LymeNet Flash: plaquenil.... the nitty-gritty

This is topic plaquenil.... the nitty-gritty in forum Medical Questions at LymeNet Flash.

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Posted by dan67 (Member # 20344) on :

Some say it works because of immuno-modulating effects. Others say it works because of cyst busting.

Brorson & Brorson originally found cyst busting effects but later Sapi says it increases cyst count.

http://www.ncbi.nlm.nih.gov/pubmed?term=brorson%20borrelia%20plaquenil%20

http://www.lymeneteurope.org/forum/viewtopic.php?f=5&t=2776

I'm curious to hear YOUR experiences with plaquenil... I'm considering starting it but want to research first. Thanks.

Posted by Razzle (Member # 30398) on :

I took it for about a year. This was before I knew I had Lyme, but was diagnosed with an undifferentiated connective tissue disorder (aka, "pre-lupus" or "lupus-like syndrome" in my case).

The only benefit I saw was the pain in my hands decreased.

But the med. seemed to bother my eyes - my eyes felt more irritated, dry, itchy. And given the risk of eye side-effects, I decided the help for my hands wasn't worth messing up my eyes...especially when a homeopathic remedy helped my hands with no side-effects.

Posted by burnsjw (Member # 11819) on :

I have been on it for sometime and when I go off I am stiff and hurt more within 1 or 2 days. It helps me a lot. Everyone is different. I have an underlying connect. tissue problem as well.