This is topic nerve biopsy in forum Medical Questions at LymeNet Flash.


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Posted by musicheals (Member # 39509) on :
 
Has any one had to have a nerve biopsy? Having one next week and was wondering what to expect?
 
Posted by kgg (Member # 5867) on :
 
Are they ruling out small fiber neuropathy? Here is an article by LymeMD about peripheral neuropathy. http://lymemd.blogspot.com/2013/04/peripheral-neuropathy-very-common-lyme.html
 
Posted by Keebler (Member # 12673) on :
 
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kgg's blog link there is excellent. Be sure to read all through that as there are other diagnostic techniques that won't need a tissue sample.

Is your LLMD guiding this? Being done by someone THEY suggested? Is there some distinctive reason with a treatment that can only be offered after this is done?

Otherwise, after various invasive tests, I just don't go there anymore. I know what's going on. If they don't believe me, too bad.

I just don't heal very well from these "little" excursions into my body tissue. And they tend to cause more pain. So, I just don't do tissue samples anymore. You don't have to if you think you are on the right path with treatment and it just needs more time.

If caused by lyme / TBD, most likely treatment will help. You've not been at this long enough yet to know if treatment can clear it, though. It could take a while.

Do you have a LLMD? Have other tick borne diseases (TBD) been assessed?

Are you taking enough MAGNESIUM? Fish Oil?

Be sure to avoid ibuprophen as that DECREASES circulation, it constricts blood vessels.

Certain dietary changes, I assume, have been suggested? Avoiding asparatame, etc? Gluten, too. While lyme / TBD can certain cause neuropathy, there are many other factors that can help during treatment. For starters:


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=029690;p=0

Excitotoxins; MSG; Aspartame; & "Natural" Flavors (that are not likely natural at all).


See the MAGNESIUM links here:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.
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Posted by Keebler (Member # 12673) on :
 
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If you go ahead with this procedure, be sure your adrenal support is excellent. And take really good care of yourself.

An infrared healing wand might speed tissue recovery. See site for SOTA LIGHTWORKS and ask for any physical therapist around who has similar machines.
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[ 12-15-2013, 05:08 PM: Message edited by: Keebler ]
 
Posted by Keebler (Member # 12673) on :
 
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THERMOGRAPHY might be a tool that could give them some detail, it's not invasive.


Using Google Advanced Search to keep the term all together, search for: Thermography "small fiber neuropathy"

a couple "hits" suggest this may not yet be mainstream. But you might see who can do this in your area . . . I know there are some doing various things with Thermography already. But it might take some scouting it out.


http://www.news-medical.net/news/20121002/Thermal-imaging-camera-monitors-pain-processing-in-patients-suffering-from-small-fiber-neuropathy.aspx

Thermal Imaging . . . small fiber neuropathy - 2012


http://145.100.36.99/en/research-and-results/research-projects/16/2300156716.html

Beyond pain: assessment and diagnosis of small fiber neuropathy through identification of vasomotion dysfunction

Excerpt:

. . . Ultimately the measurement device will eliminate the more subjective clinical diagnosis and the need for more invasive skin biopsies. The final measurement device system will, preferably, consist of an infrared irradiation perturbation device in conjunction with videothermography and video. . . .
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