I would try to understand the science behind this before even considering it, if there is any.
Posted by lpkayak (Member # 5230) on :
please have the patients he has helped come on here and tell us about it!
Posted by MattH (Member # 30846) on :
I contacted the clinic a while back, since I work fulltime I just could not get the time off.
I wonder why some of the testimonials do not end up on lymenet.org. I would have thought someone that is researching the issue would land here and then be able to report after having the treatment.
All the Best, MattH
Posted by Keebler (Member # 12673) on :
- Many ILADS LLMDs and LL NDs have never been shy about sharing details from alternative methods that hold merit, even if they are not directly part of that.
I've been out of the loop a while in this regard but it would seem that if this were to have merit, at least a few ILADS LL doctors would have shared some interest with it, even if just an "oh, by the way . . .".
It does not appear so, however, you might explore that a bit and see what those within this organization might have to say about whether this may or may not be worth pursuing.
ILADS doctors and researchers know more about the science of lyme / TBD / chronic stealth infections than any other professional organization. So, someone with that kind of scientific knowledge seems appropriate to run this by. -
Posted by Carol in PA (Member # 5338) on :
I looked at the first couple testimonials on the LymeStop site. I think that using PEMF would do a lot to relieve various symptoms from Lyme, but this doctor's treatment protocol sounds like static magnets, not pulsed magnetic energy.
Posted by jb151 (Member # 43170) on :
There is a facebook group for this treatment, "Lymestop Support and information".
It is not run by the people that do the treatment. The group asked the Dr if he would like to join the group and he said that he would rather it stay the way it is so there was no bias being applied by him or his staff. He wanted it to be a free and open space for people to discuss good or bad their results from the treatment.
I have been looking at this and following the group for a while now. When i first started following the group it was pretty new, everyone was just starting to get treatment and there wasn't enough time to see how things worked for them, as there is a recovery time before you start feeling better.
This is basically the jist of it all.......
1. It costs 3k. This includes all the supplements you need to take for 6 months, the initial treatment and the follow up treatment. The initial treatment is done 2x per day for 3 days, and then 6 months later you do a follow up treatment.
2. He uses muscle testing to determine the type and location of the infection. He then triggers a response from the body, basically he is making the immune system aware that the infection is there. Then he uses magnets to speed up the process.
3. Then you take all the supplements for 6 months, this is basically a detox and recovery process.
4. Then you go back for your checkup around 6 months later. He says this is very important, as most people still have a few lingering symptoms and he catches the rest of it on the checkup.
5. Some people need to go back a few more times.
6. He says he is around 85% success rate. He says that the ones that do not respond it is due to other things. IE, mold, heavy metals etc etc.
7. For the most part people are reporting pretty good results in the FB group.
8. He also wants you to have your 23andme genetic report done before coming so he can tailor your supplements for your situation.
I have looked into this pretty hard for over a year, and i think it would be worth the risk of paying his fees. I am currently working on my gut and addressing genetic mutations, but if this doesn't work then i am probably going to go there.
There are pretty many testimonials in the FB group, so if you are interested then i would join the group and read all the posts.
EDIT_------------------------------
Check-up is 3 months not 6 months
[ 06-27-2015, 09:35 AM: Message edited by: jb151 ]
Posted by Lymetoo (Member # 743) on :
Looks like a real money-maker!
Posted by lpkayak (Member # 5230) on :
im starting to wonder about the protocols that are not individualized for the patient. its only 3 months old for me but im having good results with a doc that individualizes for each patient each time...you see him every 2-3 months he says the body changes what it needs to fight depending on what is strongest at the time.. that goes a long with what has been written about knocking down the strongest coinfection and then seeing what pops up and then going after that . i might have read that in one of brians books.. not sure right now
Posted by Carmen (Member # 42391) on :
I suggest that if you want to talk to people who have tried Lymestop Support that you go to Facebook and join the Lymestop group. Im not going to try to move them all over here.
There are some people who say that it didn't help them at all.. while others have quite remarkable testimonials... even folks with the gene issue.
Although this doc lives in my state I won't be going to see him at about $1500. I have found out that there are other practitioners of this biomagnetic therapy and one in Provo Utah that I might get to someday. I do have some issues that I think are not Lyme related, but who the heck to know with arthritis?
Generally a session with these therapist is about $120... some less and generally 2 to 5 sessions required... thats what Ive found out so far.
OK JB151... seems like you really have the lowdown. Its still pretty new to me. I thought the responses I was reading over there were worth bringing to the attention of folks here.
Posted by randibear (Member # 11290) on :
hmmmm. I don't know. sounds like cowden would work just as well.
Posted by Judie (Member # 38323) on :
I tried something like this years ago before Lyme for other issues. It couldn't "cure" those problems. Honestly, I think it will do zilch for Lyme.
Muscle testing is a crappy diagnostic IMHO. It was used by the chiropractor to sell me a ton of supplements. When I took the supplements to an alternative MD (internal medicine) he said there wasn't enough of anything in them to do anything.
I don't trust chiropractors for internal issues such as infections. Use at your own risk!
Posted by lpkayak (Member # 5230) on :
I used magnets a long time ago for pain b 4 lyme dx
They did lower pain for awhile but then stopprd working
Someonr suggested it was the magnets increasing circulation that helped
Posted by jb151 (Member # 43170) on :
This guy doesn't use the magnets like a conventional Biomagnetism practitioner.
He has said multiple times that the magnets are not even really needed, but he uses them to speed up the process.
I think it is worth trying it, that is if you have the money..........Lyme broke me so i would have to borrow it if i decide to go that route.
Last i heard he was booking out 4-5 months.......
Posted by earprints (Member # 18951) on :
I'm flying out there on July 12 and staying until the 17th. I've tried everything under the sun for almost 7 years, all to no avail.
Lymestop's Facebook group has many members (722 at last count) who've made giant strides. And the fact that some haven't benefited at all leads me to believe that it's a legit place (not all positive testimonials)
This will be my second "trip" for Lyme, the last one being in 2011 when I flew out to Kansas to the Hansa Center which did absolutely nothing for me. Please wish me luck b/c I'm seriously at my breaking point...
Posted by lpkayak (Member # 5230) on :
Good luck!
Posted by jfr123 (Member # 46121) on :
Hi everyone. I'm the admin of the Lymestop Facebook group. I just heard people were talking here and thought I'd chime in. I created the FB group 11 months ago after speaking to Dr. Smith about it at mine and my daughter's first set of visits. He was open to the idea and we both agreed it should be for patients and interested parties only, so no doctor or office staff members. I wanted this group because there was so little info out there about how patients were actually doing with this treatment. The testimonials on the website were certainly impressive, but obviously those would all be glowing. I wanted to hear how people were REALLY doing with it. Since then the group has grown exponentially to over 700 members, and I add several new members every day. Some have had excellent results, some mixed and some haven't benefitted at all. Which is just like every other Lyme treatment I know of.
I can't tell you if this treatment will work for you or not. Our results were mixed, but I do think he did us all some good. My son also went, and we all went for rechecks. I took my husband so he could be tested for Lyme, and he turned out not to have it (he's not symptomatic at all and has tested negative with every lab). It would certainly have benefitted Dr. Smith financially to find Lyme in my husband. The other 4 of us in the family all have it, confirmed with lab tests. If he were taking advantage of patients, that would have been a perfect place to do it.
I see comments on here like "money pit" from people who have no experience with his office, his staff, or his treatment. And what I can tell you from my personal experience of this man is that he's for real, he believes in what he's doing, and nobody in that office is out to scam anyone. Once again, I have no idea if this treatment will work for you, but my experience with 20+ years of Lyme is that $3000 is a bargain IF the treatment works. It's a gamble, like all the rest of the treatments we try. I've been around the block with so many modalities in the 20+ years I've had this disease, and with all my kids' treatments. I'd say that if you can afford it, and you don't mind going to Idaho at least twice, it might be worth a shot.
If any of you want to learn more, I invite you to join LymeStop Support and Information and see for yourselves that the group is an uncensored (except for kicking out advertising trolls) space for discussion of the treatment and its effectiveness or lack of it. There are lots of helpful people in the group who would be happy to answer your questions from actual firsthand experience.
(BTW, the follow up is recommended at 3 months not 6 as a previous poster said.)
Posted by Judie (Member # 38323) on :
"$3000 is a bargain IF the treatment works"
That's how much I lost when I did a treatment like this.
I remember being told I had to believe that the treatment would work for it to work. Well, I went from hope and belief straight to despair when it failed.
Buyer beware.
Posted by jb151 (Member # 43170) on :
quote:Originally posted by jfr123: (BTW, the follow up is recommended at 3 months not 6 as a previous poster said.)
edited it
thanks
Posted by Carmen (Member # 42391) on :
And just how many people have spent many many thousands of dollars on antibiotics that didn't work? for years of treatment and endured antibiotic damages, and other types of infections due to antibiotics? Buyer beware, thats all I can say.
I used no drugs to treat my lyme disease. Ive spent maybe 3,500 (not exactly sure as I didn't keep track but there a bouts) total for a rife machine, some labs, 2 doctor visits.
As a nurse I can't tell you how many times, because they are almost countless, that I have seen antibiotics screw people up big time.. and people pay good money for this, and throw good money after bad trying to clean up the very bad results.
we all get to pick our poisons, and we all get to pick our cures. One thing I was not willing to do was to start out with something that I knew would damage me further.
I wish Lymestop was not so expensive. I have no idea why this doctor thinks he needs to charge so much and I can't help but view it as a mixed bag of greed combined with a quality skill that helps many and because of that I think I would have to be near dying to pay him 3,000 for the sum total at best of a couple of hours of his time...
But for someone else it may be just the right thing.
be that as it may, the testimonials presented by people who have gone there speak for themselves.... I know he's very busy and he's very busy because of the positive results he is getting. ... most people who fail in alternative medicine don't have a very busy practice.
So the yak about cost is just yak about cost. The yak about effectiveness on any treatment is just more yak... especially when it it refers to OTHER types of treatment that were not effective and not regarding lymestop.... What counts is what people who have been to receive Lymestop have to say... NOTHING ELSE.
After reading all the volumes I have on Lyme, looked at many many treatments, and having essentially put myself back on the fully living list, my recommendation is to keep an open mind and keep pursuing your cure and to really listen to those who have found it.
Posted by jb151 (Member # 43170) on :
quote:Originally posted by Carmen: And just how many people have spent many many thousands of dollars on antibiotics that didn't work? for years of treatment and endured antibiotic damages, and other types of infections due to antibiotics? Buyer beware, thats all I can say.
I used no drugs to treat my lyme disease. Ive spent maybe 3,500 (not exactly sure as I didn't keep track but there a bouts) total for a rife machine, some labs, 2 doctor visits.
As a nurse I can't tell you how many times, because they are almost countless, that I have seen antibiotics screw people up big time.. and people pay good money for this, and throw good money after bad trying to clean up the very bad results.
we all get to pick our poisons, and we all get to pick our cures. One thing I was not willing to do was to start out with something that I knew would damage me further.
I wish Lymestop was not so expensive. I have no idea why this doctor thinks he needs to charge so much and I can't help but view it as a mixed bag of greed combined with a quality skill that helps many and because of that I think I would have to be near dying to pay him 3,000 for the sum total at best of a couple of hours of his time...
But for someone else it may be just the right thing.
be that as it may, the testimonials presented by people who have gone there speak for themselves.... I know he's very busy and he's very busy because of the positive results he is getting. ... most people who fail in alternative medicine don't have a very busy practice.
So the yak about cost is just yak about cost. The yak about effectiveness on any treatment is just more yak... especially when it it refers to OTHER types of treatment that were not effective and not regarding lymestop.... What counts is what people who have been to receive Lymestop have to say... NOTHING ELSE.
After reading all the volumes I have on Lyme, looked at many many treatments, and having essentially put myself back on the fully living list, my recommendation is to keep an open mind and keep pursuing your cure and to really listen to those who have found it.
i agree.
Only thing i would add is that he is not pocketing the entire 3k. You figure 6 months of heavy duty supplements would cost roughly 150-250 a month. So you figure 900- 1500 of that is going towards the supplements.
Again, i have not done the treatment, just have been following the FB group. Based on everything i read from peoples experience that ACTUALLY went there, i feel it is worth the monetary risk.
To call something a money pit when you haven't read the testimonials, joined the group and have no idea about the actual treatment is ignorant to say the least.
I have spent well over 30k on treatment, lost my house, lake house, investment properties, all my cars, my motorcycle, my friends, my life as well as 7 years of my previous income which varied between 150k and 300k a year...... and i am still sick..............................
So actually this has cost me millions.........
So if the treatment actually works i would instead refer to the cost as a bargain.
Posted by Lymetoo (Member # 743) on :
---just little ole ignorant me---
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by jb151:
To call something a money pit when you haven't read the testimonials, joined the group and have no idea about the actual treatment is ignorant to say the least.
- Just responding to the insult as nicely as I could.
Posted by Catgirl (Member # 31149) on :
Love this thread! I also appreciate how everyone is so candidly honest with their responses. :)
I would do this if I knew someone who was successful with it. Hopefully they will come here and post. That said, I do appreciate everything you posted jb151.
Just two little weeks of abx destroyed my gut. It has never been the same since. I wish I had gone Carmen's route, or saw a Dr. K practitioner first, but that's just me. We are all different so whatever works for each of us is a good thing.
This thread is now open. Feel free to post.
Posted by jfr123 (Member # 46121) on :
I doubt you will find people from Lymestop coming here to post, but if anyone wants to read real accounts from people who have been to see this doctor, you're more than welcome to join our Facebook group (Lymestop Support and Information) and see for yourself. I personally had mixed results - I feel it did me some good, but that I'm not all the way there. Same for my daughter. My son is going back for his third visit soon because he really believes it helped him. If I lived close to Coeur d'Alene, I'd be going back to see Dr. Smith regularly because I do think he's on to something. However, it's a big trip from San Diego and not something I plan to do any time soon. So I'm not going to say anyone should go and do Lymestop. My stance is educate yourselves and see what you think once you've done that. Don't slam a treatment when you have no solid information. My other daughter did almost a year of IV antibiotics and while she's better, she totally messed up her system and has never been the same since. I've heard many similar stories from people who went the antibiotic route. Every treatment has its downside, and nobody is working for free out there.