This is topic Mold Allergy/Illness - Help Needed Please! in forum Medical Questions at LymeNet Flash.

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Posted by Jamers (Member # 28016) on :
Okay...where do I start?

I fell ill in 2009 and I now fully believe that the cause of my extreme decline and slow recovery has been due to MOLD. The very first "episode" I had of near fainting then tachycardia was while sitting next to an old air conditioning unit in Nursing School. From then on I began reacting with sinus problems, dizziness, tachycardia, fatigue, POTS ect.. to my environment.

I went through Lyme treatment for 2 years and felt nearly 80% then I gradually progressed over the years. However, the rain in N.C. this year had been excessive and it started again...reactions to the air/heat kicking on, reactions to houses and the car. Most recently, I left my home to come to Wisconsin to stay with family, thinking my home/environment was making me sick (I still believe it is).

My symptoms, like swollen glands, subsided over the few weeks I was here...then WHAM!! I used my mother's portable humidifier in my room and woke up sneezing/stuffy/head cold the next morning. Then my inner ears and vision were affected causing dizziness. I feel toxic, tired, weak ect... All things I could attribute to a cold except I felt fine before using the humidifier. I researched humidifiers and read they harbor bacteria and mold. Wonderful!

Anyways, my point is that I strongly feel a connection between mold and my health. I am allergic to Aspergillus mold but am concerned it's more of a problem than simply an allergy. Perhaps a problem detoxing mycotoxins or mold illness.

I'm wondering if anyone has information on a physician (PM me please), or on a successful treatment that worked for them. I came across a behavioral cognitive therapy program that claims to address issues with detoxing but I cannot recall the name of it.

Regardless, I feel better when I detox with charcoal or epsom salt baths but even though it helps I feel the problem just keeps reoccurring.
Posted by foxy loxy (Member # 47053) on :
type in the google search engine

detection of mycotoxins in those with CFS

that is a thread about a the Brewer Protocol.

You could google that too! Best wishes!
Posted by Lymetoo (Member # 743) on :
Dr S of Maryland is the real expert on this. There are many mold groups on Facebook you could access for more information.

Many use cholestyramine for treatment. Have you tried that?

Also be sure to check the archives here. There have been quite a few discussions even in the past month. Good for you for sleuthing this out!
Posted by MichaelTampa (Member # 24868) on :
You might take a look here:
Posted by Jamers (Member # 28016) on :
Thank you everyone!

Lymetoo- Thanks! I have not tried Cholestyramine, I've never been diagnosed or treated for it yet. I'll feel well for awhile, usually summer then come fall//winter I start having issues again. Strange right?

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