I've just been diagnosed with myasthenia gravis (previously was dxd with ALS for 3 years). What do you use to treat MG?
I'm on IVIG now and its working great but its so expensive. I don't think my neuro will use it much longer. Any altnatives? I don't want to use steroids.
I have FL1953 but nothing else tests positive.
Posted by lymednva (Member # 9098) on :
Contact Tracy9 by email. She's on IVIG for life because without it she's in the hospital in an MG crisis.
Posted by Lymetoo (Member # 743) on :
I'm sorry to hear this but VERY GLAD you now know what to do!!! You may need to change neuros if this one won't prescribe IVIG.
Yes, contact Tracy9.
Posted by 2young2dieMom (Member # 25434) on :
yes, I've been in touch with Tracy. I may have to go to her doctors because my symptoms are so similar to hers.