Hi all.. It's been years since I've been on because I was doing so well. I had a few lingering issues that I was willing to live with and could manage. Life was good and pretty much back to normal.
I must say getting through the first time was long and rough and I lost everything. Did almost two years of antibiotics with an LLMD and then switched to the rife machine which is what I believe got me well.
Fast forward to this past December when I had a serious emotional upheaval and for some reason this one seems to have brought back lyme again. There was a lot of turmoil in my life before this but nothing triggered a relapse before.
It all started with insomnia. Then anxiety, depression and my body took a dive. Lost 20 pounds without trying.
Now I'm trying to figure out what's going on. I was doing very well for almost 6 years. Seems strange it would hit again this hard, after all this time, without warning.
I can't afford an LLMD. I'm back to rifing but I'm not getting anywhere. I don't know what to do. My friends and family don't believe it's lyme. They think I'm depressed.
I feel so terrible. I just want to be able to function again. Doing the usual run to specialists to make everyone happy. It feels like that movie Ground Hogs Day.
Does it sound logical that I could relapse all this time later? I highly doubt I was bitten again.
My only option to treat is the rife. I won't have a doctor to guide me because my CDC western blot shows not a single band. I've made an appt with a naturopath who works with lyme.
Anybody have any guidance or opinions on whether a relapse is possible?
I want to feel like I did just a few short months ago Posted by bcb1200 (Member # 25745) on :
Welcome to my world. I too was 95% well and fine for years and crashed in December.
For you, I would get your thyroid checked. Perhaps you are just hyperthyroid which can cause insomnia etc.
So sorry you are going through this. I feel your pain.
Posted by Backagain (Member # 47644) on :
I thought insomnia was a big part of lyme? It was the first unbearable symptom I noticed the first go round. It's bad too..nothing helps it. Normally I sleep great! I've had my thyroid checked. I'm still within range but at the hyper end. The doctors won't do anything about it.
I'm so worried about what I should do.
It feels like lyme and yet it doesn't. Not being able to see an LLMD makes me a fish out of water.
Posted by Backagain (Member # 47644) on :
Forgot to say thanks... It's nice to have support!
Posted by project (Member # 46200) on :
Sorry that you're feeling rough after being well so long.
Are you herxing at all when you Rife, and are you targeting just Borrelia or also using frequencies for co-infections?
It seems some of the people that get better Rifing keep doing it every month or so indefinitely to prevent relapsing.
Posted by Pocono Lyme (Member # 5939) on :
I agree with bcb. I'd find a bio-identical hormone replacement doctor. Like LLMDs, they go more by symptoms.
They will also consider other hormones, adrenal issues.
Posted by Brussels (Member # 13480) on :
Which Rife do you have? Rife with plasma or contact?
Posted by Backagain (Member # 47644) on :
Thank you everyone! Pocono Lyme, do you have any idea how I could find that kind of doctor? I've looked a little before but had no luck.
Posted by Backagain (Member # 47644) on :
Project, I think I'm herxing. Last time I would herx and then make improvements. This time I'm not improving. I do rife for coinfections. I know I should never have stopped. Hindsight..
Posted by LisaK (Member # 41384) on :
could it just be that you are RE-infected by a new tick or mosquito or soemthing else??
Posted by Backagain (Member # 47644) on :
I don't know. I really didn't think so. Anythings possible.
Posted by LisaK (Member # 41384) on :
yes, especially since now we know it's in mosquitos and raw milk and cheese and human body fluids.
Posted by Jordana (Member # 45305) on :
Well it might not be Lyme. It could be Bart. Or Babesia. But I've been reading a lot about Bart. Bart is in *every* possible vector and it can recur.
Can you afford testing?
If not -- a short course of Bactrim would tell you Bart or Babs. A short course of doxy would tell you probably Lyme again.
Even if it is a hormonal thing you still have to figure out if there's an infection in you.
![[Frown]](frown.gif)