So I've never really dealt with this symptom (or rather the severity of it)... But I can literally spend 5 minutes doing a few squats or push-ups etc and wake up the next day in full body, head to toe, extreme pain.
Sometimes I get it from doing nothing.
The best way to describe it is like constant growing pains (that you had as a kid).
Really wish I could figure this one out. Muscle pain can be unbearable at times and makes it hard to sleep or function etc.
Posted by surprise (Member # 34987) on :
So you don't have any type of consistent exercise program?
This may sound simple, but, if you don't keep at it every other day, instead just doing it very spaced out whenever, it will hurt because you aren't slowly getting your muscles conditioned.
Stretching, enough magnesium intake. Also, the supplement BCAA (3 specific amino acids) help with muscle recovery.
Go very slow. No weights. 2 pound weights. Key is consistent, day in between to recover.
Posted by canefan17 (Member # 22149) on :
Ya. I've lost so much weight that it's a bit hard to want to exercise.
I'm convinced I'm dealing with something that I'm not treating effectively.
Stretching and magnesium certainly help but this pain is insane. I've read babesia or fry bug. Ugh at the idea of it being something else on top of Bartonella/Lyme.
Posted by steve1906 (Member # 16206) on :
I ditto Surprise, you have to say with it, every other day is good.
Example> If you exercise once a week, you'll always be in pain.
Good advise Surprise...
Steve
Posted by canefan17 (Member # 22149) on :
Ya I know where yall are coming from - but I do try to workout 3 times a week and USED to be able to go hit golf balls.
This pain comes even without exercise. And wow it's rough - maybe some of the worst pain I've ever felt.
Posted by steve1906 (Member # 16206) on :
Are you sure you didn't get another tick bite?
Posted by GretaM (Member # 40917) on :
Canefan-for me it is babesia and/or mycoplasma.
Deep bone pain.
Some have found brucella causes this "growing pain" bone pain.
Brucella tests are as bad as the lyme tests.
Posted by Samlyme (Member # 43732) on :
I had an aching muscle pain constantly for years. It felt like I had worked out too hard the day before even though I hadn't done anything.
Prior to this I had been an active person. Gym/regular yoga. When it first started to set in I would think it meant I was out shape and needed to get more exercise.
Eventually I realized that exercising was not what I needed. If I start to feel anything like that now I know that all I can do is rest.
I'd take a Friday off and sleep for three days straight. That helped me more than pushing myself did.
I don't even know if the pain is completely gone or if I'm just used to it. It's definitely much less severe and with rest I think I'm able to manage it.
During the worst of it I doubt any amount of rest would have resolved it but I would say don't needlessly push your self to do exercise while going through that.
I resorted to long walks when I was feeling better. And Yoga. Harder workouts just knock me down these days. I'm still hoping to build back up to being able to do more.
After five years I was only recently diagnosed so adjusting to antibiotics, probiotics and vitamin regimens is my current focus.
There are definitely other ways to practice self care than by working out. If Lyme taught me anything its been some hard lessons in extreme self care.
You could focus heavy on nutrition instead. I did that at my sickest. I went from pizza and sandwich's to all organic homemade meals. It was a time consuming and challenging endeavor in the early stages.
My new LLMD gave me a supplement called Serrapeptase. I thought he had said it was supposed to be a liver detox but after looking it up it seems to be for muscle pain.
I guess I've been a bit less achey while taking it. No dramatic effect which is not surprising given that I've pushed that muscle pain to the back of my mind as much as humanly possible.
Posted by canefan17 (Member # 22149) on :
I also take Serrapeptase and it certainly has helped me over the year (Serretia).
But this is all new to me.
Greta, Funny you mention mycoplasma - I have tested highly positive (I think what my Doctor was was that my #'s were really high indicating an active infection).
That coupled with Bart seems to be my issue. I've just never really had the babesia symptoms (other than I guess this sever muscle pain.. which I'm certain can be a lot of things)
Greta - how did you go after Mycoplasma?
An no, I did not get bit by another tick.
Posted by Kudzuslipper (Member # 31915) on :
Hi cane, I know exactly what your talking about. I describe it as a "headache in my bones" (although I think it was muscular) I used to live with this constantly before treating. This April It came back. I went on zyth and doxy. For 3 days before I herxed.... It was amazing, all my muscle pain melted. I've since dropped the doxy and although not as bad the muscle pain is back. So whatever it is I believe doxy hits it for me. So i think you are right thinking it is "something."
I don't think it's good to exercise if it is causing that much pain. Walk, swim, keep limber... But don't cause yourself pain. We all know the difference between normal muscle pain and over the top pain.
Posted by sunman (Member # 23739) on :
Do you take statin drugs like Vytorin? I have been on Vytorin for almost 10 years and when I exercise I'm sore for 4 days so I don't do much anymore. Well I read where it can cause this and how it was over ratted so I stopped and the pain went away.
"Two of the most troubling potential side effects of Vytorin include extreme muscle pain and muscle disease (a condition called statin-induced myopathy), and serious liver problems."
As Kudzu said it's a different kind of pain. The kind you wanna go to the hospital for to get an IV of muscle relaxants.
I've put up with some really tough muscular symptoms over the years but this takes the cake.
Growing pains on steroids. And my BP increases as a result of the pain. The alarm system is going off and I try to take anti-inflammatories but they only make me worse. Eeek
Posted by Phoiph (Member # 41238) on :
In the Myalgic Encephalitis (ME) or "Chronic Fatigue" literature, it is called "Post Exertional Malaise", and is the result of mitochondrial dysfunction at the cellular level (mitochondria manufacture energy within the cells).
The cells are unable to use oxygen efficiently to produce energy, resulting in increased lactic acid levels in the blood, acidosis in the muscle cells, and build up of byproducts in the tissues surrounding muscle cells...which causes fatigue, inflammation and pain.
For some people with chronic conditions, this reaction can result from very little exertion, and take an extended time to recover from.
I have ATP Fuel which is supposed to be the premier mirochondrial repair formula. But of course I have to take super tiny doses and still get a lot of joint pain from the dose.
It really is crazy how I can't take anything without getting a strong negative reaction in my body.
Only thing I can tolerate (and it helps me greatly) are adaptogens.
Posted by LisaK (Member # 41384) on :
Phoiph, this is interesting.
Canefan, I have been in treatment for almost a year, diagnosed last summer.
I have not had as much pain ever as I have right now. It is constant and achy and like a steamroller mowed me over.
This intensity has started last week after I started a new treatment for blastocystis. I have finished lyme, bart, and babs, as well as strep and some parasites.
my llmd told me this one would be rough, but the fact that I feel the worst physical pain with this one is amazing to me.
I am not sure the explanation, but I will read that article above from Phoiph and see if it makes sense for me.
just thinking about exercise makes me tired and sore
Posted by Ellen101 (Member # 35432) on :
Canefan I think I know exactly what you are talking about. I am unable to exercise as well. But I have also been advised by more than one PT as well as chiros not to push it. If the only exercise I get right now is going to work every day where I do a tremendous amount of walking, pushing people in wheelchairs, bending, lifting etc, doing housework, working out in the yard, taking care of the dog and stuff like that then that's fine. Any direct exercise, targeting specific muscles is too difficult. My current PT does manual PT which is very different than the traditional method. She has given me some stuff to work on at home. But it is very light and at the first sign of discomfort I am to stop. Perhaps you could look into manual PT? My issies are with an inflamed SI joint. The tiniest of things can really piss it off Posted by Phoiph (Member # 41238) on :
I had the same issues, which resolved completely with consistent, daily home mHBOT (with supplemental oxygen). It took time, but I am now back to running again, etc., with normal recovery times.
Here is a great article explaining how mHBOT helps mitochondrial function, with case studies:
Phoiph you do this at home? Can you tell me more about it?
The article you shared on mitochondrial dysfunction was very interesting. I was surprised to see that guaifenesen had helped so many. I happened to have some on hand so tried it out for myself today. I am happy to say I had a great day, amazing how it works.
Posted by Phoiph (Member # 41238) on :
Yes, I recovered from a severe, 8 year long battle with NeuroLyme and coinfections (5 years housebound) with my home chamber.
You may be interested in reading this thread (7 pages):
Another great resource is a book entitled: "The Oxygen Revolution" by Dr. Paul G. Harch. He also has a website: hbot.com. Be sure to check out the before and after SPECT scans...
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