This is topic I'm a zombie when I wake up and wired when I need to go to sleep in forum Medical Questions at LymeNet Flash.

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Posted by Judie (Member # 38323) on :
What's going on with me?

It's 3am and I'm wired. I feel totally caffeinated.

It's definitely NOT diet (I avoid caffeine, sugar and all the no nos).

When I get up (say 11am or noon), it takes me over an hour to get up (and I mean just sit up from my bed), I'm so dead to the world. It takes me another hour or so to muster the energy to go the kitchen to take supplements and eat breakfast. I can barely speak.

When evening comes, I'm like a vampire. I get wired. Now I can't sleep.

I'm making a point of doing some light exercise in the middle of the day too.

What's happening to me? Am I about to grow fangs and start flying around at night?
Posted by MannaMe (Member # 33330) on :

Most likely your cortisol levels are out of whack.

I'd do the saliva test to check your levels over a 24 hour period.

Then start adrenal support.
Posted by Abxnomore (Member # 18936) on :
Yes, those are classic adrenal symptoms.
Posted by lax mom (Member # 38743) on :
I have the same problem!

I am practically comatose in the AM. When I'm awake, my POTS symptoms are worse and everything. I cannot even hold my body upright. I cannot function at all.

Then by around 10pm, I feel ok. I'm even able to do some laundry and even sweep the kitchen like a normal human being.

Then of course, I have trouble getting to sleep.

It's sooo weird.

My cortisol levels are high all day and night. So, I don't know if it's adrenals in my case.
Posted by lymeinhell (Member # 4622) on :
That's adrenals for sure.

Holy Basil might help - balances cortisol levels.
Posted by MannaMe (Member # 33330) on :
My husband uses Dr. James Wilson's adrenal support supplements.
Posted by CD57 (Member # 11749) on :
Adrenals. You need Cortef or adrenal supps (the latter did not work for me at all) and possibly Seriphos in the PM to get to sleep. Try drinking lots of salt water too.

Just reading Dr H new book. For POTS he uses Florinef and sometimes Catapres.
Posted by Judie (Member # 38323) on :
Lax mom - That's interesting about POTS. I've heard it mentioned here, but don't know much about it.

I did have one doc do a tilt test with me and thought my results were odd, but never elaborated.

I've had my cortisol checked awhile back. The doc was convinced it was this too and it's normal.

I already take adrenal supplements just in case.

I can't take ANYTHING with cortisone/steroids (it caused me permanent eye damage).

I can't take lots of salt, I have high blood pressure and it causes bad, painful edema in my legs.
Posted by lpkayak (Member # 5230) on :
Judie. I dont know what to do for sleep problem but u really should look into pink himylan salt-it might cure your BP
Posted by Judie (Member # 38323) on :
My blood pressure is under control with herbs. I just shouldn't do anything else to mess with it or it throws it for a loop.

Already looked into that Himalayan Salt and went down that road. My body just doesn't agree with salt, even epson salt.
Posted by TerryK (Member # 8552) on :
Judie - you need to have cortisol checked in the am and then again in the pm on the same day. Your doctor can order this from a regular lab or from a specialty lab. This will tell you if your cortisol is high when it should be low and low when it should be high.

Seriphos has helped me with this a lot.

Posted by Judie (Member # 38323) on :
I'm already taking Phosphatidylserin (it's just part of the general protocol handout my doc gives out for methylation). I haven't noticed anything and I've been taking it a month.

I've been taking pantethanic acid and pantethine for 2 months. No change....

It sounds like the two treatments for cortisol is what I'm already doing or cortef.

Are there any others?

I already tested cortisol and it was normal awhile back.
Posted by TerryK (Member # 8552) on :

This from the manufacturer explaining it

I can't vouch for this source but here is one explanation of the differences.
Posted by n.northernlights (Member # 17934) on :
could be the fatigue connected to celiac, and it may take several months completely gluten free till it goes away one day.
Note that people with lyme disease are more or less gluten sensitive.
Posted by Frank-incense (Member # 42792) on :
Amazing, I feel exactly like this, and I have for years. It has caused some major problems with school and now with work. I need to get my adrenals checked.
Posted by Judie (Member # 38323) on :
I don't have celiac. My diet is fine. It's definitely not diet. I've been on a healthy diet for over 10 years. Did rotation diets and have been tested up the yinyang for celiac.

I did get reinfected in late August this year. Since then, all kinds of things are wacky.

It's actually new for me to have ANY energy even if it's at an odd time.

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