This is topic ART Results....My LLMD... I need Advice in forum Medical Questions at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/128533

Posted by xrunnerx2012 (Member # 39306) on :
 
I have been treating since Oct. 2012... first went after Babesia and then started treating Bartonella in July 2013. I am still treating for Bart.


Last year she did the testing.... said I had everything.


Now she does it and says I have minimal tick borne disease activity but a heavy load of fungus in my head (which is what I have thought all along).


I am on Cholestyramine, A-FNG, Silver spray, Minocycyline, and Rifampin along with a few other supplements.


What the heck do I do? My main symptoms are still head pressure, ear pressure, sinus pressure (no congestions) and burning head sensations like water is up my nose.


Should I just go all natural and quit these antibiotics? Should I still keep seeing her? I really don't know what to do and this ART crap is really starting to annoy me. I couldn't help but to hold back a laugh during the testing. Like really? Pulling my leg and then your arm? Come on now. A

nd apparently my body doesn't want any pharmaceutical antifungals and she wouldn't prescribe me any. But sure enough, my body wants the herbals that are for sale in her office.


I am at a loss.

[ 04-11-2014, 12:51 AM: Message edited by: Robin123 ]
 
Posted by xrunnerx2012 (Member # 39306) on :
 
And yes, today I started a anti-candida diet that she put me on as well. Why I was not told to do this by her last year? I do not know. Also last year I asked her about silver spray. She said she had no idea about it and couldn't imagine using it for anything. Now, she is telling me to use it.
 
Posted by GretaM (Member # 40917) on :
 
Argh! I feel your frustration [Frown]

I don't know what to say... I don't know anything about ART.

I would be feeling and thinking the same thing as you though, if I was in your shoes.

Do you belong to a local support group, where others may have seen this same practioner and can bounce some ideas back and forth with you?
[group hug]
 
Posted by xrunnerx2012 (Member # 39306) on :
 
There is one right down the road actually. I have thought about going. I want to believe in the ART I really do but it is just really hard not to laught at her waving a cd over my head and touching my body while touching the supplements.
 
Posted by TF (Member # 14183) on :
 
I stopped recommending this doctor when she started doing this stuff.

She doesn't follow Burrascano anymore.
 
Posted by xrunnerx2012 (Member # 39306) on :
 
I really do not know what to do. I feel like I have improved but now I am stuck going nowhere. Not once has she offered to try anything IV..... I have kept asking to try IV vitamin, glutathione, ozone therapy... she doesn't want to do anything besides these herbal tinctures and pills.
 
Posted by desertwind (Member # 25256) on :
 
Have you tried Diflucan for your systemic candidas? ART also has some effect on candidas and the liposomal form penetrates the CNS pretty well (according to my LLD).

It is a bugger to tolerate but for me had a big role in reducing my head pressure.
 
Posted by xrunnerx2012 (Member # 39306) on :
 
ART as in artemisinin? How do I get the liposom form? What is a good brand?
 
Posted by Robin123 (Member # 9197) on :
 
[QUOTE]Originally posted by xrunnerx2012:
[QB]

And apparently my body doesn't want any pharmaceutical antifungals and she wouldn't prescribe me any. But sure enough, my body wants the herbals that are for sale in her office.

...............................................

I experienced the same phenomenon when a couple of health practitioners did ART on me regarding their products!

Think about it - do you really want to work with somebody who does this?

It's challenging to find out what works for us. It's a process that we go through with a good Lyme doctor.
 
Posted by desertwind (Member # 25256) on :
 
Yes xrunner. I get it from a compounding pharmacy that my llmd uses. I think it comes from Infuserve but will have to check the bottle. Four times stronger then regular ART and certainly killed yeast along w/ babs for me.
 
Posted by TerryK (Member # 8552) on :
 
ART can be a useful tool. Results depend on the skill of the practioner.

I think many of us need the opportunity to use both pharmaceuticals and alternative therapies in order to get this illness under control. I personally would want a doctor who was able and willing to use both as necessary.

Good that you have had some improvement. You might consider discussing your frustrations with your doctor about being stalled and set some very specific goals with timelines. If those goals are not met then maybe consider going somewhere else.

Sorry you are having a frustrating experience.

Terry
 
Posted by Catgirl (Member # 31149) on :
 
I agree with Terry (great advice).

Finding someone who does both ART and abx is difficult, IMO. Finding someone great at ART is difficult too. Lyme docs aren't perfect, but they are doing the best they can, and they are learning along the way as well. That said, I feel they are way more advanced than 99 percent of our medical community.

Head pressure, ear pressure and sinus pressure can be babs/parasites/proto. I would treat for parasites if I were you (hits all of them).
 
Posted by xrunnerx2012 (Member # 39306) on :
 
And thats exactly my point.... according to her and the "ART".... I don't have parasites at all and very little tick borne related activity. Now she is saying its fungus.

She also told me that my body doesn't like the current vitamin D that I am taking, however, it apparently loves the vitamin D she is selling in her office. This is what alarmed me the most.

The head pressure didn't start getting better until I started Rifampin.

After 2 years I still don't exactly know what my main problem is.
 
Posted by glm1111 (Member # 16556) on :
 
Agree with Catgirl. Treating for parasites can also knock out candida since they go hand in hand anyway. Antiparasitic herbs and salt/c is a great combo.

Parasites have been the missing link for many that are chronically ill. Check out the PARASITE WARRIORS SUPPOORT THREAD and google parasite symptoms.

Gael
 
Posted by Catgirl (Member # 31149) on :
 
IMO, everyone has parasites, but it is possible that they were not presenting when she tested you. It's also possible your body doesn't like the vitamin D you are on anymore (I usually have to rotate stuff).

Personally I find alternative practitioners valuable. That said, it's possible that your doc is simply not that good of an ART practitioner.

For the most part, I feel like it is good to trust in our practitioners. They have seen more than we have, and garnered more experience. However, if something doesn't seem right, it's probably not. Follow your gut.
 
Posted by Lymetoo (Member # 743) on :
 
Treat for candida (and possibly parasites) and you will feel MUCH better!

Follow the diet! [Smile]
 
Posted by mlg (Member # 35383) on :
 
Babs/parasites/proto and heparin.
infrared sauna
colonics
juicing
colloidal silver
artemisinin
crypto
 
Posted by Nancy L (Member # 42733) on :
 
When you said ART I thought you meant artemisinin.

I have been abbreviating arte by ART, but you mean something else.

Artemisinin is supposed to kill some Bb forms and also help treat babesia, and it is one of the few over-the-counter drugs that has had some effect for me. (my symptoms mostly brain/CNS)

There is a compounding pharmacy Hopkinton Drugs that makes a homogenized arte compound with a fat (soya I think) that is assimilated with less loss than other stronger arte products. 50mg but is more expensive, about $90.

website for this compounding pharmacy:

https://www.rxandhealth.com/‎

I have been taking arte along with lethicin, flaxseed oil, or fish oil to help assimilate it, but think this compounded version would be best if you can afford it. I think arte is helping.
 
Posted by TF (Member # 14183) on :
 
ART is the acronym for autonomic response testing.
 
Posted by Judie (Member # 38323) on :
 
"I couldn't help but to hold back a laugh during the testing. Like really? Pulling my leg and then your arm?"

Yikes, I did something like that awhile back. Wasted 2 years of my life buying the chiropractors supplements and was worse in the long run (wrong diagnosis it turns out and when I took the supps to an MD who specialized in alternative medicine, he said there wasn't even enough of the ingredient in the capsules to make any difference).

I hope you can get a 2nd opinion (or 3rd or 4th).

My alarm bells go off that you need to buy the supplements sold at the office. Can you get the brand name and buy it online?

Trust your instincts/intuition. A lot of people are out there to take a sick-person's money. Sad but true. They may even believe their own BS.
 
Posted by Dogsandcats (Member # 28544) on :
 
When I had the testing done I laughed- inside- cause it reminded me of when my boys were little and would pump their arms up and down to make "gas" noises.

Oh such delight they received, then when she moved the leg I worried my worst fears would come true.

I brought in my 5 gallon bag- I jest, but it seemed like it-
of supplements and meds to be tested. Most of the stuff I brought, my body " rejected" during the testing.

I didn't go back too many more times. The cost was just too high. I have to admit I wanted to believe, but it was a struggle.
 
Posted by 2roads (Member # 4409) on :
 
That's the problem isn't it.

We want to believe. If we were weren't in this boat we wouldn't give it the time of day, let alone believe. Sorry to say. Maybe that's just me.

I have an appointment with another "legend in her own mind", energy worker. I don't believe she thinks she's swindling. At least she's convinced herself of that, but I'm going basically with the attitude that it's a tarrot (Sp) card reading. A little overpriced entertainment. Wish I had the money.

Decided not to waist my son's time, but will do so myself. Should a miracle occur, then I will take him. Heck, she doesn't even remember I'm on her cancellation list, as she said "why would I be calling you?" When I called back to check. "Uh, well, so you don't swindle my son?...testing the ol' water you know.....ok, I'll take his appointment at the end of the month"........geeeshshsh.

We're off to that fast start.
 
Posted by Catgirl (Member # 31149) on :
 
quote:
Originally posted by Dogsandcats:
When I had the testing done I laughed- inside- cause it reminded me of when my boys were little and would pump their arms up and down to make "gas" noises.

Oh such delight they received, then when she moved the leg I worried my worst fears would come true.


Ha ha!! You gotta love kids! [Smile]

For anyone reading this (this is not specifically for Dogsandcats), what they don't always tell people when they are getting tested is that right at that current moment, it's a yes or a no. So you may not even need the supplement at that point in time, or your body could have adapted to your supplement, so it would be a no.

I did find that some things my ART practitioner tested me for as a "no" were wrong though. It either meant at the time of testing that I didn't need it, or my practitioner just didn't think it would work for me, so it's possible my practitioner was projecting what he or she thought was right or wrong for me.

I muscle tested myself for something that the ART practitioner said was a no, and I still got a yes. So I had another practitioner test me for it and, low and behold, my product tested great. I didn't even tell the second practitioner any part of the story behind it whatsoever.

I have since mastered muscle testing and I'm so glad I took the time to learn it. It took time and practice. I still occasionally have someone test me to make sure I'm not projecting what I want the answer to be. Muscle testing is an awesome tool for anyone who wants to know if their supplements will help them (worth learning).

Also, I still find the ART practitioners have value. There is more to it than muscle testing. Mine found things in me that no one else ever found. I think kineseology is the wave of the future (it has helped me).
 
Posted by Nancy L (Member # 42733) on :
 
Catgirl, where can you learn how to self-test the muscle test for supplements?
 
Posted by MichaelTampa (Member # 24868) on :
 
quote:
Originally posted by Robin123:
[QUOTE]Originally posted by xrunnerx2012:
[QB]
Think about it - do you really want to work with somebody who does this?

A couple alternatives:
- learn to do this type of energy testing for oneself (I think a great idea)
- go only to doctors who just guess
 
Posted by hopeful4 (Member # 8486) on :
 
I think that if you are unsure, uncomfortable, and/or unhappy with some things happening with this doctor, perhaps it's time to get an opinion from another LLMD. Listening to yourself is important.

I do believe that there are some very good ART practitioners out there. However, there are times when many of us can also be helped by prescription meds. Also,there are doctors who integrate the use of RX meds along with supplements, herbs, vitamins, etc.

Best wishes.
 
Posted by Catgirl (Member # 31149) on :
 
Nancy, I learned from you tube videos (google), as well as a few alternative practitioners. There are plenty of other alternative practitioners who do this as well--not necessarily ART practitioners. Also a few kind souls here on lymenet.
 


Powered by UBB.classic™ 6.7.3