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Posted by JD112 (Member # 43247) on :
 
Hi All. I have some questions that have been bugging me and Google not turning up results to clarify.


I would like to know if Lyme can be reversed at all.


Not in the early stages but in the more chronic.
The person I'm asking for is about 12 years in of possibly Lyme. Can this damage be undone?


She relapsed recently mid Jan after a dental extraction and course of antibiotic. Taking LDN as well.


Since relapsed she became immobile and urine has strong smell of days worth urine that sat. UTI tests ect done twice but Negative on both. [confused]


Another person I know went to the clinic to get tick removed from skin, upon removal the person said they felt very faint and dizzy.


They are not afraid of gore like blood ect or anything. Just noted dizziness when the tick was removed, Could this case be a suspect of future Lyme? [confused]


Thank you all so much. I appreciate any and all feedback.
 
Posted by Robin123 (Member # 9197) on :
 
I think we're pretty much in treatment and maintenance once we have chronic Lyme. If we find out the treatments we respond well to, most of us can have a more functional life again. Is your friend seeing a good Lyme doctor?

I don't think feeling faint and dizzy upon tick removal are enough symptoms by themselves to indicate infection. Your friend should be paying attention to how they feel, however, as symptoms can come on after exposure to infections.

Re the recent tick exposure, many think it's a good idea to do some prophylactic antibiotics rather than risk the possibility of a chronic infection. Prophylactic antibiotics for Lyme is something like 200mg doxycycline 2x/day for 6-8 weeks.
 
Posted by TF (Member # 14183) on :
 
I had undiagnosed lyme disease for at least 10 years. Still, once I got to a great lyme doctor, I got rid of it. It is now over 8 1/2 years since I completed my treatment and I am still symptom free.

So, it can be gotten rid of with a good doctor and clean living. I do not smoke or drink. These are things that can weaken the immune system. And, I do weightlifting which strengthens the immune system.

I also have friends who had lyme for many years and they also got rid of it. So did my lyme doctor, and he had had it for years misdiagnosed as fibromyalgia.

Your friend that relapsed needs to get back to a good lyme doctor. She can get well again.

Regarding the other person, dizziness does not occur when the tick is removed. So, I don't know what caused this unless it was fear. This doesn't happen with lyme disease.

That person needs to be on the look-out for lyme symptoms. If you are not familiar with lyme symptoms, look at pages 9-10 of the Burrascano Guidelines found here:

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Not every tick carries lyme disease.

That person can ask for some lyme treatment, but they will be offered inadequate treatment. Only a lyme doctor will offer adequate treatment for a tick bite.
 
Posted by Lymetoo (Member # 743) on :
 
It took me 42 years to find out I had Lyme. I got well in 4 years and I've been well for the past 9 years. There is hope!

PS .. The "internet" can lead you astray when it comes to Lyme disease. Please read HERE:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=088555;p=0
 
Posted by Keebler (Member # 12673) on :
 
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Possible to reach remission? Certainly. Some basic sources:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

What is a LLMD? LL ND? What is ILADS?

WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation for lyme, OTHER tick-borne diseases, and other chronic stealth infections - and all that goes along for the ride.

Medical "models" explained here, as to differences in the ISDA & ILADS models of assessment & treatment - and exactly why it is so very important to know the differences.


http://sonyafightslyme.blogspot.com/2011/03/burrascano-notes-from-march-21st-talk.html

Burrascano - presentation March 21, 2011


http://www.lymepa.org/html/dr__j__burrascano_september_20_0.html

Burrascano's Powerpoint SLIDE presentation 9-20-08

------------
http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

------------
As important as any supplements, sections regarding self-care:

Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.


This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

** Nutritional Supplements in Disseminated Lyme Disease **

J.J. Burrascano, Jr., MD (2008) - Four pages


It's very important to have this book below as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here on the forum.

http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)- by Dr.S

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com


http://www.lymebook.com/insights-lyme-treatment-strasheim-book

INSIGHTS INTO LYME DISEASE TREATMENT

- by Connie Strasheim

This book is based on interviews with 13 Lyme-Literate Health Care Practitioners. Each practitioner is given one chapter in which to share their healing strategies

http://www.lymebook.com/steven-harris

On-line Sample Chapter from the book: Chapter 1


http://tinyurl.com/5crsjv

CURE UNKNOWN: Inside the Lyme Epidemic (2008) - by Pamela Weintraub

This details what an entire family went through. Having this knowledge of their journey will help others to get better, faster treatment.

http://www.cureunknown.com


http://www.amazon.com/s/ref=nb_sb_noss_2/184-1715542-5541137?url=search-alias%3Daps&field-keywords=lyme%2C%20Horowitz

Why Can't I Get Better?: Solving the Mystery of Lyme and Chronic Disease

- by a leading ILADS LLMD - released Nov. 2013

Also look at YouTube for videos of presentations by this author.
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Posted by Keebler (Member # 12673) on :
 
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And for some who don't have access to an ILADS LL doctor -- or for some other reason have to approach treatment from a different angle, there is still hope:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=117755;p=0

Topic: RIFE Machine - Reference LINKS


http://flash.lymenet.org/ubb/ultimatebb.php/topic/2/13964

How to find an ILADS educated LL professional in complementary fields (naturopathic, acupuncture, etc.)

Also includes article and book links by all kinds of LL authors - and information about herbal and nutritional supplements.
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Posted by Keebler (Member # 12673) on :
 
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Re: Dizziness when the tick was removed.

Not sure how long it had been attached but ANY amount of time and illness could already have taken hold and be causing symptoms.

Could be lyme -- but not necessarily due to the tick being removed, just maybe a dizzy "hit" came at the same time, a coincidence.

It could also have hurt and that signal could overwhelm someone with lyme. When any system is overloaded, the balance system / adrenal system could have taken a dip, so to speak.

There could have been some other sensory "hits" at the same time -- someone walking by wearing cologne, a phone ringing, a flicker of light from mini-blinds . . . even the movement of eyes up and down can cause a "hit" to the inner ear system.

Rubbing alcohol that is often used on the skin at doctors' offices makes me dizzy and nearly faint. My liver can't process the chemical smell, it's petroleum based.

Fluorescent lights at the office, too, can trigger dizziness.

Lyme can cause all kinds of dizziness and vertigo, all kinds.

And some of the Rx used to treat lyme can also trigger dizziness. [Liver support is vital to help, though.]

I hope they have an ILADS educated LL doctor for assessment and are sending the labs to a reputable lab such as Igenex.

They also need to be assessed for coinfections.
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Posted by Keebler (Member # 12673) on :
 
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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=065801

Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS
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