This is topic Any recommendations for treating Lyme + Co-infection (Bartonella) + Lyme Carditis? in forum Medical Questions at LymeNet Flash.


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Posted by mary.l.a (Member # 46132) on :
 
Hi there,

Has anyone had any successful treatments of any sort for "chronic" Lyme (about 2 years now) with Bartonella co-infection, and Lyme Carditis?

I see there are different alternative protocols available (Cowden program/Buhner protocol, etc.) but no real "supporting" information from anyone who has seen significant improvement in symptoms...?

Would love to hear feedback from anyone who may have had successes with treatment...traditional or alternative!

Thank you so much for sharing anything about what you have experienced and "know" about treatment you have undergone.

Mary
 
Posted by TF (Member # 14183) on :
 
Mary, I had undiagnosed lyme disease (and babesiosis and bartonella) for at least 10 years before I was tested and diagnosed with lyme disease.

Still, once I got to a doctor who followed the Burrascano protocol, I got well. I have been rid of lyme disease for over 10 years now. Praise God! I have the same life I had before lyme disease.

I sent at least 5 of my friends to docs who followed Burrascano and they also got rid of their disease. I believe in the burrascano protocol because I have seen it work over and over again.

When he was practicing, he was the #1 lyme doctor on the planet. They came from every country in the world to be treated by him. His protocol is here:

http://www.lymenet.org/BurrGuide200810.pdf

One of my friends had a heart attack for no reason. So, we believe it was lyme that had attacked her heart. She got well going to the doctor who cured me. She also had babesiosis. Don't know if she had bart or not, but most likely she did since everyone around here gets all 3.

This lady had lyme for likely 20 years or more. She was on Social Security disability based on fibromyalgia and the heart problem. But, her "fibro" turned out to be lyme disease.
 
Posted by Rumigirl (Member # 15091) on :
 
Lyme Carditis is serious. It often needs IV treatment. But you'd have to get to a top-notch LLMD ASAP.

Go to Find a Doctor and ask for referrals to the states you'd be willing to travel to. That is

because there often aren't any good Lyme doctors in many states. When you do pick one, ask to be put on their cancellation list, as well as make an appointment, and let the sec'ys know about the carditis.
 
Posted by mary.l.a (Member # 46132) on :
 
Thank you so much TF and Rumigirl for the replies, and encouragement. I truly appreciate it!

I will review the Burrascano protocol with my friend.

I am happy to hear that some people are finding success!

It's an uphill battle, and I want to support my friend as much as possible. I think it's very difficult to sift through all the information out there, when you are already severely struggling with focus, concentration, and well - "hope" that things can get better.

Thanks for being here to help others.

Wishing you continued good health!

Mary
 
Posted by rowingmom (Member # 41213) on :
 
quote:
Originally posted by mary.l.a:
Hi there,

Has anyone had any successful treatments of any sort for "chronic" Lyme (about 2 years now) with Bartonella co-infection, and Lyme Carditis?

I see there are different alternative protocols available (Cowden program/Buhner protocol, etc.) but no real "supporting" information from anyone who has seen significant improvement in symptoms...?

Would love to hear feedback from anyone who may have had successes with treatment...traditional or alternative!

Thank you so much for sharing anything about what you have experienced and "know" about treatment you have undergone.

Mary

Please read my posts from yesterday and today.

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/132092?
 
Posted by SacredHeart (Member # 44733) on :
 
TF please pm me your docs name and location.
 
Posted by mary.l.a (Member # 46132) on :
 
Thank you so much rowingmom for directing me to your other posting - and THANK YOU for sharing your experience in own your own family struggles. It's really useful and comforting information, and helps a lot!

It also gives some hope that there ARE some protocols out there that can offer significant improvement for Lyme - my friend is losing hope, as I am sure many Lyme sufferers experience.

It's a real battle, that's for certain, but all the stories I see here offer a light of hope...

Thanks everyone!

Mary
 


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