Which of the infections can cause ALS like symptoms ?
Lyme of course since it likes the nervous system.
In Buhner's new book he mentions a couple Mycoplasma species being linked to ALS.
But can Babesia or Bartonella ?
Any others including parasites and viruses ?
Thank you !
Posted by lpkayak (Member # 5230) on :
you might search on here-others have talked about it before
Posted by LSG Scott (Member # 21624) on :
it seems als symptoms can be from lyme and babs clindimycin + flagil seems to work the best on it
Posted by Mathias (Member # 5298) on :
Mycoplasma fermentans can cause ALS symptoms. I had it in my CNS and was diagnosed after a spinal tap. I was 1 limb away from an ALS diagnosis. I even had twitching in my tongue. Fortunately I found an LLMD who treated me with the right abx. It's been a long road to recovery with many setbacks.
Posted by nefferdun (Member # 20157) on :
Protomxzoa and Ralstonia.
Dr. F said 6 out of 6 patients had PR and 5 out of 6 had Ralstonia.
Babesia also causes it. In the book Cure Unknown, Pam W. tells of a doctor diagnosed with ALS. His friends arranged a last hurray photo safari to Africa for him. He noticed his energy improved while on the trip. Everyone thought it was the adrenaline of seeing the animals.
It turned out it was the anti-malarial drugs he was taking that was making him better. When he went off the drugs he got worse. His son made the connection and he went back on them and recovered.
He opened a clinic in Colorado to treat ALS patients with lyme. He said his patients needed to be ambulatory or treatment would overwhelm them.
There may be other infections as well. Best to get tested for everything and begin treatment as soon as possible.
Posted by VV (Member # 38828) on :
Nefferdun,
Do you know the name of this clinic in Colorado?
Posted by LSG Scott (Member # 21624) on :
Mom died of ALS. It was horrible. I have many of her symptoms...trembling, speech, swallowing, unbalance, etc. But doc assures me I'm not getting it. He does think there is a genetic link. Mom's niece, my cousin, also died of ALS.
Weird thing is how fast Mom got it. She had follow up surgery for hip replacement and was stammering when she came out of anesthesia and went downhill quickly. My husband said he'd bet anything she had had Lyme for years.
There does seem to be a link. I get better testing, diagnostic care in CA than she had. And we know more now.
I get my blood tested every 3 mos at National Jewish Hospital in Denver. My doc says they are best infectious disease analysts in the US.
Posted by seibertneurolyme (Member # 6416) on :
farraday -- Others may also be interested in my question -- what tests are you having done every 3 months at Nat'l Jewish Hospital in Denver?
vv -- Pretty sure Dr M closed his clinic in Colorado due to health issues. The clinic is apparently still operating under other physicians -- see link provided by LSG SCott.