For the past month I been struggling with constant head pressure and head movement. Sometimes it's hard to control my head.
It moves from side to side really fast, and it stays like that all day without stopping.. Unless sometimes I can control it. Some days its less than others.
The past three days my head have been moving in circles.
I can't leave my house or have my friends come over, I am scared people will see me like this. I am scared to look at myself sometimes.
This is really hard mentally and physically.
The doctors don't seem to know what's causing it, and I am not sure what to do. I want it to go away!!!!
Any experiences or suggestions?
Posted by Rumigirl (Member # 15091) on :
Are you seeing a top LLMD?? Are you on treatment, specifically IV?? If not, you need treatment by a top LLMD ASAP.
(I know that you've been through a lot, but I don't remember your status re an LLMD).
Posted by luvema (Member # 26650) on :
I do see an lmdd...
She's treating me for yeast at the momenet.
Posted by BoxerMom (Member # 25251) on :
Your symptoms still sound like Babesia to me. Whatever the pathogen(s), you need adequate treatment.
I'm concerned that your LLMD is undertreating, considering the severity and worsening of your symptoms.
Could you get a second opinion with another LLMD?
Some see patients over Skype after the initial appointment.
Good luck. I hope you find relief soon.
Posted by glm1111 (Member # 16556) on :
Ema,
I really do think you need antiparasitics and would benefit from someone that is familiar with treating parasites. I agree with BoxerMom that you are being undertreated.
Is there a Dr. K. practioner familiar with ART testing and treating parasites in your area? Google Dr. K (using full name) practioners. I will try and search as well.
Perhaps getting a neck brace at a medical supply place would help and also allow you to leave the house without feeling embarrassed. It will just look like someone being tx for whiplash.
Sorry you are going through this.
Gael
Posted by glm1111 (Member # 16556) on :
Okay, just looked up Dr. K. practioners. You can contact Scott Forsgren for an ART practioner referral at [email protected] He is in Santa Clara, Ca. Hopefully he can guide you
Posted by luvema (Member # 26650) on :
Is there a way I can treat parasites on my own?
Posted by jlf2012 (Member # 36002) on :
My son was having leg spasms last spring and my niece was put in a wheelchair because of involuntary movements like you describe. Luckily, I got them into a lyme doctor immediately and they were treated with abx. No one knows what tomorrow will bring but at this time they are off abx and okay.
Posted by glm1111 (Member # 16556) on :
I treated parasites with antiparasitic herbs such as Parastroy and Humaworm. Plus the salt/c protocol as described at lymestrategies. You can also order the salt/c book from Amazon for detailed info and guidance.
Do a search on parasites and look at the symptom list. I also added extra cloves by Hanna Kroeger to kill the eggs and larva.
Gael
Posted by luvema (Member # 26650) on :
So there is hope this head movement will go away!
Posted by munchin (Member # 38744) on :
I had head tremors and just like you I did not want people to see me.
This was prior to getting a diag and starting treatment and there was no hiding it.
About a month or so into babs treatment it was mostly gone. It does return when Herxing.
Posted by glm1111 (Member # 16556) on :
Ema,
I had severe head pressure, stuttering, myclonic jeks, load cracking sound in my head,and more. It went away when I went after the parasites.
There is also a brain/gut connection, so if you are loaded with G. I. parasites, this could explain some of your symptoms.
Parasites can migrate to the head, and this could explain what you are experiencing. You will get better with the proper tx.
Gael
Posted by Catgirl (Member # 31149) on :
quote:Originally posted by luvema: The doctors don't seem to know what's causing it, and I am not sure what to do. I want it to go away!!!!
Any experiences or suggestions?
It sounds like babs and parasites. We all have parasites (part of nature, and some of them come with the tick).
Most of the lyme docs that I've met were clueless about parasites. I would start with the one Gael posted above. If not, search for an ILADS doc at www.lymediseaseassociation.org Dr. K type docs understand parasites best, IMO. They treat them aggressively. Parasite meds really helped my babs (babs is a parasite too).
I'm not sure you have an ILADs doc, and even if you do, you need a better lyme practitioner, fast.
Posted by luvema (Member # 26650) on :
Well my lmdd doesnt believe in parasites or parasite treatment. So, I am not sure how i'll treat that unless I do it on my own. It's hard for me to go to other doctors because this one is 20 minutes away from my house.
My mom doesnt drive in freeways.. My dad doesnt think lyme is causing this. So, My mom drives me to my current lmdd. I can't drive anymore...
Last time I tried to drive I almost got into an accident because my head started to move.
Posted by dbpei (Member # 33574) on :
luvema, I will PM you.
Posted by Pocono Lyme (Member # 5939) on :