I always thought this was prevalent on the West Coast. But now, this has come up on a screening through Igenex. Matches symptoms--chills, night sweats and air hunger. Treated Babesia (before there was testing for Duncani & was neg. for Microti) 14 years ago and never had any trouble until now.
Posted by TF (Member # 14183) on :
Duncani started on the west coast but it is all over the U.S. now.
Here in Maryland, I have a friend who tested positive for both microti and duncani.
Posted by bcb1200 (Member # 25745) on :
I'm from MA and tested positive in 2010
Posted by ArtistDi (Member # 2297) on :
bcb1200, what treatment did you do for it? Anti-malarial drugs or herbal?
Posted by bcb1200 (Member # 25745) on :
Ive done high dose malarone (6 pills / day) with Zith. I've done high doze Mepron with Zith.
I've done high dose clindamycin, herbs,etc.
You name it, I've done it.
Posted by WPinVA (Member # 33581) on :
I had a positive test three years ago, and I got infected in Virginia.
Posted by Summer3 (Member # 35286) on :
I'm in VT and had high titers from Quest of all places.....even after doing years of anti-malarials including Mepron.
Posted by shehasmoxy (Member # 44186) on :
Got it too, possibly in 2002. In New England that whole time, no travel out of the region,
It's def spread. It's antibiotic resistant, been treating it for 9 months, still present. Zith, mepron and herbals. Afraid it's with me for life.
PCP told me its a controversial diagnosis. See, those things 'resolve on their own'
Posted by seekhelp (Member # 15067) on :
I'm not sure I would fully trust the test honestly. SO many people test positive, including me. This is one I never have been able to fully accept, though it could be there for sure. It's almost ridiculous how many test positive in my opinion.
Posted by Bitten in Bergen (Member # 34067) on :
The test is b.s. - I had babesia for many years and it wasn't until we started treating (over 6 months with Zith/Mepron) that we actually got a positive.
A good clinician will treat based on clinical presentation. The proof is when there is improvement, even in the absence of positive tests.
Unfortunately, mepron, malarone and tindamax (NOT pulsed - ugh) didn't work at all for me. It was only when I did an herbal protocol that my babesia symptoms were controlled. This ranged from pulsed liposomal artemisinin, Beyond Balance products (Bab-1 or Bab-2), etc.
Only then did my symptoms of extreme fatigue, heat intolerance, orthostatic hypotension, palpitations and shortness of breath improve.
BTW - I am on the east coast and, although I did travel to the west, I was bitten in the east.
Posted by LymeCFIDSMCS (Member # 13573) on :