I have had a pain in my lower right side for about 6 weeks. It first started after I had accupuncture that went really wrong.
When it first started, I went to my GP after calling my LLMD for instructions. He ordered a sonogram including intravaginal. He also ordered an xray. Both showed nothing with my appendix or mesenetric. It did show 2 small uterine fibroids.
My LLMD suggested that this might be pudendal neuropathy. I googled it and because of the way it presents it's self, I supposed it could be that.
It comes and goes, but what is concerning me the most right now is this. I was away last weekend, doing an estate sale for my deceased mother's house. It was stressful, but I navigated it as best I could. Traveling is very hard for me, from a diet standpoint. I am Gluten Free, Dairy Free and Soy Free. I try to pack as much as I can but it's still difficult. We ended up eating out a few times, and I tried to stick to the diet as much as humanly possible.
I came home from the trip on Tuesday. Driving five hours in the car aggravated the pain in my side. I stopped at a rest stop and could hardly walk, my right leg was numb. If it is peudendal neuropathy sitting like that for long time would aggravate it. Wednesday I was tired so I rested, Thursday I felt pretty good, like 75%. I did some light yoga, a little shopping and took a short walk.
Yesterday, Friday, I woke up feeling like I had been hit by a bus. Body aches, chills, fatique, rumbling in my gut. The pain in my side was worse. If shot down my leg like a lightening bolt at one point in the morning. I just didn't feel well all day. I went to bed early last night, was up at 3AM, and then went back to sleep until 6AM.
I had a light breakfast, and then I had loose stool, and then this time, diaherra. I am taking probiotics, and on low dose Cowden herbs.
The pain in my side is still there. It's not a doubled over pain, it's an ache. I am never sure what is Lyme and what isn't. If I picked up a virus, it could be that and the pain in my side is just aggravation from the inflammation.
But the more I think about it, the more I wonder if I might have something called "Chronic Appendcitis" which isn't acute, but a leak in the appendix. My gut has been through so much with Lyme and yeast, it wouldn't surprise me if the lining just gave through and they wouldn't see it on any scans.
Right now some of my symptoms are body aches, fatique, just overall not feeling well and of course worry. My husband has business in California next week and he is leaving tomorrow, so I will have to handle this alone.
I am thinking that I might give it the weekend, and if I still feel this way, go to my GP on Monday and discuss this.
I am treating yeast, that showed up on my last Metametrix test, and I also wonder if this might be die off. How often does yeast die off anyway?
I am rotating VSL, Probiomax and Florastar along with Diflucan and Nystatin. I am pushing fluids if it is a virus and trying to rest.
Anyone have an opinion?
So sick of this.
Posted by lpkayak (Member # 5230) on :
didnt read all you said but when txing lyme i had it and emerg surg and doc said he never saw such a nasty looking appendix. some say lyme hides there
Posted by Lymetoo (Member # 743) on :
Be very careful! It sure could be the appendix. Go to the ER if it gets any worse.
Die-off can make you very miserable. .. and it's common to have pain on the right side near the ileus (from yeast). It may not be actual die-off, but the yeast itself (growing) due to a few slips in the diet.
Take care and keep us posted!
Posted by tdtid (Member # 10276) on :
I agree with Lymetoo. I would want to get it checked out so the ER may be your best bet or if you can get in to your regular doctor very quickly.
We all know that Lyme with stress can cause all sorts of crazy symptoms and sadly, most ER's won't understand any of that, BUT if it is perhaps your appendix, that they will be able to track.
It could be so many things...but basically you want to make sure it isn't something like your appendix since you don't want to risk it rupturing.
Before my lyme diagnosis, I had similar pains but they came on hard and fast during the night. I went to my doctor early in the morning and by afternoon, they were removing my appendix.
I know that some have it come on fast and hard as I did and other have it do a slower paced thing but keeps getting worse and worse until you can't take it any more.
As tutu said, it could even be something like yeast, but I would definitely want to rule out something that could need attention right now. Please keep us posted.
Posted by daphnesmom1 (Member # 39433) on :
I guess I don't know how they would even test for Chronic Appendicitis. I read about it on the internet and it seems like a difficult dx.
I already had the sonograms and pelvic exray's done which came back neg, so I am puzzled as to how they would even dx it.
I have such a bad feeling about doctors, that I can just hear him saying..."you had two tests and showed nothing, so you must not have appendicitis."
I don't really have the energy to fight them.
Posted by trimom (Member # 25843) on :
I'd skip the ER. They can usually tell about an appendicitis from blood tests as well...shows up with elevated white blood count.
I hate how Lyme does this to us where we don't know what is wrong, which doctor to trust, and feel uncared for in the system.
Posted by Razzle (Member # 30398) on :
Perhaps a castor oil pack over the lower right side would help?
Also could be ileal-cecal valve malfunction. To fix this, lay on your stomach on the floor or other firm surface, and place a tennis ball half way between the top of your right hip and your naval. It hurts if the valve is messed up... Lay there for 20 minutes 2x/day until the pain goes away...
Posted by daphnesmom1 (Member # 39433) on :
I just checked 2 WBC from Quest; one from 2011 before any of this stuff ever happened. 5.3
And then the most current one from Feb 2013 when all this pain started. 5.2
So I guess my White Count isn't up.
Razzle I will try that. My guts are so sore and inflamed right now, I might wait until I feel better, assuming I will feel better.
Hoping tomorrow is better.
Posted by daphnesmom1 (Member # 39433) on :
quote:Originally posted by trimom: I hate how Lyme does this to us where we don't know what is wrong, which doctor to trust, and feel uncared for in the system.
I agree, it's the ongoing dilemma. It's a terrible situation to be in.
Who ever thought it would be like this, right?
Posted by lpkayak (Member # 5230) on :
mine was dx with blood test in the er
no question
i dont like er either and on friday a gi doc told me to got gluten free and i would be fine
the pain kept getting worse -i lived out in the woods and when i realized i couldnt drive i decided to call the ambulance on sunday afternoon
i kept apologizing for making them come get me...once in the hosp all went fast and a doc was saying i had to go to surg right now...no time to call kids...right now cuz if it burst it would be very bad
i do think you should get it checked out. i have probably been to er 10 times for chest pains that were nothing serious...i understnand not wanting to go...but it could be life or death and i think you should go.
the blood test doesnt get pos until it is bad enoguth for surg
take care
Posted by Judie (Member # 38323) on :
I would definitely check into it further.
" If shot down my leg like a lightening bolt at one point in the morning. "
Sounds like nerve pain. It can be sudden and sharp, right?
I had that going on last year. I was convinced it was my appendix or ovaries.
Did an ultrasound and colonoscopy.
It was actually a combo of inflammation pressing on the the nerve and after I got treated for h. pylori, it decreased.
I've also been taking DGL and digestive enzymes and the pain FINALLY has almost got away after a year of this.