I sought her out because my llmd doesn't seem to address healing or at the speed I would like it to be. and sometimes it is good to see what else is out there.
new dr told me she can help heal my brain. the brain is where the lingering sx seem to be for me. I had recently come to the conclusion that I will have lyme issues the rest of my life and decided to proceded with this attitude in case it is true, which I think it probably is.
ND gave me Lyme Nosode and Enzyme Defense by Enzymedica to take . she said I need the Enzyme Defense for the rest of my life.
she also said I must up my probiotics, and digestive enzymes as well.
I didn't really know there were different enzymes for different things! I thought they all were the same. maybe I read it here somewhere, but i don't remember, and that is part of my problems, haha.
so , I feel pretty good physically now. most my really bad sx are rare, except for joint pain and fatigue. ND thinks my fatigue is NOT ADRENALS as my llmd thinks, but the lyme and cos attached to my nerves. I really wish I didn't forget that tape recorder at the appointment, but I am trying to remember all she said.
she also said I was negative for yeast. that is the 5th dr telling me that, so is it time to start believing it? I don't know, but what she did say made some sense, which was that I have a very acidic state and it is causing all kinds of issues which include sx that would be similar to yeast.
Posted by Lymetoo (Member # 743) on :
Progress!
How do you fix the acidic state?
Posted by Keebler (Member # 12673) on :
. . . also a perfect food choice to help balance an overly acidic diet because they are an alkaline forming food. . . . -
Posted by LisaK (Member # 41384) on :
this is interesteing because I have been craving many of the foods on this list. hmmm.... BUT I do eat them a lot. and how much of this do I need to eat?????
I remember a dr like 10 years ago telling me my body had no good flora; no good bacteria, so this has been going on for long time with me it seems. and my sx are at the point of feeling very uncomfortable all the time, so I really want this to be fixed!
I was rx flagly by one dr to treat bacteria overgrowth, while another dr says I don't need flagyl and gave me probiotics. so what do I do? <slamming fist on table>
Keebler, how long does it take to even this out with only eating the right food? I have been unknowingly eating tons of almonds and drinking almond milk for the last week or so and I don't see any changes in how I feel. so am i right in thinking it would take mountains of the right food to make me better?
I feel like crying, ugh
Posted by lolo (Member # 43186) on :
LisaK Dont cry, sounds like your new doc is on to something…..I think you should put your trust in the new doc at least for now and give it time to see if it helps
Posted by Lymetoo (Member # 743) on :
I would concentrate on green foods, Lisa.
Posted by LisaK (Member # 41384) on :
green, OK. it's just so hard to cook and prep sometimes. any suggestions on making green foods easy but still maintain the quality>?
lolo, you think? I am impatient to put it mildly. I am working on that. trying to be patient. but you may be right. I just don't like wasting time which is what I did for 17+ years of misdiagnosing.
thanks for the support
Posted by Brussels (Member # 13480) on :
Green food suggestion by the right hand of dr. K: take many green salad leaves, blend them in coconut water, add a fruit if you may take fruits, it tastes pretty good!
The coconut water is wonderful for electrolytes. It makes nutrition goes even deeper. The fruit is for the taste, otherwise, it will taste only salad leaves!
The more green the leaves, the best. Of course, only organic! It helps the body to detox too
Great Lisa, that you are doing well. I also agree with the enzyme problem + probiotics + and the healthy food (live green food). I guess you are on the right track.
Congrats for not having yeast.
How are your intestine, digestion, do you have allergies? thank you!
Posted by Annie C (Member # 14) on :
So much great info on this feed. And Food. Lol. Seriously I'm more confused than when I got here. And it's been quite awhile too. I'm ready to toss it all and completely start over. It's not been as I had hoped. I'm sure I'm not the only one with that thought.
I'm ready for all new ideas and suggestions. I'm ready to throw in the towel and give up. I don't want to discourage any new people here. We are all different And we all have different co's etc... Plus how long un/misdiagnosed and our age, at the time of diagnoses.
Just keep coming back to this place and continue to read and learn. And don't give up no matter what. There's always a new and better treatments right around the corner.
LisaK has really had it rough and sounds like she's also really tough. Keep fighting.
I'm still fighting Tularemia and I'm winning yea for Moi. So take that Tularemia.
Posted by Lymetoo (Member # 743) on :
Lisa, just make sure you are eating vegetables .. esp green ones. If you have a blender, then throw the greens into it and add coconut water or whatever you like, as Brussels suggested.
Annie.. glad to hear that you are winning against the tularemia. You can do it!
Posted by lpkayak (Member # 5230) on :
Lisa ...do you remember what herbs you took that made you so much better when you first started this thread?
Posted by LisaK (Member # 41384) on :
Brussels, I cannot eat coconut. I know, very sad.
I have tons of food allergies, yes. they have gotten much better since my tx, so that is so exciting to me. now I am thinking some were just sensativities and not allergies?
I do have many other allergies and they have all improved too.- dust, dog, mold, weeds, trees, etc.... I was almost unable to eat anything before I started tx!
my guts are doing pretty good, I must say. I have eliminated wheat/gluten (again) and this always helps. but I notice if I eat certain dairy mixed with a grain at a meal I get nausea. my other GI sx have gone way down.
my GERD has gotten better also. and I can eat hot peppers again, yay.
Posted by LisaK (Member # 41384) on :
<<LisaK has really had it rough and sounds like she's also really tough. Keep fighting.
I'm still fighting Tularemia and I'm winning yea for Moi. So take that Tularemia.>>
ANNIE, you are so kind to say nice things about me! I was tough, and I am trying to get my old self back, just like all of everyone else here, I suppose.
I am so happy this new dr gave me hope for my brain. so happy I could cry.
I will say though, EAT RIGHT FOR YOUR TYPE way of eating has really helped me - pre dx and also now. I never feel better than when I am on that 'diet'. I highly HIGHLY recommend it to every person on this forum!
and Annie, good for you kicking that Tularemia butt!!! keep on keeping on. (my phrase for the day)
Posted by LisaK (Member # 41384) on :
lymetoo, good idea to blend- I always forget that!!!
my kids got me a magic bullet for my birthday and I always forget it is right there on the counter! making mental note....
Kayak, I was taking tx from Monastery of Herbs. similar to Cowden, but my dr said they were "better" .
I took the certain ones he rx and also had me on cilantro and chlorella.
got me feeling better faster than abx ever did and with much much less pain and suffering- although, keep in mind on abx I felt like near death, but there still was plenty of big herxing and sometimes with big pains, but compared to abx this was the way to go for me.
you can only get Monastery of Herbs through a dr, though, unfortunately. I think you can contact them for dr referal. http://www.monasteryofherbs.com/ Posted by lpkayak (Member # 5230) on :
Do you have an old bottle? I d like to know the actual herb: catsc law, red root, andrographis etc
Thanks
Posted by LisaK (Member # 41384) on :
Kayak, I have the bottles. but there are about 10 of them all different and around 35 herbs or whatever for each one.
I felt much better after tx for strep. then other things also later on helped too, but strep was the first one that I noticed a marked improvement.
were you ever tx for strep?
is there a specific tx you want me to look up on the bottles? I cannot write them all here. it would be impossible for me
***
Posted by lpkayak (Member # 5230) on :
No...maybe well talk on phone sometime and you can read them to me
If they made you feel better...why did you stop. Or did they actually cure some sx but what bothets you now is othet sx?
My tx for lyme was always a longvtime on one tx before a change
Im.just picking your brain cuz im.doing this now witout llmd
Posted by LisaK (Member # 41384) on :
kayak, I finished all my treatments and was cleared of lyme and everything else.
I am in the healing stage now.
repairing all the damage.
most of my damage is brain. I am planning a big cleanse in a few months. I tested pos. for mercury and lead. high mercury.
Posted by lymeboy (Member # 24769) on :
LisaK,
Is there any chance you might share your specific protocol?
Posted by LisaK (Member # 41384) on :
lymeboy, I was tx by a dr that uses the stuff from Monestary of Herbs. They only sell to drs so you would have to go that route. you are not far from me maybe? if you like PM me and I will give you my dr name that uses this.
or the MOH site can direct you to the nearest dr for you.
it is a lot of differnt bottles of mixed herbs,pills and tinctures. I also used chlorella and cilantro and magnetic therapy on my head for just 5 minutes each day after taking the meds.
The list of ingredients is really long..... there might be one listed in my original thread for this which you can click on link above in this thread. the blue link at the top. maybe Iput one of them on there?
Posted by Keebler (Member # 12673) on :
- MONESTERY OF HERBS
My experience and impression - excellent with sort time segments of a few months here, another few months there.
The ingredients are nothing like you've ever seen before, most likely and certainly not something you will find on shelf in even the best natural market. But I found them all in good historical herbal resources. And many were also found on PubMed with medical abstracts.
But you won't find them in stores or on web sites.
There is no way to do this on your own, take my word for it. It would be nearly impossible to even obtain some of the unique herbs - you'd never see these anywhere else. It's so worth it to trust their expertise, their herb sources, etc.
I did very well when I used their formulas. The protocol is individually assessed. So, what one person is doing would not likely be the same arrangement for another.
I've been around herbs for decades and this group has excellent though behind their formulas as well as top quality. I felt much better when I could do these.
When I first started, I looked up every single ingredient in every capsule or tincture (that I was sent - maybe 3 sets at a time, and rotating with different sets as the previous ones emptied).
To look up each herb . . . It took a long time and I learned a lot. And it all made a lot of sense. I love that kind of exploration.
But I had to learn to think differently.
Still, there is not one ingredient that is THE key; it's the way they are formulated that seems to be why these worked so much better for me than most other herbal formulas that I tried to get just here and there.
As with most herbs, it's usually never just one that is the key, it's the knowledge of the herbalists in how they all work together.
I had been referred by a local naturopathic doctor, actually. As they are in a different state, phone appointments were used and
while I may have been skeptical about the exoteric-ness of how they figured out what would be best for me, the guy I worked with was excellent and the product choices seemed to fit exceedingly well.
Probably did this for about 4 months, maybe another 3 or so after a break. My budget just couldn't sustain it, although I do think within what they do & the quality ingredients (which they have to obtain) that this is a very fair cost.
[ 01-27-2015, 08:54 PM: Message edited by: Keebler ]
Posted by LisaK (Member # 41384) on :
thanks Keebler for that info. I totally concur. and you said it way better than my lyme brain ever could at this time. I hope this answers questions people have.
I totally trust these products. they were worth every cent to me and I am just about dirt poor.
Posted by Keebler (Member # 12673) on :
- All that said, I'm not sure if this method would be a top line direct approach against lyme / TBD or solely as support - or somewhere in between.
My impression is that MOH would be somewhere in between, not sole treatment.
It's best, though, not to try to mix and match beyond this on one's own (especially don't second guess and go adding herbs or other things)
rather, work with fully lyme / TBD literate naturopathic doctor or herbalist who knows what (all) it will take, all about the MOH formulas - and if more is needed, exactly how to work that out.
I just know that while I took MOH I felt a sense of well being, not zooming to the moon nor sedated into a false bliss but a good sense that my body was a bit better (and a bit better at that time was remarkable all things considered).
As for a "direct" approach component, rife seems like it might be a good complement:
[ 01-28-2015, 02:08 AM: Message edited by: Keebler ]
Posted by Brussels (Member # 13480) on :
LisaK, do they use energy tests to define which products you need?
How about the lyme nosodes, what is exactly inside it? I'm interested, for curiosity. And another question, did you feel any direct results from lyme nosodes?
Thanks
Posted by LisaK (Member # 41384) on :
well, as me as a testament, it sure worked better than abx. and much faster.
I think each person is defferent and we must realize that not every needs the same tx.
my entire family was on this program. I saw improvements in all of them . the sickest of us could feel a difference, while the not as ill didn't notice it personally, but people around them could. it deffinitely helped all 5 of us. and not just for lyme and co, but all the parasites too.
AND my CMV.
yes, rife sounds great. I am not at liberty to say if it would truly be nessecary, and when I asked my dr about it he said it was not needed.
also, I would like to point out that I did contact several people in the beginning befroe I decided to try this- people that finished their course with MY DR. they all said that they were sx free for years after.
I have though, recently just met someone (on line) that did not heal totally from this , but they travelled from Florida to see him and couldn't come for visits in between tx which you may really need to do.
I live an hour away from him so this was not hard for me. I did have to retake one tx as I needed two kits for that one. I would not have known that if I lived far and couldn't make it in there.
for me this was my only chance. I was out of money at the time and out of hope. this has given me a new lease on life. I can actually run with my dog again for short stints. I can walk to the mail box as before I could not. I can read and retain. I can help my kids with their schooling, filll out papers, read a recipe, have a normal conversation most of the time, drive without worrying I will kill someone. I can eat more foods. I can tollerate more smells. I can go with less sleep. I can play the piano again. I can use the stairs more than once a day. I can shovel snow and run the vacuum..... so many things I am very greatful for. non of this was possible on the months and months I was on abx.
abx were just not for ME. maybe for lots of ppl, but not me.
that was good for me to write out those things I can now do. makes me sad to think I once could not do them.
there are still things that I cannot do normally, but I am tx for that with other things for now , to repair. it is stil such a journey and I realize it may never end for me.
I dont' wanna give anyone false hope. I only want to share what I did and how it helped or didnt'.
when I first came her to lymenet- for which I am eteranlly grateful I did- it wwas super hard for me becasue I could not read and retain. I had no help from anyone at home for this. there is so much emphasis placed on ABX and finding ILADS dr and al lthat.
when my attempt failed in those 2 areas I was devestaed because I thought that was the end all and I would perish for sure.
I found out about this dr and MOH outside of here. somehow, someway, an angel came into my life. I don't even rememebr how or who they were! but they suggested I try this dr with these crazy methods. I really dind't trust him or what this would do.
it did work. and mostly all by itself. diet helped , but it was not a major player for me.
am I 100% sure that I will be better forever? no. my dr is though. as long as I have hope . then I can do this. and before this way of tx I had no hope. I was ready to die.
Posted by LisaK (Member # 41384) on :
PS, not all drs that use MOH use them the way my dr does. he has his own testing methods.
if you use MOH but not my dr, I am not saying you will get better. not saying you won't either. I am only sharing my experience.
Posted by Catgirl (Member # 31149) on :
quote:Originally posted by LisaK: well, as me as a testament, it sure worked better than abx. and much faster.
I think each person is defferent and we must realize that not every needs the same tx.
my entire family was on this program. I saw improvements in all of them . the sickest of us could feel a difference, while the not as ill didn't notice it personally, but people around them could. it deffinitely helped all 5 of us. and not just for lyme and co, but all the parasites too.
AND my CMV.
yes, rife sounds great. I am not at liberty to say if it would truly be nessecary, and when I asked my dr about it he said it was not needed.
also, I would like to point out that I did contact several people in the beginning befroe I decided to try this- people that finished their course with MY DR. they all said that they were sx free for years after.
I have though, recently just met someone (on line) that did not heal totally from this , but they travelled from Florida to see him and couldn't come for visits in between tx which you may really need to do.
I live an hour away from him so this was not hard for me. I did have to retake one tx as I needed two kits for that one. I would not have known that if I lived far and couldn't make it in there.
for me this was my only chance. I was out of money at the time and out of hope. this has given me a new lease on life. I can actually run with my dog again for short stints. I can walk to the mail box as before I could not. I can read and retain. I can help my kids with their schooling, filll out papers, read a recipe, have a normal conversation most of the time, drive without worrying I will kill someone. I can eat more foods. I can tollerate more smells. I can go with less sleep. I can play the piano again. I can use the stairs more than once a day. I can shovel snow and run the vacuum..... so many things I am very greatful for. non of this was possible on the months and months I was on abx.
abx were just not for ME. maybe for lots of ppl, but not me.
that was good for me to write out those things I can now do. makes me sad to think I once could not do them.
there are still things that I cannot do normally, but I am tx for that with other things for now , to repair. it is stil such a journey and I realize it may never end for me.
I dont' wanna give anyone false hope. I only want to share what I did and how it helped or didnt'.
when I first came her to lymenet- for which I am eteranlly grateful I did- it wwas super hard for me becasue I could not read and retain. I had no help from anyone at home for this. there is so much emphasis placed on ABX and finding ILADS dr and al lthat.
when my attempt failed in those 2 areas I was devestaed because I thought that was the end all and I would perish for sure.
I found out about this dr and MOH outside of here. somehow, someway, an angel came into my life. I don't even rememebr how or who they were! but they suggested I try this dr with these crazy methods. I really dind't trust him or what this would do.
it did work. and mostly all by itself. diet helped , but it was not a major player for me.
am I 100% sure that I will be better forever? no. my dr is though. as long as I have hope . then I can do this. and before this way of tx I had no hope. I was ready to die.
Lisa, this is so beautifully said and I am SO HAPPY this worked for you! :)
Posted by LisaK (Member # 41384) on :
Thanks Catgirl! and thanks to all here!!!
___
Posted by SacredHeart (Member # 44733) on :
Lisa could you please pm me who you are seeing and your treatment? Do you have any confections like Bart, or mycoplasma? Thanks.
Posted by LisaK (Member # 41384) on :
my dr is in Pennsylvania. if you think you can travel there you can PM me for the info.
I was treated and cleared of : bart, lyme, babs, strep, parastic worms,
RMSF, CMV and vericella
Posted by Ellen101 (Member # 35432) on :
Lisa so happy foryou that you are seeing some positive results! Do you getyour supplements directly from the ND? I'm a little puzzled as to why she would tell you that you need to take a particular supplement for life.
As far as acidic goes you can easily check this yourself with ph strips you can buy. Lemon water and ph drops can help to lower your acidity.
Posted by LisaK (Member # 41384) on :
Hi ellen, yes I get them directly from her . she has good prices. she wants me to take Enzyme Defense which is an immune system support. this makes sense to me right? since my low immune system is what got me in this spot in the first place.
I have been trying to eat a little more green veggies, and I stopped coffee. this has helped I think, with acid. still, I will try and see if there are any other ways and keep an eye on this. if it is indeed acid. I can't take lemon.
Posted by Ellen101 (Member # 35432) on :
My LLNP has occasionally recommended a particular supplement. They have an in office apothecary. I usually go home and take some time to research the supp to see if it is something that I would benefit from or is itsomething I need more info on. From there I comparison shop online. She has never told me I would have to be on anything for life. Just be cautious..
Posted by LisaK (Member # 41384) on :
ellen, I cannot eat lemons. they burn me and upset my stomach. there is no confusion. not sure why you are saying that??
I research. I am also on a multi vitamin "for life". and some other suppliments too. not a big deal to me especially when they are sold to me at her cost . thanks for your concern.
Posted by Brussels (Member # 13480) on :
Lisa, thanks for telling us your story.
I know what it is to come back slowly to life and be able to do things we weren't. It's soooo nice!
only who have been in our shoes know what it is, to be able to vacuum, to take a shower, to play an instrument again with big pleasure, to be able to help your kids again, to read the newspaper again and understand it...
I'm glad life is back to you and that somehow homeopathy and plants did help you out of such a complex disease!
My body also does not go well with chemicals, specially antibiotics. I hate them, they hate me too!
Sorry for the lemon story. Some people think lemon is too acid, I mean, that it makes your body acid, and they avoid them. But your problem is probably an intolerance or allergy.
Now comes the hardest part of the problem to solve, how to be able to eat things without allergic reactions, for example. Do you still suffer from low body temperature?
I do, and solving that is another hard to solve problem, specially if your super thin like me...
I never run a fever, for example. No matter how sick. My body temperature increases a bit, but it's not really fever.
Not a great deal though. Without lyme, life is livable and most of the time, enjoyable!!!
Thanks for sharing your story!
Posted by LisaK (Member # 41384) on :
Brussels, thanks! I used to have a very low temp. I think my average was like 96.2 for a long while. it is up again now since tx. I thnk it is more like 97 now and goes up and down from there .
I used to have my hair falling out and I used to have to wear a hat in my house along with 3 layers of clothing. but one thing I think that contributed was me trying to keep the heat down low a bit to keep cost down. we have all electric house. bills are really high.
but now that I got tx I don't have the temp issue as much at all, yay.
my Primary dr office finally came out and said it that instead of looking at my temp as a norm they actually look at my individual history. but yes, you are right- it is not considered fever unless it is high for me. but that is just nonsense.
that is like the ultrasound tech telling me my liver and spleen are larger than most people's. well, how the heck would they know it wasnt' enlarged because of illness? unless they had measured it before, right? idk.... I am not a tech, but it sure didn't make sense to me.
Posted by LisaK (Member # 41384) on :
I am now off herbals for now, and on homeopathic cleanse at the moment. it seems to be doing something becasue I feel better overall- kind of like more "normal" if that makes sense.
I am not sure what did it, but the burning I was having is way better.
I will check back after my cleanse is done which will be next month some time.
Posted by michlyme (Member # 17845) on :
Posted by LisaK (Member # 41384) on :
now that I am almost done with my month long cleanse I can really see a huge difference in my function. brain, body, energy....
I used BodyAnew (homeopathic) by MediNatura .
It has been slow and painless with no herx that I noticed. I wasn't sold on it because I tend to think no pain no gain, but I must admit that I feel fabulous compared to just a month ago! it was well worth the $30 for that .
I finally can feel like I am clearing up and seeing a light at the end of a long dark tunnel.
next step : genetic testing with supplementation and a Urine acid test. no one has ever suggested that to me before and this supposedly is a big key in the puzzle to determine what someone persaonlly needs to get better.
Posted by Brussels (Member # 13480) on :
Great that the homeopathics helped you, Lisa!
They were a great part of my treatment.
I looked at the ingredients of MediNatura Body Anew, 3 different mixes.
I know that the first well known company that works with homeopathic combinations is called Heel. They have a loooong history here in GErmany /Switzerland, and many practioners use their products, very well known for decades.
Well, I know that they are the pioneers, and when I see such combinations like the ones in your products, I almost have no doubt. They are copied from Heel!!!
I used that for a while, for helping digestion, as I was a Nux vomica 'person': that was THE remedy that helped me most (gastric problems). But it didn't solve the problem (though it helped).
-Purity one, is an attempt to use some of the kidney support homeopathics. I used something called Solidago comp, from heel
( funny that there is Sarsaparilla, with it's real name Smilax, that you find in your first product Fatigue!)
There is also Apisinum (which is bee venon), used in Lyme treatment and many infectious diseases...
This is a VERY well known combination (above), very much used for many years, even by vets.
Dr. W. from Germany also uses that as a main detox substance for patients who do the Photon Bionic therapy for lyme.
Anyway, these homeopathic substances 'look' light, more 'imaginary' than real, but they have such a long history of use, that I do think they are trustworthy.
I found this site that shows such combined homeopathic products here in Switzerland. If you type any of the homeopathic substances in your products, you will see how these are combined, recombined in so many different ways and used for both men and people (and I do use it for plants too).
I'm glad practioners in the US are starting to use these products. They were a big help for me and my daughter too. I mean, I basically only used that as MAIN treatment remedies (herbs were only supporting my detox, while homeopathics did the most).
What I tell to people: never underestimate the power of homeopathics. They can be amazing, much more powerful than anything else (herbs, chemicals), if you find exactly what you need!
Posted by LisaK (Member # 41384) on :
hi Brussels, yup, I have been using homeopathics for about 20 years.
I am very familiar with Heel. they are one of my favorites!
my NP is the one that gave me this cleanse, so while most drs here don't use them, NPs often do.
thanks for all your info!
Posted by bitbit99 (Member # 43654) on :
In tumour cancer circles Alkaline diets are supposed to be great as well, so it stands to reason.
I have both cancer and lyme.
For me it is very difficult to get to where I need to be in this Alkaline arena.
But it can be done and should prove to at least help.
Some dirty little things like to grow in acidic bodies and don't like to grow in Alkaline bodies.
So I guess higher oxegen levels are good know matter how you get there.... just get there.
I am amazed at the similarities in treatment for lyme and cancer..... Weather they work or not I do not know.
I often wonder if they are a pair of evil twins, the old chicken and egg thing....
Anyway Happy May Tomorrow morning.... and if you have decided not to have a happy May .... just fake it till you make it Posted by lymeboy (Member # 24769) on :
This is a lot to take in. Lot's of info here and hard to know where to start. I'm still doing Salt-C and I've stopped antiparasitic herbs after about a year of fairly steady use. Still not out of the woods but improved.
I'm looking for the next corner, which is going to mean the next change-up and treatment. Could any of you, particularly Lisa or Brussels tell me, Is the herbal route expensive? It sounds it. I'm busted. If I get sicker, I'll stop working again and get poorer.
Is there any hope for a poor person who needs to make the rent, and has not much left over after? How do poor people do it? I can't be the only one bankrupted by Lyme.
Posted by lpkayak (Member # 5230) on :
I had some good luck with buhner. It can be a little tricky to figure out but there are books and a site for support
If you by cut and dried herbs from 1 st chinese and make the tea it can be only a couple hundred a year
I have a handout i got from a doc about it if you want me to email it pm me
Posted by LisaK (Member # 41384) on :
lymeboy, I was al lout of money when I switched to herbals. I was on abx for about 6 months, I think, and used all of our money. I was ready to die. I was so down and out and really thought that was it.
then I connected with someone and it just clicked. herbals are way cheaper- at least the way I went. I spent way more on abx and all the stuff I needed while on them.
on herbals I didn't need as much of the other stuff, so it was cheaper . I think I paid like $100-300 just for abx each month plus all the other stuff I know came out to over $2,000 the first 3 months of my tx.
herbals was like 100$ -300 a month including digestive stuff, adrenals, gut , all that other stuff. it really gave me my life back. no I spend very little to maintain and keep on keepin on with a slow but (hopefully) sure road to the best posible wellness I can acheive.
and I am very excited now after many many months of darkness. I can see a light! yay!
I think it is possible for everyone. you just need to find the right thing for you. I think genetic will play a HUGE role for most people that are chronic, if not all of us.
Posted by jb151 (Member # 43170) on :
I agree....
Now i have switched my position on all of this Lyme shiz............
1. Heal the gut
2. Address gene mutations
3. Then treat Lyme and CO
Gut issues and gene mutations is a clear road map of why some recover and others do not.....
Not a dr, but thinking that is the correct path to follow.
Posted by tulips (Member # 44773) on :
Lymeboy. I'm doing only herbals and making steady progress. If you want to pm me, I'll tell you what Herbs have helped me. I don't know everything, but I have found some good herbs and have had some really good results.
Posted by Lymieloo (Member # 45753) on :
What a great thread! Love the positive results from the natural stuff. I just found out I have Lyme, and am taking some very potent, pure essential oils (pure enough they can be taken internally).
So far, so good, but I've only just begun. So thrilled for all of you who are doing so much better! Definitely calls for a happy dance. Posted by Lymieloo (Member # 45753) on :
Oh, almost forgot! Lisa, you did say your body temp has improved? And hair loss? Oh how I hope that will happen with me as well.
I used to have a full head of long, wavy hair that needed nothing done to it except wash. No styling needed.
As for my body temp? Well. I have a fire in the wood stove right now. It's 79 degrees in here, and I'm quite comfortable in my long-sleeved T. My feet in the furry slippers are cold, however.
Did anyone here gain weight with Mr. Lyme? I was always slender, never had a weight problem, until my symptoms started getting worse. Then I had several of the classic hypothyroid stuff, but can only be confirmed by the Barnes test.
Despite thyroid meds, diet, and massive workouts (until recently -- can't exercise anymore), the best I ever felt was in 2010 when I went on the Atkins diet. Lyme must have been in remission then, because I could weight lift and, after awhile, go mtn. biking.
I was taking an a. acid complex, since a test revealed I was low in seven non-essential aminos, and a great mineral product called Cell Food.
I never felt so good in my life, not even in childhood. I was literally jumping up and down with energy, and after six months, dropped four sizes.
Alas, after my car was rear-ended; I got perhaps my 5th whiplash injury which later resulted in a herniated disc, and the mtn. biking went out the window. Then my bike got stolen anyway.
Without the intense exercise, the weight loss stopped. Eventually most of the weight returned, since I never fully recovered -- never got back to being able to exercise like that.
And the icing on the cake is, I've started gaining again, since I can't exercise AT ALL, at least not yet.
So, I wonder....when people gain weight with Lyme, is it the disease itself making them gain, or it the sub-clinical hypothyroidism (I think that's what it's called)? Or both?
Posted by LisaK (Member # 41384) on :
I dont know what makes the weight gain. I too gained about 20 pounds like over night a few years ago. and nothing took it away.
now, after tx, if I eat smaller portions and avoid bad food and don't eat after 8PM I can lose pretty easily, but lately I have been very naughty and eating everyting in sight. I don't know why. I think I am comforting myself maybe?
now I am fat again. ugh.
can the weight issue come and go with lyme or is this all just from me being a piggy?
and the aclohol consumption.... some days I can have a drink and nothing happens and other days if I do I get drunk on 2 sips and get a hangover like mad for 2 days! what is that all about?
I know with lyme you really shouldn't drink, but why , for me, does this reaction come and go?
Posted by Lymieloo (Member # 45753) on :
Wow Lisa, that's strange about the alcohol...
I guess the weight gain thing is a question I need to write down, to ask my doctor. I've been terrible about that lately, and if I don't jot it down as soon as I think of one, I forget.
Posted by lymeboy (Member # 24769) on :
Everything with Lyme can be transient. You can have a leg swell up one day and not be able to walk, the next day you're ok. Day after, your hips are shot, etc.
You can have brain symptoms, not know your name one day and be ok a week later.
It's all over the place.
Alchohol is a doozy for Lyme. If you drink, you are exponentially decreasing your chances of getting well. This disease needs to be taken seriously.
If you had cancer and were told not to drink, I think you'd stop. I hope anyway.
The reason you can handle it sometimes and other no is because your toxic load varies. Lyme has a life cycle. When it dies off, and your body cannot flush out the "die off", you tend to feel sicker. Sometimes you might not feel it, but then overexerting yourself or say, having a few sips of booze, will push your immune system into overdrive, and you will crash. sometimes you'll crash for days. If you aren't complying, you're decreasing your odds considerably.
I can't tell you what to do, and I'm not trying to be condescending. I just want to share my own limited knowledge and experience. Booze is bad for Lyme and it can keep you sick.
The eating could be your body trying to generate seratonin, another chemical that Lyme will dry out on us. Which is why so many of us suffer with depression as well. When I first became overly symptomatic, I was eating everything and anything and I was never full. I gained about 30 lbs. Once I started the doxy, that subsided.
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I know, very sad. ![[Smile]](smile.gif)
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