I haven't been on here for a while because I've been functioning - work, some volunteering and keeping up with life in general.
I'm on a variety of supplements that haven't changed, LDN and estrogen and progesterone. I had a rapid heart rate (over 200) yesterday that I couldn't stop. Didn't want to go to the ER, but did. All tests were fine. The paramedics asked me to "bear down," and blow into a syringe without a needle on it. My heart slowed to 130 at that point.
Of course they recommended a cardiologist. I went to one some time back who had no answers. I hadn't had the rapid heart rate for about a year. It happened three times in the past right in the middle of my cycle. I thought it might be related to that in some way.
I'm waiting to talk to my doctor. May need to consult with someone else. I don't want to throw money away.
Any one else with similar symptoms? When I was very ill with lyme I had racing heart that lasted very briefly. Yesterday it was over an hour before I went to the ER.
[ 11-07-2016, 08:15 PM: Message edited by: Lymetoo ]
Posted by bluelyme (Member # 47170) on :
Resting i had heart rate of 90 now I got slow heart rate from right bundle branch block .cardio was a waste . He just said it was enlarged from inflammation and scripted colchiline ...i kept searching
My counseler had had neil spector had .the extreme tachy and they recommended a pacemaker for a 20 yr old . Then she treated with dave martz with iv abx for a year ,roceph and flagyl and others
..she is working now but still has sx ...ellie lobel had mitreal valve prolapse ...where the valve gets thick i know my nerves are effected and believe it to be bartonella and borriella doing it
so the nerve bundle that controls rate is on the outside .2 things that have helped spasming and inflammation .are iv magnesium chloride and iv curcumin ..(compounded in az )
get it checked out ,but you may need iv abx ,you only got 1 ticker .bless your heart
Posted by Lymetoo (Member # 743) on :
Don't mess around with heart issues. Get an echocardiogram, at the very least.
A heart rate at 200 is extreme. Do not wait an hour next time, please.
CoQ10 keeps my heart much happier, as does curcumin.
Posted by bellajo (Member # 28738) on :
They did an EKG with nothing unusual. I take CoQ10 and have for a couple years now.
Is an echo different than an EKG?
Posted by Keebler (Member # 12673) on :
- An echocardiogram is different. And it should be done both lying down and standing up. More detail about why (and how you will likely have to push for that) in one of the posts here, as well as other posts that may shed some light such as
Adrenal influence . . . Magnesium . . .
If you find an article with specifics for testing, assessment, be sure to look up the author for any updates on thoughts or methods.
Just wanted to add sometimes i am awakened by surges of adrenaline like they are spasming and contracting on their own ..it causes my heart to race ..it may be an angle
Posted by Keebler (Member # 12673) on :
- bluelyme, sorry to hear that and so important that you mention it. Adrenal support is so vital to the heart, hope something here helps:
Topic: NATURAL SLEEP & ADRENAL SUPPORT -
Posted by randibear (Member # 11290) on :
is a hard thumping and clunking feeling considered tachycardia? then it beats extremely fast.
Posted by Lymetoo (Member # 743) on :
Anything over 100 is tachycardia.
Posted by madisongrrl (Member # 48682) on :
You should try to find a cardiologist who is familiar with autonomic issues.
Posted by bellajo (Member # 28738) on :
Thanks everyone. I have found a cardiologist not too far away that may be helpful. We'll see what happens. In the past, it was high blood pressure spikes that no one could figure out. The cardiologist I went to laughed at me.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by bellajo: The cardiologist I went to laughed at me.
- That's horrible!!
Posted by faithful777 (Member # 22872) on :
Terrible doctor!! My husband developed tachycardia before Lyme treatment and developed an arrythmia that was dangerous.
After seeing a few cardiologist, he had a pacemaker/defibrillator implanted. The pacemaker tries to pace him out of it and if it can't, the defibrillator goes off. Even in remission, this problem remains.
Funny though, I found out I had bradycardia during treatment, and still have it now. Mine isn't as dangerous as tachycardia although during treatment my heart rate was in the low 50's.
Find a doctor that will listen. This is not something to ignore.
Posted by bellajo (Member # 28738) on :
UPDATE I saw a cardiologist that takes my insurance. He is a specialist in electrical - related heart problems. He said I had SVT. Nothing I could do to cause or prevent it and recommended an ablation. I asked about lyme and he knew about heart block. He said that it is not life threatening, but why take medication when an ablation will work. He said there are a few people that ablation doesn't help. He saw no connection among thyroid, hormones, lyme and the SVT.
Posted by Lymetoo (Member # 743) on :
I'm so happy you found a decent doctor!! I don't know much about SVT .. so do a bit of homework on it and make sure you want to do "surgery."
It's probably your best option, but I don't know!
Posted by onebeed (Member # 46620) on :
I had an ablation for extreme SVT about 9 years ago, long before I knew anything about Lyme. I was having a heart rate of 180-200 that would last for several hours. I had it several times a month for about 5 years. Went to the ER a few times. I had an ablation and it has not gotten stuck for hours like that since then. I don't regret the surgery. It wasn't bad. The SVT is much worse.
Posted by Carol in PA (Member # 5338) on :
Bellajo, try increasing your daily dose of magnesium, or maybe changing the form of mag.
Low magnesium causes cardiac arrhythmias. All the enzyme processes in the nerve cells need magnesium to function, and Lyme causes magnesium depletion. The Lyme bacteria live in the muscle and the nerve cells.
Posted by bellajo (Member # 28738) on :
Thank you for sharing your experience, onebeed. I really appreciate it. Carol, I have had problems in the past with low magnesium. I was once at the ER with very high blood pressure and had 0 magnesium according to a blood test. They gave me a magnesium IV and it helped.
When I experienced my first SVT episode, I thought about magnesium, took some, and had a fairly immediate digestive problem. I'm not saying it's not magnesium, but with the last episode of SVT, the blood test for magnesium was above the average for the range.
I'm going to talk with the doctor who has treated me for lyme. I may get a second opinion, but not sure.
Thanks again everyone!
Posted by Carol in PA (Member # 5338) on :
You get a gold star for trying magnesium!
From what I've read, the blood test for magnesium does not measure the level of mag in the muscle and nerve cells. So a good blood test might not indicate a good level in the body's cells.
Posted by Badtick (Member # 9794) on :
I had all of the above along with heart block many years ago. Magnesium helped. It all finally went away with babesiosis treatment.
Posted by Lymetoo (Member # 743) on :
This is the best test for magnesium. If it was 0, then you were probably in reality BELOW zero . (Is that possible!?)
if you have digestive upset, then get the mag glycinate or mag malate
Posted by Carol in PA (Member # 5338) on :
Lymetoo, thank you for the link to that test. Good to know where you can order without a doctor's prescription.
I had read that there was a cheek swab test to determine the level of magnesium in the body's muscle and nerve cells. Have you seen anything about that?
Posted by onebeed (Member # 46620) on :
Just wanted to mention that the ablation did not hurt near as much as going to the ER to get your heart stopped and re-started does. You are asleep during it. So don't be afraid of it. I don't have the heart issues anymore and got tired of getting extremely sick during the SVT episodes and going to the ER.
Posted by bellajo (Member # 28738) on :
thanks for letting me know,onebeed. I appreciate it. I'm waiting for a different insurance to start in January, but will likely get it done then.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Carol in PA:
I had read that there was a cheek swab test to determine the level of magnesium in the body's muscle and nerve cells. Have you seen anything about that?
- No, I haven't.
Posted by Brussels (Member # 13480) on :
Have you heard of HRV (heart rate variability) test?
It's easy to do, non-invasive, they just plug you to a computer, you lie or stand up, they can see if your ANS is working well or not.