This is topic What are the expensive Lyme and coinfection drugs? in forum Medical Questions at LymeNet Flash.


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Posted by Judie (Member # 38323) on :
 
I think it will be helpful when people are shopping for insurance to be able to ask if certain drugs are on the formulary, especially the expensive ones.

For me, these weren't covered this year:

Bicillin ($750-$1000 per month)
Rocephin ($100 per month)

What other drugs have been expensive for you?

I hear Rifampin is expensive, but I've never had to pay for it out of pocket.
 
Posted by randibear (Member # 11290) on :
 
hmmm, I know its not lyme related but my sister has severe rheumatoid arthritis. she's on iv and some others. her iv drug is 4 yes 4 grand a month and her insurance will only pay a small amount on the orecia and others.

I don't see how she makes it.
 
Posted by surprise (Member # 34987) on :
 
Alinia can be quite pricey.
 
Posted by Lymetoo (Member # 743) on :
 
$100 a month for Rocephin?? That is CHEAP!!

Mepron is VERY EXPENSIVE.
 
Posted by Judie (Member # 38323) on :
 
It was generic rocephin. The price has gone down over the past few years.

I got it from the local hospital pharmacy. That was the price for 20 viles.
 
Posted by birdie67 (Member # 35994) on :
 
Mepron
 
Posted by Judie (Member # 38323) on :
 
Randibear - Good lord that's expensive. Any chance she has Lyme too?
 
Posted by GretaM (Member # 40917) on :
 
Mepron, $800 for 21 days at 2 tsp a day.

Generic Rocephin 40 grams total (40 vials) $1680

It just goes on and an. Where does it end?
 
Posted by surprise (Member # 34987) on :
 
I thought they recently came out with generic Mepron?

They recently came out with generic Lunesta (sleeping pill).
 
Posted by randibear (Member # 11290) on :
 
oh my yes, and my other sister also.

but it's the ole denial and who do you think you are routine. plus they see some real quacks.
 
Posted by LisaK (Member # 41384) on :
 
my doxy was about $400 a month. Luckily I had a reduced cost with a medicaid card I got years ago that brought it down a little.
 
Posted by MTMT (Member # 40756) on :
 
Mepron is crazy expensive. I never did ask the price but when I did take it you could see the pharmacy attendants eyes get real big when they looked at it. Every time they said it must be nice to have real good insurance. I head it was between $1500 and $2000 for a months supply.

I just started Bicillin and it is about $80 a shot.

Insurance only left me on the hook for $120 a prescription.

I am sure there are many others but these are the two I have had experience with.
 
Posted by Judie (Member # 38323) on :
 
MTMT - I want your insurance! That sounds great. [Smile]
 
Posted by Judie (Member # 38323) on :
 
I have friends who are getting prescription coverage and want to give them a list, so I'm reviving this topic.

Here's what I have so far:

Alinia
Mepron
Bicillin
Malarone
Doxycycline
Rifampin
 
Posted by steve1906 (Member # 16206) on :
 
Generic Mepron Availability

http://www.drugs.com/availability/generic-mepron.html

Steve
 
Posted by Judie (Member # 38323) on :
 
Generic Mepron (atovaquone) is over $1000 per month in my area. [Frown]

If you check goodrx.com there are coupons, but it's still pricey.
 
Posted by Tincup (Member # 5829) on :
 
Click on the Medicine Link under this "Help For You" section. May be some way to get better prices. Hope so.

https://sites.google.com/site/marylandlyme/help-for-you
 
Posted by Judie (Member # 38323) on :
 
Bumping for those shopping around for insurance since we're coming to the end of the year.
 
Posted by GretaM (Member # 40917) on :
 
Ivermectin.

$145 for 225mg.

From here on out, I will be using the cheaper alternative, if you catch my meaning.
 
Posted by SickSci (Member # 43849) on :
 
Mycobutin (rifabutin) - my insurance covers it for now, but I've noticed the insurance is paying over $1700 for a month supply... and that dosage is about to double.
I'm sure I'll quickly hit insurance caps at that price...

GretaM -
FWIW, I swear the cheaper alternative seemed to actually work better for me. I wonder if the paste is more bioavailable.
 


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