Since March of 2012. I used to eat anything I could get my hands on. I started having severe hand and wrist pain that March and eventually saw a nutritionist who tested me for food intolerances. It was then that she told me I was intolerant to just about everything I was eating.
It wasn't until this last summer that I finally saw an LLMD though. My problems are pain and popping in my joint areas. I only eat about 10-15 different foods, and the pain became better but the popping progressed. Now the popping is causing most of my pain.
I've been on antibiotics now for about 3 months. I'm really hoping that they will eventually cure the popping and hopefully allow me to eat some more food as well.
I could go the rest of my life without more food variety though if I could just get the popping to stop.
Someone tell me it gets better.
Posted by Lymetoo (Member # 743) on :
I feel that antibiotics are what CAUSED my sensitivities.
How were you tested for intolerances? My allergist said he can only test me for true allergies and that I have intolerances.
Avoidance of the foods that make me ill is the only thing I can do.
Posted by ukcarry (Member # 18147) on :
Yes, I have a lot: not sure how much is individual foods, or intolerances to substances such as histamine, salicylate, oxalates etc. I seem to get reactions from the very act of eating and drinking, irrespective almost of what has passed my lips.
The interaction in the gut with toxic elements from metals, infection and yeasts, not to mention damage caused by Lyme and co to the interplay between nerves and muscles Is all part of the picture.
For me, the gut symptoms have got much worse over time, and I have not really found much that helps. Probiotics, for example, have so far failed to live up to their promise, so far as I am concerned. I have been manipulating my diet for 12 years now, but without enormous success in terms of relieving gut symptoms.
Posted by Spiritwalk (Member # 46032) on :
quote:Originally posted by Lymetoo: I feel that antibiotics are what CAUSED my sensitivities.
How were you tested for intolerances? My allergist said he can only test me for true allergies and that I have intolerances.
Avoidance of the foods that make me ill is the only thing I can do.
Well, that is discouraging to hear. I don't need my gut messed up worse than it already is.
I was tested by an Elisa blood test.
Posted by Lymetoo (Member # 743) on :
That's awful. I hated to say that, but it's true. I could be wrong, but I know many on our Facebook group for salicylate sensitivity got worse after taking antibiotics. It may not be the entire key, but it seems to be a common thread.
Lyme can cause Mast Cell Activation Disorder, however, and that causes food sensitivities. So it's a Catch 22.
You will have to decide how best to proceed.
Are you seeing an LLMD in Texas or elsewhere?
Posted by Brussels (Member # 13480) on :
Buy a NEO Neurophone!!!!
400 bucks is nothing to the DAILY hell you have to go through, plus your gut destroyed, more bacteria, then all the diseases that come with food allergies.
Posted by TF (Member # 14183) on :
He has been diagnosed with Mast Cell Activation Disorder by his lyme specialist.
He had the food sensitivities before he started lyme treatment.
His lyme doc is not in Texas.
Posted by nomoremuscles (Member # 9560) on :
I agree with Lymetoo.
I have terrible food intolerances that were most likely caused by abx.
I DID NOT have this problem until after extensive Lyme treatment.
All the evidence so far suggests that the microbiome is an actual organ -- thousands of different bacteria keeping each other in check, and regulating our immune function. And with heavy-duty abx we are essentially destroying it,
I think that gut issues may be the reason many, if not most, chronic Lymies don't get better.
It is a very tough issue. On the one hand, many Lymies are helped by longterm abx, some staying on abx for life. But others get worse and worse.
I have to wonder -- and I hate even saying this, but it must be put out there -- if our LLMDs may be CAUSING "chronic Lyme" by their practices.
10-9-8-7-6 ...
Posted by Brussels (Member # 13480) on :
Think again. I barely touched abx for lyme. Of course, I took abx during my lifetime (I'm 49), but minimally.
I was practically allergy free my whole life.
During lyme, my allergies appeared and skyrocketed. Just like that.
I got better from lyme, then lost most allergies.
I got re-bitten, my allergies start rising almost at the same day lyme symptoms returned. Wheat became hellish, many fruits, nuts.
My husband has barely touched abx his whole life. He was born with allergies.
My daughter was born with food allergies. I transferred lots of mercury to her, probably, through breast feeding and because I was loaded with mercury.
She's been fighting food allergies before her first tick bite, ever, before any contact with abx.
Abx just make the situation worse, of course, destroy flora balance. But heavy metals, plastics, chemicals we eat daily, breathe daily, probably the electrosmog from this computer, they all contribute to flora imbalance.
Lyme also messes up with the gut, virtually everyone with chronic lyme will develop allergies.
I guess allergies is a disease of our civilization, of imbalance, messed immune systems. Lyme and abx do not help us there, but it's not only the abx, in my opinion.
I've been looking for solutions for about 15 years, first for my husband, then for my daughter. I think the Neurophone is so far, the only thing that is giving me real hope. It's an amazing piece of technology, but each person's experience with it is individual.
For both daughter and myself, we're losing our food allergies at speed of light.
Posted by elara (Member # 41819) on :
I had no allergies of any kind prior to getting ill. I had a very difficult time pinning down specific food allergies with either testing or food rotation.
I had developed a severe sensitivity that caused either hives or my lips to swell. I was only able to determine Ibuprofen seemed to trigger it but upon avoiding it, they continued as frequent as weekly to as infrequently as monthly.
When I was treated with antibiotics for Lyme, the sensitivity stopped. I has also been diagnosed with Asthma and IBS which also stopped after long term antibiotic treatment.
My total IgE which is the allergy ( or parasite) Immunoglobulin has been in the 700-1000 range where 100 is the maximum normal. I also have high CK and high IL-4 that are unexplained. I occasionally have a very high EOS. All these are parasitic or allergy indicators.
Posted by Brussels (Member # 13480) on :
Yep, I guess when lyme goes dormant, many allergies also go dormant. It was my case.
The problem is that, even without lyme, but with other infections (teeth, root), I got some allergies, that slowly increased in number. Burned my mouth, caused digestion problems...
Our immune systems are messed.
Messed immune systems = messed gut bacteria, messed digestion, bad gut lining, too many toxins there, parasites, bad yeast...
Even knowing about all that, all physicians are at loss: what to do to correct the mess? No one has a solution for multiple food and chemical allergies. Some treatments help some, others helped other people
In the past, people here were trying NAET, to cancel allergies. It did work for us too (something similar to that). Homeopathy too. The problem is that we gained other allergies, still. And in the end, the cancelled allergy came back.
The problem is that we can't treat allergy by allergy, or just avoid the allergenic. It is not a treatment, just a relief treatment.
As long as you do not get allergic to EVERYTHING, you can still live avoiding allergens.
The problem is: what to do when you get virtually allergic to everything?
The only things that helped me and my daughter were high frequency devices: the violet ray, and the Neurophone. For some reason, our bodies are starting to stop producing allergies, and allergies we had are disappearing.
Today I'm cooking peas. My daughter used to love peas, but became fast allergic to them. I will try to cook it as a main dish today, let's see.
For us, it is the first time I feel I see some light at the end of the tunnel.
I'm eating apples again, DAILY, after a year avoiding them due to burning mouth.
Posted by Ellen101 (Member # 35432) on :
I have many food intolerances that my LLNP feels are due to leaky gut caused by taking antibiotics for lyme.
I am doing so much better now after changing my diet. She has me avoiding antibiotics if at all possible.
Unfortunately the damage has been done and can be hard to heal. Also at some point the symptoms that you may have thought were due to lyme are actually now due to leaky gut from all the antibiotics. When I think of how many my doc had me on I feel ill. If I had to do it over again I may have tried a different route.