I have not gotten much better at all in the last five years despite being on antibiotics, oral and I.v., treating for coinfections and hhv6 because I had high levels. My doctor is stumped, I'm stumped, and people on this board haven't been able to figure it out either. I came across something that explained that mycoplasma could be why people who are diagnosed with lyme do not get better. Question is what is used to treat mycoplasma? I thought it was the same abx for lyme
Posted by lymie_in_md (Member # 14197) on :
think of mycoplasma like a virus, ABX can't get rid of viruses nor micoplasmas. So your best bet is liposomal vitamin C which you can buy or make yourself. I choose to make it myself when I need it, but haven't needed it for years. Also herbals can help, I like poke root tinctures. they are now available online to purchase. There are many others, just need to research them.
google -- virus and micoplasma association -- vitamin C micoplasma treatment -- herbals micoplasma
You can concoct a protocol for yourself and ask your doctor if it seems reasonable.
good luck Katrina Posted by lookup (Member # 44574) on :
A-Myco. You have to go to a practitioner for it.
Posted by Judie (Member # 38323) on :
Have you ever taken a fluoroquinolone? (cipro, avelox, levaquin, etc...).
These drugs can cause problems after you stop taking them that mimic a lot of Lyme symptoms (they can show up later and not while you're taking them).
Doxycycline is for mycoplasma too.
I have HHV6 and a bunch of viruses also.
Posted by Charles555nc (Member # 42654) on :
There are 9 species of Lyme and testing for only 3. Most lyme is, imo, antibiotic resistant by now, so the best idea is go for the drugs treating antibiotic resistance like vancomyacin/daptomyacin.
Also correcting zinc, vitamin D, selenium, and molybdenum deficiencies can be huge.
Babesia is a protozoan co infection that should be treated as well since it's immune suppression protects lyme disease. It is not effected by the usual lyme meds.
Posted by surprise (Member # 34987) on :
Vancomycin will put Borrelia in cyst stage. Clear out some, for sure, but cyst will remain if taken solo. Seen it happen.
Myco can take a long time, you may need a fluoroquinolone to eradicate it, and I'd keep pulling titers from the same lab to see how it's moving.
Posted by surprise (Member # 34987) on :
** Also, if you can't get rid of Myco despite treatment, you might want to get titers pulled of people you live with to see if they're carrying it.
Posted by Mathias (Member # 5298) on :
Fluoroquinolones are a powerful tool for getting rid of Mycoplasma. Mycoplasma really mimics lyme and is extremely difficult to get rid of. It should definitely not be ignored if you are co-infected with it. FACTIVE (gemifloxacin mesylate) is a very good antibiotic for it.
Posted by Lymetoo (Member # 743) on :
And don't forget the dangers of taking fluoroquinolones!!
Posted by CherylSue (Member # 13077) on :
I was given IV levaquin in the hospital when I first came down with the "flu from hell." It fried my brain and gave me chronic fatigue. I eventually was on disability for two years until I diagnosed myself with Lyme and sought abx treatment. It was a long road to recovery, but after almost 15 years, I'm doing much better.
The short story: Avoid fluoroquinolones like the plague! Don't take a chance with levaquin or cipro.
Posted by Mathias (Member # 5298) on :
True there are many reported issues with floroquinolones, I never had a problem with any of them but that is just me. Everyone is different and the pros/cons of using them should be discussed with your LLMD. They were a life saver as far as I'm concerned. Mycoplasma fermentans which I was infected with is not very susceptible to many antibiotics outside of the quinolone class.
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