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Posted by paleogal (Member # 45991) on :
 
My LLMD thinks that I might/probably do have mold issues in addition to Lyme and co. We're testing C4a right now and I'll probably be on cholestyramine soon.

However, I'm trying to figure out if my current place might be where I was mold-exposed, or possibly a place back in 2007.

I ask because I think that apartment was gutted and "remodeled" before we moved in in August 2007, and the migraines I get started in July 2008 - would mold take that long to cause problems?

I do also have TBDs that cause migraine, so it could just be those flaring, but I'm trying to figure out how long this mold thing might have been going on. Thanks for anyone's thoughts.
 
Posted by Robin123 (Member # 9197) on :
 
Hi - you could try asking Scott about mold at www.betterhealthguy.com - he's good about getting back to people.
 
Posted by bcb1200 (Member # 25745) on :
 
Yes, it could take that long.

Mold can take a while to accumulate in the body if you are one of 24% of American's whose bodies can't process mycotoxins. Instead of tagging and excreting, they build up and accumulate.

Best way to see if it is your living space is to do an ERMI test from Mycometrix. Send a Swiffer with dust samples taken from various spots in your home and see what the results are.

I think many people here have a mold issue and don't know it.
 
Posted by WPinVA (Member # 33581) on :
 
Funny, I am dealing with this too. It's a rabbit's hole.

I agree with the rec to do the ERMI test. They aren't perfect though - no tests are - so you may want to also hire a mold inspector.
 
Posted by paleogal (Member # 45991) on :
 
OK - that's three votes (Scott at betterhealthguy, bcb1200, and WPinVA) for the ERMI test and two for the mycometrix specifically. I'll give them a call on Tues to order the dust mold test.

I have this deep fear I'll never get well from mold because I have packed on 70lbs of weight that is probably loaded with toxins and spores and who knows what else. So as I do get better, and lose the weight, I'll keep feeling crummy until I get get rid of all that. [Frown]

This really does feel like a bottomless, endless rabbit hole. And I'm only on year ~5 of this disease. I can't imagine how those of you feel who have been fighting for decades.
 
Posted by Catgirl (Member # 31149) on :
 
You might also consider doing the nasal test from RTL. It's expensive but it solved part of the riddle for us (sinuses require different treatment).

https://www.realtimelab.com/environmental-inspectors/mycotoxin-testing/
 
Posted by paleogal (Member # 45991) on :
 
Catgirl - can you tell me more about what nasal testing would tell me that would be different?

I did just spend the last month using the BEV spray for MARCoNS - is this different?
 


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