This is topic Random symptom out of nowhere in forum Medical Questions at LymeNet Flash.

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Posted by Tbrown2 (Member # 42446) on :
So I was feeling a lot better these past 4 weeks until yesterday I was starting to feel funny and

now today I am feeling pretty crappy again. I have a feeling in my head where it is like my

ears are clogged but they aren't I keep swallowing and popping them to make sure. I have

pressure right behind my ears where my jaw meets my ear. It came out of no where and is causing me

to feel terrible my ears to ring and I don't want to do anything besides sit in bed. Any idea what

this new symptom is or why it happened? Really starting to get pissed off. Only have been sick

since July but every time I make progress and start to feel like myself again something random

happens and it is really discouraging.
Posted by GretaM (Member # 40917) on :
I don't know, TBrown. But just wanted to tell you I feel the same way as you.
[group hug]
Posted by GretaM (Member # 40917) on :
I mean the emotional feeling of being one step forward, one step back.

[group hug]
Posted by Tbrown2 (Member # 42446) on :
Thanks GretaM but it's more like 1 step forward 2 steps back. I felt terrible these last couple of days when. I was feeling so

good for a few weeks now I have that omg what's wrong anxiety. Behind My ears feel swollen so I'm curious if it's my

lymph nodes or something and I have a pain in my lower back left side soo muscles? Or liver ? Going to get a liver enzyme

test today. Also have to buy a thermometer mine conviently decided to break. Ugh feel terrible weak and dizzy no energy.
Posted by gmb (Member # 23562) on :
Do you keep a log book to track day to day symptoms, ABX and supplement protocol changes, full moon cycles, and weather patterns?

It may take awhile to see any patterns, but if you don't have a daily log you will never recall everything.

Posted by Tbrown2 (Member # 42446) on :
Yes but I have only been treating for about 2 months so there are no patterns or consistencies yet
Posted by poppy (Member # 5355) on :
I just posted on another thread about having that exact same symptom, below ear, top part of jaw. Not the other ear symptoms you describe, though. Had them some years ago, not recurred lately. Have had tinnitus for years with lyme, no change with this new thing below ear.

Have no idea what this is, doc says not swollen gland. Have the impression that taking enzymes helps.
Posted by gmb (Member # 23562) on :
Possibly TMJ (Temporomandibular Joint Disorder).
Its common with many lyme patients.

I had it treated by re-aligning my jaw years before my TBD infections. Then I had to have all my teeth re-aligned to match the new jaw position.

Posted by Tbrown2 (Member # 42446) on :
I thought it was a sinus infections so I took phusdafed of however you spell it and I took ceftin and that seemed to help

for a while but then came off ceftin and switched to doxy and it slowly came back. Some days worse than others.
Posted by Keebler (Member # 12673) on :
Very common symptoms, actually. TMJ possible and inner ear (vestibular) symptoms can be from lyme, other TBD &/or certain Rx. Some diet changes can help such as being gluten free, dairy free.

GINGER CAPSULES & MAGNESIUM are the place to begin for some relief. More detail here:;f=1;t=065801

Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS
Posted by wrotek (Member # 5354) on :
Posted by lindadanis (Member # 51204) on :
I get that from time to time. I feel like I have a balloon in my head sometimes going up and down. No one has ever figured it out. I am from Boston also. Do you see Dr. H in Watertown by chance? I hope you can find the answers
Posted by daisys (Member # 11802) on :
Just a thought. Was your thermometer a mercury one? I doubt if they're even available anymore, but I had one break years ago. I had to have chelation for that eventually.

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