I was just starting treatment for neurolyme with minocycline and it was soon discovered that I cannot tolerate the stuff. Then my LLMD flew the coop. He is settling somewhere further away from me so I have an appt with a new LLMD later this month.
In the meantime, my neurolyme symptoms are off the charts. I would like to go into this appt with some more knowledge and choices about how to treat the nuero stuff.
What other methods, meds or techniques are best for treating neurolyme? My most predominant symptoms are dizziness (not vertigo), loss of memory, word and thought recall problems, severe focus issues.
Thank you
Posted by VV (Member # 38828) on :
For orals, aggressive treatment with multiple agents is preferred.
A typical combination approach might include:
A cephalosporin such as: Omnicef, Ceftin or Cedax A macrolide such as: Zithromycin or Biaxin An azole such as: Metronidazole of Tinidazole
Penicillins and tetracyclines are other popular choices.
The combination is usually limited to 3 abx at one time, and only one from each class (you wouldn't take Omnicef and Ceftin at the same time).
There are claims made that IV abx are a better approach for neuro Lyme and specifically Rocephin being highly effective.
Posted by Littlesister (Member # 45146) on :
Thank you.
Posted by HK (Member # 45290) on :
All of my very severe fatigue/neurological
symptoms disappeared after 1 year of VERY high
amoxy (along with a
couple other abx) and 2 months of bicillin shots
3 days a week. It was the Bic that did it tho. It
brought me back to life and made such a dramatic
improvement that I was in utter disbelief.
Unfortunately I didn't follow the doctors orders
(I was 21 at the time) He wanted me on Bicillin
longer, and then IV just to be sure it was gone.
I did stay in remission for five years,
although I probably would still be asymptomatic
if I had treated a for a longer period of time.
Posted by Keebler (Member # 12673) on :