Jan 2, 2015 - There has been a deliberate effort to stifle the Lyme patient voice and the complaints regarding faulty FDA approved Lyme disease antibody tests leading to misdiagnosis and disability.
Countless numbers of Lyme patients have been denied treatment and insurance reimbursement as a result of the restrictive case definition. It is time to flood our public health official's in box with stories of misdiagnosis and personal harm due to the five band IgG criteria which has been estimated to eliminate 95% of active infections per the detailed letter below addressed to Joe Bergantino, Executive Director of the New England Center for Investigative Reporting. (please read)
Former Senator Alfonse D'Amato attempted to address this issue in 1996!!!!
Ignoring patient complaints equals MEDICAL NEGLECT.
Next Steps
If you have been harmed by faulty Lyme disease tests please describe your experience in an email and send that message to the following recipients:
Subject: Faulty/misleading FDA approved antibody tests
To:
Secretary Sylvia Mathews Burwell U.S. Department of Health & Human Services [email protected]
Cc:
Senators Richard Blumenthal, Kemp Hannon and John Bonacic. Joe Bergantino, Executive Director of the New England Center for Investigative Reporting. Heather Goldstone, WGBH Science Editor. Beth Daley, Investigative Reporter.
I will be compiling a document of these complaints to present to legal council in order to establish the feasibility of a class action against (but not limited to) the commercial labs administering these tests, the clinicians misdiagnosing Lyme as a result of these tests, the CDC, FDA and Department of Health & Human Services for ignoring patient complaints.
IMPORTANT
Please send these complaints on Monday January 5th to Wednesday January 7th in order to project a unified effort from the Lyme patient community. Complaints are welcome after those dates and will be included in any possible class action effort.
Please continue to forward this petition to educate others. . . .