I thought I'd post this for the possible benefit of those who have fibromyalgia. The lyme summit and others put on were helpful to me. It started on June 20th and goes a week with an extra day for listening to all the presentations.
Posted by Tincup (Member # 5829) on :
Interesting. Do you know where/how to access it?
Posted by lymenotlite (Member # 33166) on :
Thanks for the link. I'm afraid I'm a bit late since it started several days ago. I did check it out though and saw some other interesting program coming up.
The fibromyalgia summit looks interesting except for this doctor- Jacob Teitelbaum, MD who had/has a fibro clinic in Annapolis, MD.
I won't go into it all now, but he was as bad or worse than the IDSA idiots- insisting his patients didn't and couldn't have Lyme, they had fibro.
Many actually did have Lyme- they were coming to me for answers and to find out how to get tested when he wouldn't consider it. He had a steady income from his brain washed "fibro" patients.
He makes me sick.
Posted by Robin123 (Member # 9197) on :
Well, hey everyone - why don't we go over there and post some? We can do so by making a comment in the comments section following under each speaker's presentation!
I just signed up and looked at the speaker list - they're most of the people I've already seen on other summits, doing their thing here!
So I know what they're saying already, and what they're teaching about is ok - it's decent health info. I see Jay Davidson, the host of the Lyme Summit, is speaking about Lyme disease, thank goodness.
Here's what I suggest doing - there's like 5 speakers a day, and if you scroll down from each speaker's talk, there's the comment section.
I just picked out one speaker tonite - I actually like her very much. I tied into her topic, and then educated about Lyme disease.
If you do it, also give these folks some urls for more info. I'm not sure whether summits always accept our posts if we list urls, so I've taken to breaking them up, like www lymenet org, or lymenet dot org.