This is topic Starting Tindamax today - teriffied! in forum Medical Questions at LymeNet Flash.

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Posted by prayerworks (Member # 37602) on :
After putting off for four months out of fear I have decided to go for it today. I am terrified. I will start slow - 250mg one time today and 250mg one time tomorrow. Then next week I will up to 250 mg twice each day.

I am terrified. Could use some encouragement.
Posted by Lymetoo (Member # 743) on :
Might even want to start lower than that. I began with slivers of a 250mg pill of flagyl.
Posted by KH111 (Member # 25829) on :
Don't be you will be fine. It is easy to tolerate. We did fine on it, no reactions and we were on it for 4 months.
Posted by desertwind (Member # 25256) on :
What is your greatest fear? Remember that you are in the drivers seat and if things get too uncomfortable you can always reduce or stop.
Posted by gmb (Member # 23562) on :
Some reaction may be expected. It is a powerfull drug, but necessary to progress in treatment.

Within an hour after my first dose of Tini I had some abdomanal pain and lower GI issues. The sx passed quickly and reduced with each additional dose. I felt like it was from die-off.

good luck

Posted by prayerworks (Member # 37602) on :
My greatest fears are an allergic reaction and a major herx that would shut me down like closing up airway or something.

I know, I know my thoughts are a bit out there. I was never like this to this extreme, but since I became sick it's like I am paranoid and expecting the worse with meds and food.

It was the same thing with Rifampin and Azithromcyin and I am tolerating those just fine.

For some reason though the fear is really heightened with Tindamax so much so that I have put it off for four months by my LLMD says I really need to push forward.

I have taken so many meds in my life before and never really questioned taking them - I just took it and never gave it a second thought.

But since Lyme it's like my mind is all paranoid about an allergic attack.
Posted by prayerworks (Member # 37602) on :
I did it! I started Tindamax today - 1/2 of a 500 mg tablet and no allergic reaction praise the name of Jesus!

Now to see how I tolerate it herx wise. I will keep you posted.

Again, thank you all so much for giving me encouragement. Blessings!
Posted by Abxnomore (Member # 18936) on :
It's much easier to handle than Flagyl. I took 500mg three times a day, didn't start off slowly and didn't have any big issues.
Posted by norcal (Member # 29829) on :
Good for you prayerworks
Posted by beaches (Member # 38251) on :
Yay! So happy you started it! I too had a lot of reservations about this med. We started it full throttle years ago and I learned from experience that some people need to start slow. Sometimes slow and steady wins the race!

We recently began tindamax again. Started off with a quarter of a tablet...125mg and slowly titrated up to 500mg BID.

My only issue now is how the heck are we supposed to maintain that dose two weeks on/two weeks off.

Drink a lot of lemon water!
Posted by BoxerMom (Member # 25251) on :
I love Tini. For me, it's a much easier med than Flagyl.

On it now at 500mg 2x/day. No side effects or awful herxing.

Good luck! If you did well on Mepron and Rifampin, I think you will handle Tini just fine.
Posted by stephfino (Member # 23599) on :
My doc wants to put me back on Tindamax too.I haven't been on it in three years. I was scared too, but it really wasn't bad for me at all.

I only took a 1/2 dose the first couple of days..but I do this with each new med. Tindamax did give me some herx reactions, but nothing I couldn't handle. I felt good about the herx, knowing it was something dying....

What else will you be taking with it?

What I'm scared about is stopping my beloved Rifampin. I have been on it 1 1/2 years. It was the only thing that helped stopped my twitching muscles. So I have no twitching now but joint pains are back full force.

Anyone taken Rifampin and tindamax together?
Posted by BoxerMom (Member # 25251) on :
There are no specific contraindications to Tini and Rifampin.

I also love Rifampin. You've given me an idea for my next combo.
Posted by Lymetoo (Member # 743) on :
Originally posted by desertwind:

Remember that you are in the drivers seat and if things get too uncomfortable you can always reduce or stop.

Good job, prayerworks!
Posted by Lymedin2010 (Member # 34322) on :
For me, it was like taking a sugar pill. No difference at all. Neither did it fix or seem to improve anything.

Flagyl on the other hand also felt like taking sugar pills, but after 4 months on it I started to feel slight improvement. Unfortunately, both times I went on it, I was then taken off.

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