I haven't posted in such a long time b/c I usually find info on my problems by searching the site..
Three weeks ago, I was fallen into a stupor where I had to go to bed and couldn't even get up...hard when you're in pain all of the time and also have rampant RLS, major systemic yeast, h-pylori that shuts down my digestive system and causes major vomiting and constipation.
I was in a stupor with fevers/chills.......all along with the lyme plus 6 co-fections going rampant in my body.
Could not drink or eat anything which didn't stop the vomiting. I had to keep a bowl by my bed to reach for quickly and this went on for weeks.
Today is the first time I have been out of bed and my balance is bad, I've fallen twice trying to get to the bathroom.
I just lay there, staring at the ceiling most of the day and in a stupor.....most horrible bout of it all since I get sick 18 years ago. It never gets totally better, just worse at times.
This time I cried to die but was not lucky enough to do so....how can a body suffer such illnesses and torture and survive?
I do not treat with abx anymore as it always just made me sicker and sicker. I watch my diet but doesn't seem to matter. Tried rife, but doesn't work on me. I have hundreds of supplements and herbal bottles in my room and had to give up on each of them w/bad side effects.
I was treated by an ILADS orginator, actually helped form the group and when she met with me, had a slew of bloodtests done which showed all the infections and bacteria in my body.
She actually admitted she had never seen a case as bad as mine and it was likely I'd never recover. My private doc agreed and they pretty much gave up on me.
I'm out of money, having spent over $100k on treatments out of pocket, even when I had insurance, over the years w/no results. Now no insurance.
Sorry for such a long post, but I just needed to tell someone how bad I am and don't want this life anymore. Lost my career 6 years ago and have spent all of my savings just living day to day.
I don't believe my lyme plus all of the rest can ever be fixed, Lord knows I've tried.
I'm sorry I'm such a debbie downer, but I get really really mad when do-gooders suggest more.......I can't do more. I don't even leave the house at all and stay in pj's all day.
My doc actually suggested I try depression meds, and I did and guess what? They made things worse too.
Oh boy......maybe I should just delete this?
[ 08-30-2015, 05:46 PM: Message edited by: healthywealthywise ]
Posted by A.G. (Member # 44713) on :
You are not alone.
Shame on the Drs for not even trying.
Just wanted to send you a hug.
Posted by A.G. (Member # 44713) on :
Thank you Ag. Right back atcha....
Posted by Robin123 (Member # 9197) on :
No, don't delete your message - hopefully people will be along to work with you on everything -
I still think the trick is to find what's going to help, and we're all different in that regard.
Just curious - have you seen whether anything helps at all, in any little way?
For example, I find that taking capsules of turmeric takes down Lyme pain for me, and that's a simple affordable remedy, for literally a couple bucks.
I get the turmeric in bulk at the health food store and dip empty 00-size capsules into it and take a couple a day. I feel relief fairly quickly.
Since you say you're out of funds, seems like the most reasonable approach would be to discuss any remedies for the infections that are on the cheap side.
Posted by poppy (Member # 5355) on :
There is finally some more worthwhile research going on. Whether this will help you, or me, or anyone else soon is the question. So, if you find any hope in this, maybe it will get you thru one more day. All we have to do is survive one day. Then maybe we can do the same thing another day.
Feel for you, wish I knew what else to say to be useful.
Posted by shoeless joe (Member # 45835) on :
Im glad you didn't delete,I so can relate to your words.
Ive become a hermit and prisoner of my house
Im tortured day and night almost non stop,quality of life stinks.
What Can we do,press on in hope,turn to your spiritual side.
I SO hear you,Im so worn out,beyond running on empty.
Vent.
Im routing for you and all of us,some day we will be free of this.
Thank you for posting,I hope some relief for you soon enough to catch your breath.
Posted by Theresa (Member # 421) on :
I say a prayer everyday and ask God to cure at least one person from their lyme disease everyday. Maybe some day it will be you or me or anyone of us. Don't give up trying God bless, Theresa
Posted by healthywealthywise (Member # 8595) on :
Thank you...this is not the day to hear of "buck up" "Pray" "there is hope" etc etc
Maybe this is the NOT look positive post, but for ones like me who have tried everything and it hasn't helped ...sometimes, we need to be honest.
I love Lymenet, but for a while, it's turned into look on the bright side of life, try this, pray more, it will get better ............I DID!!!! Every day.
In fact, every day I think "maybe tomorrow will be better". So far, it's only gotten worse and I'm so proud to know there are some people that are so sick, so angry, so defeated thread that it gives US a voice on the site.
Sometimes, the responses I've gotten so far are exactly what we need to hear.....not rah rah stuff that many push so hard.
Sorry again, I'm being honest today. Maybe tomorrow I'll jump on the it'll get better bandwagon.
Thank you friends......always.
Posted by TNT (Member # 42349) on :
Someone said, "Cheer up, it can't be that bad..." So I cheered up, AND IT WAS! Posted by randibear (Member # 11290) on :
lately every day is a day from hell filled with crippling pain.
life sucks.....
Posted by healthywealthywise (Member # 8595) on :
randi..don't want you to think life sucks. LYME& cos, plus other bad results suck.....ok, I'll add in the docs who just steal our money and turn us out w/o results suck. Oh, and the CDC.
Life would be great if we could live it, but my thought is it was stolen from us.
Put the anger where it belongs, ok? Don't want this to be ......oh yeah, now I'm doing it, but I think you get my meaning. :-)
I love all of you who understand, and thank those who want to be uppers to stay their course, but don't push your ways on those who have possibly lived this longer than you.
Makes me think of Yolanda Foster, multi-millionairess who has all the means to travel and buy best treatments. Thought, maybe she might do something but she's in denial.
Sure get your implants out and all is well again, another false positive thought. We've all had them when some treatment says AHA! and for a bit, we feel a little stronger.
She's only been ill for 3 years.
Dear Yolanda, not meaning to bring you down, but check back with me or my next of kin years from now, when that golden castle falls down and your back to square one. Not a wish on my part...just experience.
I worked full time traveling for 13 years with all of this going on until it kept getting worse and worse, fall down collapse after fall down.
I wish everyone better, including myself so it's not thinking bad thoughts for anyone. Good if you beat it....just I didn't and got progressively worse, even when I thought hope was there.
Posted by Robin123 (Member # 9197) on :
I hear you on being honest about how bad it is. I've been there too, a very long time with no answers, and suffering. But I didn't have all the infections you're dealing with.
I just kept trying to find something that would make any of it any better. I didn't want to give up.
That's all I'm asking, is are you sure you have exhausted all remedies? Of any kind? Did anything ever work to make you feel better? Any questions about anything that people think is cheap to do for xyz infections?
May I ask, what infections are you dealing with?
Posted by poppy (Member # 5355) on :
"Since I gave up hope, I feel much better."
Don't know who said that.
Posted by healthywealthywise (Member # 8595) on :
Thank you all for helping me through the first day on my feet....well, in my chair.
I couldn't sleep last night so, like weeks before, I saw the sunrise and thought NOW I KNOW!
I remembered the Exorcist......that movie was preparing me for exactly what these last weeks were like. However, too bad that unlike Reagan, I couldn't levitate off of the bed. That would have been a PLUS.
Love you all.....wish you a better day.....and I'm trying to get strong enough to stand to take a shower and wash my hair.
Maybe in an hour or two? Don't know....now, instead of day by day, I'm taking it hour by hour.
Posted by Phoiph (Member # 41238) on :
Healthywealthywise...
My story sounds very, very similar to yours...I was homebound and hopeless, in agony 24/7 for 8 years, everything made me worse, and docs had given up on me...BUT, I am now 100% well...med-free, living my life again.
NEVER, NEVER give up...you don't know what's waiting around the corner for you.
Please take the time to read ALL pages of this thread, it will describe how I got well, and you can follow others' journey also.
Phoiph? Where can I get one delivered to my house for free?
Please..........the post you references is from 2013. Have we not been through enough? Another success story? I've seen it all. Don't want to be negative or rude, but these kinds of "ads" don't sit well by me anymore. How interested that you list the manufacturer in your thread and link to them. DO YOU NOT KNOW THAT WE ARE SICK AND ARE NOT STUPID PEOPLE?
Yolanda Foster used a hyperbolic chamber in her search too. Maybe she can help send me one to use if you can't?
This is why I don't post anymore. Don't you think EVERYONE WHO EVER TRIED IT WOULD BE CURED AND TELL US HERE?!
Geeze, I give up.
Posted by Lymetoo (Member # 743) on :
![[group hug]](graemlins/grouphug.gif)
![[Frown]](frown.gif)