Hi all, I wanted to share some info in case you are interested. I have been a member a long time and have tried many different protocols for my family.
I have found two herbal protocols which have successfully cured our lyme/coinfections but this past winter two of my children developed PANDAS/PANS along with high virus titers. They each missed almost 2 months of school.
As I tried to heal them with various protocols, I noticed that they both had HUGE herxes after taking an herbal parasite cleanse. So I knew their OCD/fatigue/confusion/headaches/tantrums/tics/crying/violence/rages were in large part due to parasites, because these symptoms were much worse after the herbal parasite cleanse.
Symptoms slowly improved after 4 months of the parasite cleanse but my children were still not fully healed. My research took me further and I discovered a new protocol which has been amazing for us and I feel will heal my children completely and free us of the constant immune issues that have plagued us for years.
I first heard about it from Gigi, and then one of our practitioners mentioned it. It has actually fully healed autistic children like no other protocol in the past. It is not just for autism and can help with asbergers, ADHD, allergies and many issues with adults as well. I am very excited about it.
Word is spreading very fast as more and more children are healed. If you want to learn more, you can watch the videos and read the info on http://www.mmsautism.org/
You can also join the closed facebook page CDautism and just start reading and asking questions. I can't speak from personal experience but I have read testimonials from those who have healed lyme/coinfections with this protocol as well. I am not on this site much anymore so I may not get to your PM's very fast but wanted to pass this on since it has been a miracle for us!
tickbattler
Posted by Lymetoo (Member # 743) on :
Could you please break that up so everyone will be able to read it?
Posted by Lymetoo (Member # 743) on :
I can't imagine giving a child MMS.
Posted by tick battler (Member # 21113) on :
lymetoo - I wish you would stop saying that. It is insulting and insinuates that I am harming my children. I consulted with 3 different medical doctors before starting this and they all encouraged me to do so. You have not done the research that I have so please read the stuff before you dissuade people from doing it.
Posted by surprise (Member # 34987) on :
Tickbattler I am sincerely thrilled for your children's healing. It pains me greatly what is happening to our youth.
MMS is very controversial in the use of children.
As our new Pope recently said: Who am I to judge?
For me personally, I could not put this product in my child. This is my own personal decision.
Posted by Lymetoo (Member # 743) on :
I've used it myself. That was more experience than I wanted. I'm just concerned about damaging a child's delicate stomach lining.
Posted by tick battler (Member # 21113) on :
It is so ironic you say that Lymetoo because if you would spend some time reading the experiences of others...the MMS is actually is HEALING the stomach lining of those delicate children with autism who scream in pain all day long and can't talk because their gut is so messed up from parasites, viruses, bacteria, fungal infections and resulting inflammation.
Even more ironic is that it is the antibiotics which damage the stomach; NOT the MMS.
If you read the testimonials from the mothers who are devoting their lives to healing their children as I have, you will see that the children are no longer having bloated tummies and pain that they once had prior to this therapy.
Too much MMS can cause severe herxing, but starting at 1/8 of a drop per dose is how this is administered, so herxes/die off reactions like you had can be avoided.
Surprise - thank you for your support. Everyone needs to make their own decisions on how to heal their families. If the time comes when you want to investigate further, I am happy to help! There will be a documentary on this in the future which should help spread the word, just as Under Our Skin did for lyme. There is a lot of negative info on the internet from those who are uninformed and I had to get past that. It is not easy!
tickbattler
[ 07-31-2013, 10:59 PM: Message edited by: tick battler ]
Posted by Lymetoo (Member # 743) on :
It wasn't die-off.
Posted by Razzle (Member # 30398) on :
Some people are chemically sensitive to chlorine. These are the folks who should avoid MMS.
I too would hesitate to give a child MMS...heck, I wouldn't even take MMS myself (especially since I get an allergic rash from chlorine in swimming pool water, which is essentially what MMS is)...
Posted by Lymetoo (Member # 743) on :
I don't see why it wouldn't kill off the GOOD bacteria along with the bad. Doesn't make sense to me.
Posted by tick battler (Member # 21113) on :
Razzle, I am chemically sensitive to chlorine and have no problem tolerating the MMS. It is an entirely different thing. See the answer to this question posted on the MMS site:
But I heard that MMS is the same thing as chlorine bleach?
Not True.
Activated MMS (sodium chlorite + citric acid) is chlorine dioxide (Cl02). Chlorine bleach is sodium hypochlorite (NaOCl).
ClO2 ≠ NaOCl
Similarly, oxygen = O2 and ozone = O3. The formulas can appear similar, however it is safe to breathe oxygen and not safe to breathe ozone. O2 ≠ O3
Razzle - there are some who are sensitive to the citric acid which is used as an activator. Those people may get stomach pain. For this reason, now most use HCL as an activator. But for those who may still be sensitive to the HCL, then there is a new solution called CDS which is prepared without the activators and can provide the chlorine dioxide alone so it is more easily tolerated for those extra sensitive individuals.
Posted by tick battler (Member # 21113) on :
lymetoo - this should help clarify why MMS is so effective and does not cause side effects as antibiotics do. Here is the question/answer posted on the website for the protocol we are taking:
But, there is no way that MMS (chlorine dioxide) can differentiate between pathogens and beneficial bacteria.
Not True.
There are differences between pathogens and beneficial bacteria. In the first place:
• Pathogens create a waste material that is poisonous to the body. • Beneficial bacteria do not generate any poisonous material.
Further,
All organisms and body cells have an ORP (Oxidation Reduction Potential) that can be either positive or negative. The ORP is the electrical charge that cells exert on other things in their immediate environment. Oxidizers (i.e. chlorine dioxide) also have an ORP, mostly called Oxidation Potential, and all oxidizers have a positive potential.
• All pathogens (poison producers) have a negative ORP. • All beneficial bacteria have a positive ORP.
Positive charges repel one another. Thus the chlorine dioxide never touches the beneficial bacteria and thus the beneficial bacteria are not destroyed. On the other hand, pathogens have a negative ORP. Remember the rule that opposite charges attract one another. Thus the pathogens are attracted to the oxygen and are destroyed instantly.
Posted by karenl (Member # 17753) on :
Hi Tick battler,
so happy you are also doing as well as I do. This was so easy. Please pm me, your mailbox was full.
Posted by tick battler (Member # 21113) on :
karenl - sorry - will try to clean it out! So you are taking the same protocol and seeing success too?! Thanks for your post!
Posted by evakula (Member # 29042) on :
tick battler, Great job on explaining MMS.Sounds like you done the research and know what you are talking about. Other people should do more research before they start condemning. Great Job explaining! My wife would never have recovered from Lyme if she would have listened to people that didn't know what they were talking about. Thank you for sharing your knowledge, it might just help someone out.
Posted by birdie67 (Member # 35994) on :
I have never tried it personally, but do know that my very well known LLND recommends it and has seen great results with it.
Thanks for sharing your experience tick battler.
Posted by surprise (Member # 34987) on :
I have a question about MMS, maybe you could answer it?
It's sincere. What if there is colitis in the bowel- which is inflammation and sores? (I'm thinking of myself- it could be a possibility)
Or, with the vaccine damaged children (by the way, Andrew Wakefield was vilified, and then proven correct)
His findings with the MMR shot, and why so many children regressed into autism after it- there were actual measle festers found in the children's colons-
So, in situations like this- couldn't MMS do irritable harmful damage?
Trust me, I am all for eradicating parasites, and am fully on board with the parasite issue.
But.... this chemical on wounds.... has anyone addressed this possibility?
Posted by Razzle (Member # 30398) on :
Tick Battler,
I asked on an MMS forum before and was told an allergy to swimming pool chlorine would likely indicate a reaction to MMS as well. That's why I said what I did...
Also, do you have a complete ingredient statement for the CDS form? I would react negatively to both citric acid and HCl because of my methylation variants & sulfite sensitivity (anaphylactoid).
Thanks,
Posted by Juli (Member # 29032) on :
When I first became sick with Lyme and Co’s a Pharmacist turned allopathic Doctor told me to get the MMS and use it! I did not do it at the time. I suppose if a Pharmacist would recommend it, there just might be something to look into! One thing I’ve learned since becoming sick is what I thought I knew, I don’t! MMS will be my final protocol soon as rifing ALONE has restored me from all 8-9 bacteria’s caused from Lyme and Co’s! I once was dying and dying quickly from these infections. Some don’t believe in Rifing but it saved my life!
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Juli: MMS will be my final protocol soon as rifing ALONE has restored me from all 8-9 bacteria’s caused from Lyme and Co’s!
- If Rife got rid of all the bacteria, why do you need MMS?? (I totally believe in Rife)
I am extremely sensitive to citric acid and HCL myself. No more MMS for me.
Posted by surprise (Member # 34987) on :
I just want to add one thing, people may not realize, trust me, I have no desire or energy to debate,
but the MMS protocol involves giving enemas.
I am not giving my 8 year old child daily, or multiple enemas. It would be terrifying and traumatic for her. No.
Again, my personal feeling on what's right in my situation for my child.
Posted by 2roads (Member # 4409) on :
I need to chime in here, being that I'm going through misery now.
Tickbattler, if I remember right your children were not autistic to begin with.
They have gotten worse on your tharapies.
Now you are doing this.
Don't you see how bad that Agrisept is.
I have tried to warn you about it, but you would not listen.
It has messed my son up.
My precious son.
How can your children be immuned to that?
They will never get better. Neither will mine.
Stop
Posted by lax mom (Member # 38743) on :
I have a lot of respect for Dr. Myhill's work. She even states on her website:
"IMPORTANT MESSAGE - My mineral mix (MM) should NOT TO BE CONFUSED WITH Miracle Mineral Solution (MMS) - a potentially dangerous product. Food Standards Agency has issued an urgent warning not to consume MMS."
I am willing to take lots of risks trying to get myself well. However, I am not willing to give my 3 year old MMS. Even if it cures every single child with autism out there. There are too many products that are proven to be safe.
I agree with Lymetoo. If there are sooo many other things that can help, why would I take the risk? I won't. Everyone else must decide for themself.
Posted by tick battler (Member # 21113) on :
Wow - I can see why Gigi left the site after her threads on MMS! I will address your comments one by one. Please keep in mind that I am providing this info to try to help people because I have seen my children make improvements beyond any place they have been in the past.
As I mentioned above, We are not dealing with lyme anymore but rather immune system issues such as PANS and constant strep and sickness and behavior issues which would not be considered by most people to be "autistic."
For example one of my boys is fully functional in mainstream classes without an IEP but could not play games or sports without melting down into an irrational tantrum if things didn't go his way. Some might say that is just his personality but I know it is not normal for a 9 year old to have a screaming tantrum when he scores a 10 on a hole in mini golf.
My other boy was diagnosed as "on the spectrum" or "autistic" after his doctor saw his neurotransmitter testing was not normal. (This was not the same son who had the meltdowns.) For those who are not familiar with autism, even asbergers or ADHD are "on the spectrum". They are the mild version of autism.
Just prior to starting the MMS protocol, when I took the ATEC test for each son, (which is a 6 minute "autism" test online to help you gauge which protocols are working), both of my boys scored on the spectrum. One boy at a 39 and the other at a 19. Anything over 10 is "on the spectrum." 3 weeks after starting the protocol, my boy who was at a 39 went down to a 24 and my son with a 19 went to an 8.
4 weeks into the protocol I put my son who was now an "8" into a tennis tournament and he was able to play 6 matches, winning 3 and losing 3 and had no meltdowns whatsoever. This has never happened. Not even one bit grumpy after losing. This may seem minor to some but to us it means being able to put my son into competitive sports or not. It means being able to go on playdates without having to leave early because of a meltdown about some irrational thing. This is HUGE for me and my husband and of course, for my son.
Even more dramatic has been my other son who no longer wakes up with a frown on his face and a headache and now has enough focus to read again when he could not read one book last winter or complete his homework because he had become so sick and unable to focus. He has read 30 books now since starting the protocol. He went from wandering around by himself on the school playground at recess to joining in the groups playing kickball and basketball. Maybe not much to some, but HUGE for us.
He is now playing in a tennis clinic with his siblings for 2 hours twice a week, whereas this winter he was too tired to leave the house. I could not respond to all of these messages until now because I was busy taking my three kids to the 2 hour tennis class today and then to a playdate this afternoon.
So yes, my kids ARE BETTER. We still are not fully healed but we are BETTER. I will not be satisfied until we are done with IEP's and we don't have irrational meltdowns or tantrums or behavior issues which I know are not normal. I will not be satisfied until each child has enough energy to play any competitive sport they want.
I will post in separate messages to each of you but wanted to give a bit more background so you understand where we are.
tickbattler
Posted by tick battler (Member # 21113) on :
2roads, I can understand the misery you are going through since I have been there. Nothing hurts more than to see your child suffering. But you are fixated on the Agrisept as the cause of your son's symptoms.
If you do not get beyond this, you are right, your son will not get better. You must know deep down that your son is sick because he is not being treated. He was never fully healed of his lyme/coinfections/parasites, etc.. and you told me yourself that you were told this by a doctor. Why not open your mind to other possibilities?
You can get beyond this and heal your son. I know it. You are a very good and devoted mom. Just open your mind and keep researching as you have done in the past so well.
tickbattler
Posted by tick battler (Member # 21113) on :
Razzle, From what I understand the CDS is only the chlorine dioxide without any of the activators. I guess the activators are used to make it but then they are somehow separated out so that you are only left with the chlorine dioxide. I do not believe there are any other ingredients. I have not needed to do the CDS so I don't know a lot about it. I think it needs to be made in a special way.
There are many kids with methylation issues (my son has one of the bad genes but not both) who take this protocol and have no problems.
Hope this helps.
tickbattler
Posted by 2roads (Member # 4409) on :
My son was 90% better, and I thought the agrisept would make the difference.
He ended up worse. I had to get off it because he was suffering from terrible hyperactivity and tics.
He now has insomnia and wakes throughout the night like your children do or did. Not sure if they are healed of this. He has jerking throughout the day and night. He has dumbed down. That's the best way to explain it. His IQ has dropped a couple points and bullies now prey on him due to his new alkward behavior. Some comments that come out of his mouth are, hard to accept. They are just so ridiculous and forgetful.
I appreciate your kind words, but I don't feel like a very good mom. As for the research, that was my greatest mistake. I should have done more.
Posted by tick battler (Member # 21113) on :
Surprise, I'm so glad you brought up Andrew Wakefield who was vilified for his theory about vaccines damaging children and for his theory that autistic kids have gut issues. Turns out he was so right.
Most of the kids on this protocol do (did) have colitis and other gut issues. Many had terrible gut pain PRIOR to starting this protocol. Most are kids on the spectrum. The woman who started the protocol and wrote the book on it is named Kerri Rivera. She has an autistic son and searched the world to heal him. She did the DAN protocols and diet and saw some improvements but could not bring back his speech after he lost it following a round of vaccines.
She has her own autism clinic and came across MMS and, after much research, tried it with her son. Within a week he started saying words. He is not fully healed yet but is improving continuously. He was severely autistic. So far 95 autistic children have been healed. Some children had ATEC's starting over 100 and now have ATEC scores at 1. The oldest autistic child to heal completely so far is aged 17.
This is ground breaking. Handfuls of kids have healed from autism on diet alone and supplements and other interventions but this seems to be helping almost all who take it correctly. The children are no longer having stomach pain and bloating after being on the protocol.
The enemas are not part of the baby bottle method. My kids had significant gains just on the baby bottle protocol. However, generally even more progress is made when the parasite protocol by Andreas Kackler is started. This does involve enemas. It is a bit shocking to contemplate but if it means having a child dependent on me for the rest of his/her life or having a happy, healthy, independent, self-sufficient child, it is not even a question for me.
tickbattler
Posted by tick battler (Member # 21113) on :
2roads - my kids had all of these SAME symptoms, especially my son who was the sickest. Parasites and lyme both can cause the insomnia. My kids all now sleep through the night. You can heal your son!!!!! Don't give up!
Your son may have been 90%, but if you don't get it all, it comes back! You know that. A doctor told you that the reaction to the Agrisept was a herx from babesia and candida, the two things that Agrisept treats. Maybe the Agrisept brought something out sooner than it would have appeared by doing nothing but eventually, he would have backslid. Antibiotics did not cure my family. They did lessen some of the symptoms for a while but it all came back until we found the right protocol.
Please don't give up!!!! If you are on here, that means you are still researching! Just watch some of the videos of Kerri Rivera.
Do an ATEC test on your son. Then you have a baseline. Keep an open mind. It is not too late to heal your son. Watch some of the other warrior moms on the Utube videos who have healed their children with this protocol. Just read the book and let your husband read it and then decide. What harm can be done by reading?!
tickbattler
Posted by Juli (Member # 29032) on :
quote:Originally posted by Lymetoo:
quote:Originally posted by Juli: MMS will be my final protocol soon as rifing ALONE has restored me from all 8-9 bacteria’s caused from Lyme and Co’s!
- If Rife got rid of all the bacteria, why do you need MMS?? (I totally believe in Rife)
I am extremely sensitive to citric acid and HCL myself. No more MMS for me.
@ Lymetoo, I have never rifed for or done any type of parasite protocol. After reading about the MMS, it is my choice to use the MMS protocol. I do not know if I have them or not.. but I think all persons with Lyme or Co's past or present should do some type of cleanse just in case.
Posted by tick battler (Member # 21113) on :
laxmom, I consulted with three highly respected, intelligent doctors prior to starting this protocol. All encouraged me to use it on my children. I also researched it myself.
The problem is that there have NOT been any other treatments which are currently healing autism for the ones who don't heal on diet alone. We do the gluten free, casein free, soy free diet and it helped but was not fully healing my children. I have tried almost everything out there. NO matter how many immune boosting things I tried, my kid were continuously sick. Since starting this protocol over two months ago, not one child has been sick with a cold or anything. I know it is summer but this is still remarkable for us.
I feel this is MUCH safer than antibiotics. If you do more reading on this, you will see this. How do you know the risk of MMS is higher than antibiotics? Just because antibiotics are approved by FDA does not mean they don't have side effects and risks.
FDA also says that colloidal silver is not safe. I think I recall you have used that? We all know the deal with the FDA by this point. I did see the FDA warning and I did not take it lightly but I trust my 3 doctors over FDA. I actually worked for FDA for several years so I know something about it.
tickbattler
Posted by tick battler (Member # 21113) on :
Tick battler, I like how you write. I am familiar with Kari Riveria. I am also familiar with how highly contentious and debated this protocol is in the autism community.
I don't talk about my daughter much here, this is MY place, lol. This forum is too public. I've written enough in other forums, but lately I've said a bit here to other Moms.
I have spent everything I have, emotionally and financially trying to heal this incredibly beautiful girl. Years, hours, you have no idea how I've studied.
I could write a book. I've had the fortune to work with the 'best'
She is in a regular classroom, no help needed, gorgeous report card, and eats from all the food groups w/ digestive enzymes.
Do we still have issues? Yes. Do I know what the future holds? No. Am I assured of her future as I am with my other 2 neurotypical children? No.
Currently she is in bed with Impetigo, back on antibiotics.
It is very, very tender, the pain and strife of the parents with damaged health children - as you know. Desperate, feeling betrayed. 2 steps forward, 1 step back.
We must be very careful recommending treatments. These are children. That's the only reason I am writing on this thread.
Gigi's posts about MMS, didn't phase me one bit. But, I know, deeply, how vulnerable we Moms are in this area. Your heading is 'For those with sick kids....'
This protocol has not been vetted. The Wikipedia CITED information on MMS is alarming. This is the other side. I don't have real life experience with it to state my own judgement.
So I will sign off by saying to anyone considering this for a young sick child, please, read ALL sides. Have professional medical help. Then make a decision.
Posted by evakula (Member # 29042) on :
tick battler, Keep up the good work! You know from your own experience what works for you. I would think that anyone would want to try what works. I have ordered the product to make the CDS. It don't look that complicated to make. They say it is easer on your stomach and works deeper in to the tissue. As for the FDA the way I see it, if they tell you to not use or ban something it is usually because it works! And the Drug companies want it off the market. The last thing a Drug Co. wants is for any one to get well. They only make money off sick people not well ones. If FDA was doing there job they would ban most of the drugs instead of padding their pockets with the drug companies money! Keep the good information coming some of us appreciate it.
Posted by Lymetoo (Member # 743) on :
Thanks, Juli!! I was wondering about it!
tick battler.. I'm glad your kids are better!
Posted by lax mom (Member # 38743) on :
quote:Originally posted by tick battler: laxmom, FDA also says that colloidal silver is not safe. I think I recall you have used that? We all know the deal with the FDA by this point. I did see the FDA warning and I did not take it lightly but I trust my 3 doctors over FDA. I actually worked for FDA for several years so I know something about it.
tickbattler
Yes tickbattler. I used silver, but would never give it to my son. Same with Asea. I tried it (YUCK), but would never give it to him. Like I said, I am willing to take more risks with my own treatment, up to a point. I am much more conservative with my son's treatment.
I am glad you found something that works for you. In my son's case, I found other methods that are working right now.
Who knows what will happen in the future.
I appreciate the respectful debate. That is what was lacking in previous MMS debates with others.
Posted by tick battler (Member # 21113) on :
Surprise, I certainly understand what you are saying. But we are adults on this forum who are here to learn about protocols and make determinations on how to proceed with ourselves and our children. I am posting so that BOTH sides are heard on this debate.
As you can see from many of the responses, only one side is known to most. Many probably have not even heard of this protocol. If I were new to this forum, I would want to know about and to investigate EVERY protocol before I decided how to proceed to try to heal my family and myself. Even the new ones.
Unfortunately when I joined years ago, there were mostly just discussions of antibiotic treatments. Very little information was available on alternative treatments. Nothing on rife or successful herbal protocols. Dr. Zhang was one but not many people were fully healing on his protocol. There was some talk of Cowden's protocol but no one spoke of healing on it. Based on this, I was not convinced that herbs were strong enough to heal us. There were very, very few success stories with alternative protocols, at least on this site and the other forums I visited.
My only regret in this journey so far is putting my kids on long term antibiotics as our first course of action. Like you, we also have been fortunate to go the "best" and have spent all of our savings doing so. We have found that the "best" is not always the best. Sometimes, but not always.
I agree that the Wikipedia information is frightening. That is why I consulted with so many doctors before moving forward. Just because it is on Wikipedia, does not mean it is true.
I am so sorry to hear your daughter is sick with impetigo. We were dealing with that this past winter when my kids were so ill. We have been on the antibiotic rollercoaster for years. I wanted to get off and I am hoping we are moving to a new place. Time will tell. So far so good.
I am excited for our future because I have read on the facebook group about kids with PANDAS/PANS, mitochondrial issues, lyme/coinfections, autoimmune issues, autism, etc., who have been able to wean off antibiotics and antifungals and antivirals while on Kerri's protocol and have continued to improve. I now have hope that my childrens' immune systems can completely heal and they can live normal, healthy lives.
One thought...there are many moms who have joined this facebook group to read posts and watch to see if others with similar issues are healing. Many admit that they have been on the site watching for a year before starting their child on the protocol.
That is why I am posting...to give parents like us the opportunity to learn about a protocol which just might heal our kids once and for all. It is new and unapproved but these are not dumb people who have created it and who have adopted it. I trust Dr. K., an MD and PHD who specializes in lyme and autism. He and his followers have adopted it. That was a good start for me.
Best, tickbattler
[ 08-02-2013, 05:06 PM: Message edited by: tick battler ]
Posted by surprise (Member # 34987) on :
Thank you tick battler, that was nicely written and conveyed.
Fortunately, my daughter has been off full lyme/ pandas type antibiotics for a good while- last September, I think, maybe 2 Z-packs in-between then and today (started Keflex this morning for the new Impetigo)
Ironically, she was barely on any as a baby/young toddler. Everyone poo-poo'd me off on her mysterious fevers of 'no origin'
We've been down a lot of roads- the very best homeopathic - whose remedies set my daughter back into a regression,
chelation with Andy Cutler protocol guided by a DAN! Dr., 2 high dose IVIG's for PANS, herbal protocols, special diets, gut healing, Occupational Therapy for Senory Processing,
and finally 2 different LLMD's, mold protocols, viral protocols, parasite treatments, bartonella, lyme, more I can't remember.
Guess I'm at a place of acceptance at this point, with an emphasis on basic good health. And, Mom finally fell apart, and had to get well, too. And the money did run out.
I do realize the MMS protocol is the least expensive of them all, just my luck ;-/
Acceptance isn't giving up. It is accepting and loving the child in front of you- who has blossomed and grown, but may always have some internal struggles in life.
And really, for some of us, ALL the way is something that just may never come- some mental illness, contrary to the bio-medical train of thought, simply can't be healed psychically away. I know I've done everything I can at this point, to the best of my ability.
Perhaps when congenital situations are present, or the vaccine damage occurs in that infant year, all the brain patterns may not connect right, the autoimmune system set on fire only to be tamped down in intervals.
I'm not on FB- online too much as it is, but, it is curious, I have to admit. And, never say never, since we really never know,
'Surprise' is not my handle by accident ;-). My mind is more open with some things I've read today. But such a delicate flower, my one, and, I am not her only parent who makes these decisions. For now, we rest with her.
I appreciate your conversation with me--- thanks again.
Posted by tick battler (Member # 21113) on :
Surprise - Your journey sounds much like mine. And your daughter sounds much like mine with her symptoms and personality. We had a tonsillectomy scheduled for her at the end of August and we are now cancelling it in order to see if the new protocol will heal her without surgery.
Feel free to contact me anytime if you want to know how my children are progressing.
Here is another article you might find interesting by another MD who has connected parasites to general illness and autistic symptoms and is supporting the protocol:
[ 08-02-2013, 12:51 PM: Message edited by: tick battler ]
Posted by landerss (Member # 17732) on :
Tick battler, I've had a great experience so far with MMS, as well. I am thrilled to hear that it's helping your kids!! You've had such a long battle, and it's exciting to hear of the progress you're making. I know that we see the same Philly-area Dr. K-trained practitioner (who is wonderful!)...
Please, keep us posted, okay?
Posted by mlg (Member # 35383) on :
Tick Battler,
I am so happy for you. We have to be our childrens advocates and if we see something is not working try other ideas from our doctors. Not only that I knew that anti-parasitics and colloidal silver made my kids way better. I couldn't figure out if it was parasitic, bacteria, viral. After having my daughter hospitalized twice for RSV and the doctor's just shrugging their shoulders. I decided to try colloidal silver and anti-parasitic herbs. My kids were constantly sick have GI doctor and ENT. Anti-parasitics and colloidal silver made a difference. My kids tested positive for unknown parasite through metametrics and I knew my gut was right. Even my mainstream pediatric GI doctor has given my kids flagyl strong doses 3 x a day due to their initial symptoms. And it was like night and day. Having gone through the hell I've been through I wanted to spare them all the pain and severe sickness. If I had not been through the hell I would not had even tried flagyl on my kids. One of my children was 9 months when he was first given flagyl and his pediatric GI doctor said some children thrive after strong anti-parasitic regiment. (Flagyl sever stomach problems - diarhea, vomiting sleeping problems) He has only gotten flagyl one other time and he is now 7. I have tried herbal and other stuff. My LLMD said the same thing about MMS that is doesn't affect the GI flora negatively.
Posted by tick battler (Member # 21113) on :
evakula - thanks for your support! I agree with you about the drug companies...this product is something that could really put a dent in their profits. It's basically an antibiotic, antiviral, antifungal and antiparasitic all in one that only targets the bad stuff and leaves the good bacteria behind. Hmmmmm... I have yet to see a product that can compete with that!
landerss...thanks for the input on your experience with MMS - so wonderful to hear. I am on it too and improving...just not as fast as my kids!
mlg- thanks for your support. I'm so glad to hear your kids are doing well. It is interesting that you also tied their issues to parasites. I like colloidal silver too and have used it. And I love hearing that your LLMD agrees that MMS doesn't affect the gut flora negatively! It's always nice to get confirmation.
Best, tickbattler
Posted by tick battler (Member # 21113) on :
Bumping for any new member with sick kids. My kids are still doing great on this protocol....just had their first sleepover with their cousins last night...no issues at all!
tickbattler
Posted by tick battler (Member # 21113) on :
Just to clarify for those who have not looked deeper into this issue....chlorine dioxide (MMS) is approved by FDA for washing food....clearly it is considered safe to ingest by them.
Posted by surprise (Member # 34987) on :
I think that depends where you are looking at the FDA website:
Miracle Mineral Solution (MMS): Product as consumed produces a potent bleach
[Posted 07/30/2010]
AUDIENCE: Consumers, Emergency Medicine
ISSUE: FDA warned consumers not to consume or use Miracle Mineral Solution, an oral liquid solution also known as "Miracle Mineral Supplement" or "MMS." The product, when used as directed, produces an industrial bleach that can cause serious harm to health.
The product instructs consumers to mix the 28 percent sodium chlorite solution with an acid such as citrus juice. This mixture produces chlorine dioxide, a potent bleach used for stripping textiles and industrial water treatment. High oral doses of this bleach, such as those recommended in the labeling, can cause nausea, vomiting, diarrhea, and symptoms of severe dehydration.
BACKGROUND: MMS is distributed on Internet sites and online auctions by multiple independent distributors. MMS claims to treat multiple unrelated diseases, including HIV, hepatitis, the H1N1 flu virus, common colds, acne, cancer, and other conditions.
The FDA is not aware of any research that MMS is effective in treating any of these conditions. MMS also poses a significant health risk to consumers who may choose to use this product for self-treatment instead of seeking FDA-approved treatments for these conditions.
RECOMMENDATIONS: Consumers who have MMS should stop using it immediately and throw it away. The FDA advises consumers who have experienced any negative side effects from MMS to consult a health care professional as soon as possible.
Healthcare professionals and patients are encouraged to report adverse events or side effects related to the use of this product to the FDA's MedWatch Safety Information and Adverse Event Reporting Program:
Online: www.fda.gov/MedWatch/report.htm Phone: 1-800-332-1088 Mail: return the postage-paid FDA form 3500, which may be downloaded from the MedWatch "Download Forms" page, to address on the pre-addressed form Fax: 1-800-FDA-0178
** I'm sorry mlg, again, adults, should and can be able to do whatever treatments they want to themselves. But admineresting these chlorine enemas daily to neurologically impaired children....
There are a few MMS proponents who are plaguing some of the biomedical autism boards, and are relentless in their promotion.
Even the most open minded bio-med parents are claiming this child abuse. It's really blowing up.
I agree parasites are a major issue, but there are so many other effective, deemed safer, treatments.
[ 08-18-2013, 12:48 PM: Message edited by: surprise ]
Posted by tick battler (Member # 21113) on :
FDA is trying to play both sides of the fence. MMS is "bad" but CD is fine.
FDA loves Chlorine dioxide (CD). They let us put it on our food supply before we get it to kill pathogens that could kill us. The FDA has issued many patents for CD in products. CD is used in municipal waters around the world. The FDA argument is specious.
There is NOTHING to date that is HEALING autistic kids the way that CD is. Kerri Rivera's protocol is for CD, not MMS. That is what we take. Research it yourself and you will see that this is true. Just give it time. Yes, it is blowing up...just wait until the next annual autism conference...there will be standing room only for Kerri Rivera and Andreas Kalcker. The group is growing daily - we get about 20 new parents on the facebook site daily. Mothers want to heal their sick and autistic children and are doing it, despite FDA and mainstream medicine, who say these kids cannot be healed.
To me, child abuse is doing nothing for a child who is sick. That is the only abuse going on. My children have NEVER been more joyful.
As Albert Einstein once said, "Condemnation before investigation is the height of ignorance."
Posted by surprise (Member # 34987) on :
Tick battler: My understanding is that the protocol consists of:
100% compliance in gluten and dairy free diet, no sugar, theralac probiotic, and then rotating
Couldn't ALL OF THAT be getting the results, parasites out? Why does it have to be the MMS?
Posted by surprise (Member # 34987) on :
Oops, I accidentally called you mlg in my previous post :-/
Tired! Sorry mlg!
Posted by 2roads (Member # 4409) on :
What is all that surprise?
Are those ingredients in a product?
confused
Posted by surprise (Member # 34987) on :
No, they are separate prescription anti parasite medications, administered daily,
along with the separate well known herbs used for expelling parasites, and DE, and castor oil to flush out-
I also read the diet part must be followed 100%, and sometimes fasting?
Getting this from Andreas Kalcker, who helped develop the protocol with Ms. Riveria.
Anyway, not trying to start a debate, but if the gut healing diet, along with heavy pharmacutical anti- parasite drugs and herbs-
couldn't that be what's producing results?
Posted by tick battler (Member # 21113) on :
There are two protocols. First the baby bottle protocol with just oral CD. Then, the parasite protocol which you described in part above.
Actually most of us are just using the first 5 ingredients you mentioned above along with CD. The parasite protocol is done monthly around the full moon (that makes us really sound crazy, doesn't it?). But if you research more you will see that the full moon thing is real...even mosquitoes act differently on the full moon.
You are right that those things in the parasite protocol do kill worms. That's why it's called the parasite protocol. BUT even those on oral CD are seeing worms coming out, even BEFORE starting the parasite protocol.
CD is not used as the primary parasite killer but it does kill some of them. Many parents post photos of the evidence they find after just using a few drops of the CD ORALLY.
The effectiveness of CD on parasites/bacteria/fungus/viruses/inflammation has been proven by the fact that a group of autistic kids in Venezuela did heal (lost autism diagnosis) on the oral CD protocol alone before the parasite protocol was added.
If these things you listed above cured autism and PANDAS alone, without the CD, many kids would have been cured and we would all be just taking those things. My kids have taken all of these things (mebendazole, pyrantal, earth, neem) in the past and the improvements paled in comparison to this protocol.
Kerri explains in her book why diet is such a huge factor for autistic kids. Basically, because they have leaky gut, things like gluten get into the bloodstream and actually act as a narcotic drug to them. Kerri states that she has not had any recoveries from those who did not do the diet along with the protocol. My kids were already on the diet when we started so that part was easy. There is no fasting involved.
Posted by tick battler (Member # 21113) on :
bumping for new members! We are all still making improvements on this protocol!
tickbattler
Posted by tick battler (Member # 21113) on :
bumping
Posted by jwall (Member # 22999) on :
I'm sorry, I haven't gone back and read through the entire thread, but what is the difference between CD and MMS? Is it essentially the same thing? I need to go back and read as I'm just now looking into this for myself and my children.
Posted by tick battler (Member # 21113) on :
jwall - it is the same thing...just now referred to as CD when discussing the Kerri Rivera and Andreas Kalcker protocols. Feel free to pm me if you need any info. You might start with getting Kerri Rivera's book. It discusses the protocols in depth. And read the links I posted above.
Also, the facebook group CDAutism is very active and growing by about 20 new members per day...you will get a good feel for how successful this protocol is by reading what other parents are saying. This is not just for autistic kids!
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by surprise:
Tick battler: My understanding is that the protocol consists of:
100% compliance in gluten and dairy free diet, no sugar, theralac probiotic, and then rotating
Couldn't ALL OF THAT be getting the results, parasites out? Why does it have to be the MMS?
- - Those are HUGE... I would say the MMS is a minor part of the healing if they are doing all of that. I know several who are using the Body Ecology Diet to heal their Autistic children.
NO MMS at all. The BED diet involves MUCH of the above.
Posted by tick battler (Member # 21113) on :
Lymetoo - I don't get it...you believe in rife therapy but not this?
I have been on this board for a very long time and have more experience than most here. I have been to many of the best LLMD's and have done nothing but research to try to heal my family for the past 7 years. I have made great progress but could not get them fully healed...because now I see... it was parasites as the root cause all along. I have found something that has helped my children get better than they have ever been...my twin boys were on the spectrum....one is no longer due to this protocol. The other is not far behind. My daughter's PANDAS is gone.
What is your point in repeating this post? First, this post by surprise is NOT the correct protocol. Secondly, Kerri Rivera's first group of autistic children that she healed was done so WITH ONLY CHLORINE DIOXIDE. Yes, nothing else. The Kalcker parasite protocol with the Vermox was not used, and a group of ASD children healed in Venezuela. She did find that it works even better and faster when combining her baby bottle protocol with the Kalcker parasite protocol, however. So that is what is done now.
To say that the MMS or CD is a minor part of the protocol is ABSURD. CD is the most important part of the protocol. Kids start passing worms just on the oral CD alone...NOTHING ELSE. My son, who was already on the diet for years, stopped having meltdowns by the 3rd day CD. Most parents notice changes within the first week and often in the first few days. Some within a few doses.
People can do what they want with the information I am giving. I am putting it out there because this is such an important discovery that many don't know about. I can send you emails of the mother of an autistic boy now on the protocol because of me...she is so thankful..her son is getting better.
This is a LIFE CHANGING protocol and for you to try to continuously stifle it is just wrong. I just don't understand it.
tickbattler
Posted by Catgirl (Member # 31149) on :
Tick battler, I have to commend you on your steadfast efforts to help everyone here. You are very kind to keep putting yourself out there. Thank you.
I really want to try this, but I'm still making progress on treating parasites (meds, herbs). This sounds much less expensive though, and I like what you said about getting a better response from MMS. I'm a little concerned about the citric acid though (gives me gerd).
I tried MMS a few years ago after I was bit (didn't know I had lyme and company at the time). I went to the ER for an allergic reaction tied to lyme (didn't know that was my issue though) and the hospital put me on prednesone. Then my husband suggested MMS (he took it on a regular basis). I was so completely overwhelmed with what was happening to my body with lyme and company that I would have tried anything, so I tried one drop.
I'm sure you can imagine that between the pred and MMS, I had a negative reaction. I herxed hard and ended right back in the ER. Unfortunately I didn't even know what a herx was back then. Now I recognize it. If only I had listened to my husband and not the medical community...
I feel really bad that my husband took the brunt of that hospital visit. The nurses thought he was nuts for taking MMS, much less convincing me to try it (they gave him a hard time). Now I know that he was WAY ahead of the game. He was treating parasites ten years ago, and I just laughed. I was such an a--. My mind was closed shut.
I love that the autism community discovered the benefits of MMS. I know a good mom will do anything and everything for her children (like everyone here). They are our most precious commodities, and no mother in her right mind would do something to hurt them. You opened your mind up to help them, and for that I commend you, big time. I think you're brave for trying this, as well as voicing your children's success, and spreading the word.
If people can't tell by now, PARASITES really are key. It was even recognized at last years ILADS conference that parasites are THE number one co infection. It's easy to do the math here.
Please keep bumping this thread up. We all need the reminder. If Gael and a few others hadn't been so steadfast in recommending parasite treatment, I never would have discovered my massive parasite infection. My mind was closed for so long. It took constant reminders from others going through it to help me see that maybe I would feel better once I tried it. I am truly thankful for people like you, Gael, and Gigi.
Remember Schopenhauer:
All truth passes through three stages. First, it is ridiculed. Second, it is violently opposed. Third, it is being accepted as self-evident.
Posted by tick battler (Member # 21113) on :
Catgirl - thank you so much for your post. I read your posts on the parasite thread and am so glad to hear you are getting better!
The good thing about the baby bottle protocol is that you start with 1/8 drop for the first dose...so the possibility of a strong herxheimer reaction is much less.
If you are making progress with what you are doing....keep it up but at least you have the MMS in your bag of tricks in the case you plateau! I think the salt/C is a great choice too and it did help me. I wasn't doing enemas at the time and if I was, I may have noticed even more improvement than I did at the time.
You don't have to use citric acid as the activator...you can also use HCL. Or, the other option is to make CDS, which should not have any of the activators left in the final product. For those with sensitive stomachs, this normally works.
Best, tickbattler
Posted by Catgirl (Member # 31149) on :
Thanks Tick battler, and you're welcome! I am really glad to hear I can do something besides citric acid.
"The good thing about the baby bottle protocol is that you start with 1/8 drop for the first dose...so the possibility of a strong herxheimer reaction is much less." --This I can do. I never knew how to reduce drops before.
2Roads (forgot to mention this), I am so sorry to hear what happened to your precious son. It breaks my heart. I really hope you are not beating yourself up over his reaction. I have been using agrisept L ever since I saw another thread on it. It dug up some hidden babesia that I didn't know I had (instant herx/symptoms). It's definitely killing something (herxing), so I'm plugging along. Now my herx/reaction to it isn't as strong as it was when I first started. Prior to trying it, my babs improvement was slow and steady. I guess that's the way it goes with these things.
I feel like agrisept L and treating for parasites are both helping me knock out my remaining babs. It kind of makes sense since babs is a parasite. Agrisept L is much stronger, even though I'm taking the same dose that I did of the nutri biotic brand.
I don't know what to tell you other than push forward with parasite treatment. My heart goes out to you and your family. Big fat hug!
Posted by tick battler (Member # 21113) on :
Catgirl - glad to hear that Agrisept-L is helping you with babs! It alone is what one of my practitioners uses for babesia and it seems to almost always work for her and her patients - but it can take months.
Posted by Catgirl (Member # 31149) on :
Thanks Tick battler! I plan on staying on it. :)
Posted by Carol in PA (Member # 5338) on :
quote:Originally posted by tick battler: We had a tonsillectomy scheduled for her at the end of August and we are now cancelling it in order to see if the new protocol will heal her without surgery.
How's it going with your daughter's tonsils?
Have you ever tried using far-infrared (880 wavelength) or pulsed magnetic energy for sore throat? I've had good results with both.
Posted by tick battler (Member # 21113) on :
Carol - so far so good with my daughter! She has not been sick at all since May 31st when she started the protocol....until tonight actually - she has a fever! My husband has some kind of flu so I think she caught it. But a 4 month stretch of no sickness is a first for her!
I am very happy that I did not get her tonsils out this summer. I am going to see how the school year goes and hopefully stick with my decision...the CD is really working so far. She has not had a sore throat all summer.
Thanks for the tip on the pulsed magnetic energy. What tool do you use to deliver this? We do have a rife machine that I use but I think that is different.
tickbattler
Posted by Carol in PA (Member # 5338) on :
quote:Originally posted by tick battler:
Thanks for the tip on the pulsed magnetic energy. What tool do you use to deliver this? We do have a rife machine that I use but I think that is different.
I have a SOTA Magnetic Pulser. The magnetic energy adjusts the electrical charges on the cell walls to improve circulation. The cells get more nutrients so the mitochondria work better, and the cells heal.
I first bought the Magnetic Pulser in an attempt to stop the continuous pain in my knee. It worked!
Posted by LisaK (Member # 41384) on :
No one has mentioned how long you are on this - is it forever?
.....and also, I searched for anything bad on Agrisept-L and cannot find anything negative about it anywhere.
Does anyone have more info that would dissuade me from trying it? My kids are 15, 17 and 19- all diagnosed with ADHD and dyslexia - one has had facial tics in the past. 2 have major temper tantrums.
this is very interesting, this post. I appreciate all sides of the opinions. I am a "go with my gut" person. but I need time to think this through, especially since I am compromised from lyme et al right now!
thanks!
Posted by LisaK (Member # 41384) on :
Just looke dup symptoms from the PANDAS site- I have almost all those symptoms!
now what? I see that it has mostly been a chilhood concern, but that some people are questioning the adult onsets
does anyone have info on that??/
I am only on zithro right now since i have not seen a LLMD yet, but I have difinitely seen some improvements, but want to try a easy and cheep parasite cleanse on my and my other 4 family member s since we ALL have symptoms!
Posted by Catgirl (Member # 31149) on :
I hope your family feels better. There are some nasty bugs going around (we just got over one).
I'm so glad you didn't get your daughter's tonsils out either. Parasites love our glands, neck, heart, you name it. They go wherever they want.
As far as PEMF goes, I like that the device Carol uses can focus on whatever needs repair. I would love to get one, but I don't have the money right now. Plus ondamed is helping me with more things. Ondamed actually finds the cells in your body that need repair (the ones you don't actually know or feel something is wrong), and fixes them--reduces inflammation, etc. So it's diagnostic, then it fixes what needs repair. And, a big plus, it also kills parasites.
It is also totally different than rife. It works from your own biofeedback fed into the machine, so you're not guessing, plus it's a slow pulsed energy (not fast). It costs about $85 a session. Either way, PEMF is a wonderful tool for us (really glad Carol brought this up).
Posted by tick battler (Member # 21113) on :
LisaK - the protocol is estimated to be 12 to 18 months, depending on the severity of the infection.
PANDAS is actually parasites mostly, IMO. That is what Kerri Rivera says and that is what I saw with my children. As we clear the parasites, the temper tantrums and ADHD and learning disabilities and many more things gradually go away on this protocol.
A parasite cleanse can help but it is very slow and did not cure PANDAS for us. Maybe it could but I doubt it. Because when you have a huge parasitic infection, the immune system falls apart so the strep and the viruses and the fungal infections and the resulting inflammation skyrocket. The CD is what made the HUGE changes in all of us, because it kills all of these things at once.
And yes, adults can have PANDAS symptoms because the worms don't disappear once you grow up! There are plenty of adults that rage and become bi-polar or depressed and can't focus because of parasites.
The CD costs about $25 for a 2 to 3 month supply. And Kerri's book is about the same cost...that is where I would start.
I saw your pm and will reply soon! tickbattler
Posted by tick battler (Member # 21113) on :
Catgirl - thanks - my daughter is all better today! I am shocked. I had sent a note to school this morning before she woke up saying that she would not be at school because she was sick with a fever. She went to bed with a 102 fever and it was gone this morning. I kept her home in the morning but sent her for the afternoon. She has never recovered this fast...I am still amazed!
Posted by tick battler (Member # 21113) on :
Be sure to read carefully how to do the protocol...you are starting with 1 drop in 8 oz of water! And you only drink 1 oz per hour. So you are starting very slowly....1/8 of a drop for the each dose. There are some important things to learn before you start, including proper activation time (now is 1 minute for the HCL activator...), so I would recommend asking questions on the CDHealth and CD Autsim facebook sites.
tickbattler
Posted by tick battler (Member # 21113) on :
bumping...we are still all improving. My goal is to get rid of my son's IEP by next fall!
tickbattler
Posted by 2roads (Member # 4409) on :
so glad to hear it.
wasworried about you guys.
look on General.
thanks
Posted by kidsgotlyme (Member # 23691) on :
Thank you for sharing Tick Battler.
Posted by Scholzie22 (Member # 42689) on :
Tick Battler,
I tried sending a pm to you but it says your mailbox is full. Please pm when you get a chance.
Posted by tick battler (Member # 21113) on :
Bumping for newcomers! The CD Autism facebook page now has over 3,000 families doing the protocol. It is spreading so fast by word of mouth. 115 kids now healed from autism and others making daily improvements. Dr. K (MD, PHD)has endorsed Kerri's second edition of her book which should be out by the end of January. See his quote on the back cover!!!
My family is still on it and doing great. My husband has finally gotten off sleep meds for the first time in 5 years because of this protocol.
scholzie22 - sorry I don't get her often. Will try to clean out my inbox!!
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