This is topic Injectable methylcobalamin? in forum Medical Questions at LymeNet Flash.


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Posted by VV (Member # 38828) on :
 
I can't find injectable methylcobalamin anywhere and my doc says it's banned by the FDA.

Does anyone know the deal with this?
 
Posted by MichaelTampa (Member # 24868) on :
 
I have had vit B12 injections (along with other vitamins) in the past, done at the doctor's office. That information doesn't sound right.
 
Posted by beaches (Member # 38251) on :
 
It's carried by compounding pharmacies and they'll mail the shots to you on ice. Try Fallon Pharmacy. I believe Infuserve also carries it. Methylcobalamine shots have not been banned!!
 
Posted by VV (Member # 38828) on :
 
I've tried 9 pharmacies so far and a few of them are compounding. All of them haven't had methylcobalamin in over a year.

I'll check Fallon though to see what they say.
 
Posted by beaches (Member # 38251) on :
 
The problem is that most carry cyanocobalamin and people with the MTHFR mutation won't absorb that formulation.

Check with Infuserve. If my memory is correct, they carry it. Good luck!
 
Posted by LymeCFIDSMCS (Member # 13573) on :
 
I got it from Downing Labs (formerly NuVision Pharm) just over a month ago. I didn't know it had been banned.
 
Posted by Lymetoo (Member # 743) on :
 
I have some but I've had it a long time.
 
Posted by Lymetoo (Member # 743) on :
 
Found this:

https://healthmasters.com/node/771
 
Posted by Andie333 (Member # 7370) on :
 
I got some via prescription from a compounding pharmacy in NY. I use it 3 times a week. For me, it helps boost my energy.
 
Posted by 'Kete-tracker (Member # 17189) on :
 
I had no problem ordering it from McGuff compounding pharmacy in Santa Ana back in 2006/07.
5 mg/ml, as I recall. Pretty reasonable.

Never heard of any banning by the FDA. Not that they haven't gone & banned stuff unexpectedly before!
 
Posted by beaches (Member # 38251) on :
 
VV, have you called Infuserve?
 
Posted by faithful777 (Member # 22872) on :
 
I use infuserve. Both my husband and I inject daily. Price is decent if you buy your own needles.
 
Posted by Lymetoo (Member # 743) on :
 
See the link above, kete-tracker.
 
Posted by 'Kete-tracker (Member # 17189) on :
 
yup, Ah did. Seems they're taking issue with how a certain family of supp's, containing any of the folate "group", are labelled.
And if one starts to use what terms ARE allowed, one could be "guilty" of being inaccurate.

A far cry from "banning" a certain injectable form of the Vitamin B-12, but still of concern.
s far as I've seen, the on-line pharma sources of methylcobalamin are still out there.
 
Posted by VV (Member # 38828) on :
 
Very confusing. I found a place that may do it.
It's compounded though so my insurance won't cover it. Waiting for a reply.
 
Posted by Razzle (Member # 30398) on :
 
Methylcobolamin is not the same thing as Methyl-folate. Those are two different B vitamins. I'm aware of the labeling issue with Folate, but as far as I know, the same issue does not apply to B12 (methylcobolamin).

I think the problem is the FDA is trying to shut down compounding pharmacies by putting so much regulation and red tape on them that they'll stop providing compounded medications (especially injectables).
 
Posted by beaches (Member # 38251) on :
 
VV, in my experience insurance covers nothing from compounding pharmacies. It's all out of pocket.
 
Posted by Rumigirl (Member # 15091) on :
 
quote:
Originally posted by beaches:
VV, in my experience insurance covers nothing from compounding pharmacies. It's all out of pocket.

That's not always true. It all depends on the plan that you have; I've always had coverage for compounded meds, but with a higher co-pay.

I've learned that it really pays to pursue this in depth with my insurance company. I have a different company this year, and when I asked, they said compounded meds were covered if they cover one of the meds in my rx.

But when a pharmacy tried to put it through, it came up as not covered, But then I spoke to a supervisor, who gave me more info. And i had the pharmacist submit it with all the ingredients and their drug codes.

Now I can get it covered. I still pay a lot, because it's a pain cream that I need a lot of, and they only allow 30 grams at once for one co-pay. I need to order it about 8 times per month!

But it's still cheaper than paying all out of pocket.

You can always appeal it, too. Sorry for the long-winded explanation!!
 
Posted by imagine2 (Member # 3136) on :
 
I use Infuseerve as well. They are easy to work with. You can talk to the Pharmacist directly.

However, there is a new restriction on B12 injections.

They are being required to 'quarantine" their B12 for 3 days so keep in mind if you order from them there is an extra 3 day delay in getting your order.
 


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