LymeNet Flash: Perfect Storm

This is topic Perfect Storm in forum Medical Questions at LymeNet Flash.

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Posted by lyme in Putnam (Member # 11561) on :

can anyone tell me how to survive sane? Mthfr, Menopause and Bicillin IM. On psych meds, wrong but from what theyve seen and I know I need to survive, I m doing supplements also. Feel like schiz, realtiy is twisted but had some clarity 3x yesterday. Just restarted IM bacillin today after a week off. Im just on my fourth shot. Doing outpatient in a group to get coping skills, but my brain is twisted wrong thinking not like me. Big family wedding tomorrow, I feel like I went off. I have hyponsatremia doc yesterday said, after another said i don't . On fluid restriction 32 oz a day, hard to detox. Sorry to go on with my stuff, we all have problems and I'm so sorry for each one of you going through this. Appt with Dr. H. next week, seeing his group for a while. I get clarity and its like a tease cause I see how simple life is when you're ok and Im so not. What am I doing wrong???

Posted by GretaM (Member # 40917) on :

Lyme in Putnam-it sounds like a real rough patch! Don't give up! I'm glad you've got some groups for some support!

I'm thinking of you, and wishing you well.

I really like your signature, a quote from an Imagine Dragons song.

Best wishes
Greta

Posted by Lymetoo (Member # 743) on :

Hope you are feeling better today!

[group hug]

Posted by map1131 (Member # 2022) on :

lyme in Putnam, big family wedding means loads of stress, yes some fun and happiness. But all in all the event is going to be hard for you.

Please pamper yourself and know it's going to be very rough for you coming out of this big event.

Take care and give your body permission to rest, rest and rest.

Pam

Posted by derk diggler (Member # 31903) on :

man, youve been fryed alot longer than me, and im still extremely messed up neuro wise, but youve always had kind words to offer me, and i thank you for that, have you tried any meds that cross the blood brain barrier, if so did they help at all, i hope you get clarity soon, living in the land of oz sucks, theres nothing i can say that helps this neuro bull****, and we no that, so just keep on keeping on, hope you feel better

Posted by bigstan (Member # 11699) on :

Hi LIP, I know the feeling I've been dealing with this daily since 2006.

If you haven't tried it get the over the counter Lithium Orotate supplement. It's natural and helps protect the brain against neurotoxins which you surely have.

This is not like the prescribed lithium, just a low dose 5mg dosage. It's cheap.

http://www.youtube.com/watch?v=sR5QegnoKKo

http://www.swansonvitamins.com/q?kw=lithium+orotate

Posted by Lymedin2010 (Member # 34322) on :

I see Dr. H too & got the Bacillin shots as well. It was the only thing that mitigated my pain & growing symptoms, when NOTHING else worked.

That is Dr. H's magic bullet, unfortunately the bacteria adapt very easily & it was back to Lyme lands after the shots.

From what I can tell the bacteria nowadays are so friggin resistant, from the years of patient treatment and animal ABX usage.

Most people that had Lyme in the past are doing fine after treatment (15-20 years ago).

The best non ABX aid that I experienced for neuro, fibro, muscle tightness, & twitches is Klonopin.

Caution needs to be taken since it is addictive to some. Not to me, I can easily go off, but then I have to live a life of more pain and suffering.