure it out; your stomach and symptoms will tell you.
Admittedly, I have been cheating with a bit of chocolate, but hey...I must admit that the nerve pain I have down my legs also increases when I have sugar, but the overall trend since starting this diet is less symptoms as time goes on...
Posted by tailfeathers (Member # 39328) on :
Yes, it was bioidentical progesterone.. and I hated how I felt on it. I know.. most women feel wonderful! Thx for all the feedback above, I think I'll make some up and see where that leads me. Kinda nervous but well.. it's pretty harmless. will post a little later.. xo
Posted by Carol in PA (Member # 5338) on :
Can Bravely Me said, "...the nerve pain I have down my legs also increases when I have sugar..."
Are you taking sublingual B12? When the stomach acid is low, B12 is not digested properly.
Usually the stomach acid tears apart the constituents of the B12, and then bacteria at the end of the small intestines put it back together again. If the stomach acid is too low, it can't tear the food apart into molecules.
Posted by canbravelyme (Member # 9785) on :
Yup, B12 is in the toilet, as is my protein and iron...all, apparently, symptoms of low stomach acid...
Posted by Dove7 (Member # 39546) on :
Nausea and vomiting seem part of my world at least half of the time.
Blamed much of this on the yeast, but my LLMD said my enzymes were out of balance, so he added some for a month to see if that would help.
Been on that for a week, and so far, it's not helping much.
Made some veggie soup with beef broth, and a tiny bit of that as something I could handle one day, then the next day, eating the same thing made me sick.
The one thing that has helped has been sauerkraut. About two or three tablespoons heated up and sprinkled with cracked black pepper.
Also, had a Greek yogurt last night, and that did okay.
I tried to find what made me sick, what didn't, time I took my meds, what foods seemed to help, etc, but I found no pattern so far.
Will give the enzymes more time, for maybe they haven't yet been able to stick in there.
Posted by canbravelyme (Member # 9785) on :
Dove, I read sauerkraut also helps if you have low stomach acid; I'd try the ACV as described above...let us know if you do, and what the result is...
Best,
Posted by Razzle (Member # 30398) on :
I have much experience with nausea... Been hospitalized & on TPN (fed via a PICC line) from severe nausea more than once.
Lyme/coinfections can do a pretty good job of causing nausea.
Gallbladder or liver problems can also cause significant nausea.
I had 14 years of near-constant nausea that disappeared as soon as my inflamed and very full of stones gallbladder was removed.
Gastrointestinal Dysmotility can also cause a lot of nausea. This is what has caused my bouts with TPN (food via PICC line).
In my case, I don't know what causes my gut to stop functioning normally, but Lyme/coinfections are a strong possibility.
I've also had the shaking chills with the nausea.
Sometimes, my nausea can be due to an allergic reaction or a sulfite sensitivity reaction, too.
Parasties, Candida, Viruses, Bacteria...many things can cause nausea chronically.
Also, I find adrenal insufficiency can cause nausea/vomiting w/ or without shaking chills.
My DH gets this (he's been steroid-dependent for a long time, so if he gets sick and can't take his medicine, he can become horribly ill from the adrenal insufficiency).
For me, I used to get nightly attacks of shaking chills with nausea (sometimes with vomiting) when I was a teenager.
Becoming a vegetarian helped, but what helped the most was getting NAET allergy desensitization for amino acids.
Now that I know about methylation defects, I suspect I was reacting to sulfur amino acids, which are higher in animal protein foods.
Sorry this post is so jumbled, been a rough week for me...
Posted by tailfeathers (Member # 39328) on :
Wow Razzle, you and your family have been through so much! thank you sooo much for your feedback, you've basically put it all in a nutshell for us..take care of yourself and I am so sorry for everything you're going through.. better days ahead my friend!
Posted by tailfeathers (Member # 39328) on :
Forgot to add that I did try the ACV a bit yesterday and I think it helped a teenie bit. Guess what? I've been starting to itch 'down there' and am wondering if it is yeast. Rocephin was tough (no longer on it) and that combined with a few days of cheating probably sent things over the top? Time will tell.
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