Hello I am posting for a friend who originally had bird mites infesting her apartment and herself, 7 months ago.
Her symptoms of sensations of crawling continue, some biting on occasion, with some progress but also steps backward.
She applies things like sulfur, or Neem, or even kerosene, and gets black specks that emerge from her legs and feet (I have seen this), and also, when she bathes after these treatments,
hundreds of black specks and orange crystals are in the bath. She does not think she has Collembola.
Has anyone had these symptoms from ticks or other creatures? Thanks so much.
(breaking up the post for easier reading for many here)
[ 01-16-2017, 05:23 PM: Message edited by: Robin123 ]
Posted by SickSam (Member # 45330) on :
I've never had them, but the way you describe it reminds me of the "fibers" people with Morgellons say are coming out of their skin.
Posted by TF (Member # 14183) on :
People with Morgellon's disease often get black specks coming out of their skin. See Image 27 at the site below:
These patients also get crystals coming out of them. See Image 32 for a picture of a crystal.
Morgellon's is a form of lyme disease. So, yes, you could get these symptoms from ticks. Birds are notorious for carrying ticks.
For this reason, people who want to avoid getting lyme over again are encouraged to get rid of all bird feeders in their yards.
Very few doctors know anything about Morgellon's. Very, very few. The best doctor for your friend to see is the one who wrote the book in the link I gave you.
She could definitely tell her if this is Morgellon's. And, she could treat her for it.
Posted by lookup (Member # 44574) on :
Also there is a new book out on it: Morgellons: The legitimization of a disease: A Factual Guide by the World's Leading Clinical Expert Paperback – October 22, 2016 by Dr S
Hope that has some helpful info in it. All the best to your friend!
(editing out name of LLNP)
[ 01-10-2017, 02:08 AM: Message edited by: Robin123 ]
Posted by windingshores (Member # 48600) on :
Thanks folks. She has been hoping it is not Morgellons. It is possible the bird mites brought something in with them, including Lyme.
I know that Morgellons sufferers are often desperate. And that few doctors accept or understand it. Thanks for the suggestions and the link.
Any other possible cause that anyone has run into?
Posted by bluelyme (Member # 47170) on :
mites can harbor borrriela and bartonella ,morgellons it thought to have roots in bartonella and fungus with borrelia and filarial , if its has a exo skeleton borax or d.e. may be of use .
i have bartonella bacilliformis and it has created acne vulgarus years ago with the black specks you describe under neath skin , they started coming out with hp iv and treatment with bvt and abx
Posted by windingshores (Member # 48600) on :
Ok this is interesting. So both my friend and I were infested by bird mites from starlings' nests, she in California and me in Massachusetts. Her infestation started 7 months ago and mine started 6 months ago.
I got rid of all my possessions and moved around all summer and am now in a bare place with blow up bed and plastic chairs.
She is living with husband and son and furniture and carpet etc. and cannot do what I have been doing. She still has hundreds of black specks.
I am improving quite a bit but still get some bites and some crawling sensations at night.
I had Lyme disease in 2001 and was treated for 6 years. At some point, I had to decide to accept whatever symptoms I was left with and stop treatment. I am wondering if this situation is similar.
This is worse in some ways because it feels contagious and we are not sure if it is. I cannot have my daughters stay with me, which is hard.
Anyway, bird mites are in a filthy nest and then we saw them go into our pores. Ugh. Imagine what they are carrying, yes.
So I have been suspecting that the mites did indeed leave after a month, just as all the experts said, but left something behind. the question is what? and how to treat?
Believe me we have both tried everything. The list would be very long. She even recently tried kerosene.
I am considering seeking antibiotics. What are hp iv and treatment with bvt and which abx?
(breaking up the post for easier reading for many here)
[ 01-16-2017, 05:26 PM: Message edited by: Robin123 ]
Posted by TF (Member # 14183) on :
"Bird mites are known vectors of various pathogens in birds, livestock and humans. They can transmit disease causing organisms to the host, such as the virus of St Louis Encephalitis. The reports of human disease attributed to bird mites are rare, but they do occur.
There have been reports by some people of strange fibers on the skin and Morgellons symptoms that started after a mite infestation, but the link is vague and requires further research. Some with a long term mite infestation will test positive for Lyme disease.
It is hoped that at some point the CDC or NIH would take a closer look at human parasitosis and acariasis attributed to mite infestation."
"Some bird mites have been found to carry viral or rickettsial pathogens, but their significance as a vector for human infestation has not been demonstrated."
(breaking up the post for easier reading for many here)
[ 01-16-2017, 05:27 PM: Message edited by: Robin123 ]
Posted by windingshores (Member # 48600) on :
There is very little information on mite infestation of humans. Jane Ishka wrote a book about her "Year of the Mite." She is a biologist and located one researcher, only one.
Most experts, and I have consulted academic ornithology, entomology, infectious disease, and veterinary science, say that bird mites hang around for a maximum of 4 weeks and then leave human hosts, leaving bites but no infestation behind.
Mites are actually tiny ticks by the way.
I resisted the conventional story but am now thinking that the mites DID leave, and left something behind. But what?
Are the crawling sensations neurological residue? Or is some sort of organism living near nerve endings, under the skin?
I cannot see anything myself (my friend sees hundreds of black specks, but I have no such symptom). It seems unlikely anything actually IS crawling. Can I spread this to anyone?
Noone here can answer these questions. As a long time Lyme sufferer and breast cancer survivor, I can easily say this is the worst health condition I have experienced. But no one knows about it and it is like having Lyme in the early 60's.
(breaking this up for easier reading for many here)
[ 01-16-2017, 05:28 PM: Message edited by: Robin123 ]
Posted by windingshores (Member # 48600) on :
What are hp iv and treatment with bvt and which abx?
Posted by windingshores (Member # 48600) on :
bvt is bee venom treatment? hp is heparin?
Posted by Catgirl (Member # 31149) on :
You might try parasite meds. Morgellons popped up on biofeedback for me a few years ago, yet nothing showed on my skin. I wonder if the reason is because I treat parasites. Have you tried diflucan?
I wonder what Dr. K does for morgellons patients?
Posted by bluelyme (Member # 47170) on :
Ya i was going to say alinia and ivermectin maybbe of use ...hp =h202 sent you a pm ..consider rife for both(lyme bart ) and to keep cancer at bay
Posted by Lymetoo (Member # 743) on :
Just wondering .. what were you guys doing handling birds' nests?
I'm sure a doctor SOMEWHERE can help you two.
Posted by TF (Member # 14183) on :
You don't have to handle a bird's nest. If the nest is near your bedroom/bed, the mites will sense you and come after you.
"After being alerted to the diagnosis of bird mite infestation the author recalled that there was a starlings' nest under the eave of the roof about 3 metres from the bed, and that the young chicks had recently left the nest (as judged by the cessation of squawking that had accompanied the morning feeding of the chicks in the previous week). When the wall near the site of the nest was examined carefully, it was found to be covered with hundreds of tiny crawling animals of the same size as those found on the skin. They were collected, examined and found to be the same as those collected from the skin."
I think I've also seen that black specks coming out can be heavy metals. You can probably look it up.
Posted by Lymetoo (Member # 743) on :
TF .. That is so gross!! EEK!
Posted by Way2Go (Member # 49960) on :
Hi
I get the black specks coming out in bath water, also when I use my foot spa - warm water draws them out - also sometimes they come out of my fingers.
I also get the orange crystals in my bathwater and small orange "fuzzballs" and small grains of "sand" but white in colour, appearing on my skin, and tons of other stuff you don't want to hear about
I find that taking potassium permanganate baths helps a lot!
You mix a few grains of lab grade potassium permanganate in a glass (or ceramic) jug NOT metal and add water - it's a strong purple - and you add a little of that to the bathwater so that it goes pale pink. Get in the bath at once, soak for around 20 minutes or until the water turns brown or (as can happen if you're detoxing) green. You can shower it off if you like - I don't as the feel is soothing to my skin.