In the next post below is a request for women (over 18) to take a survey. You do not have to be on pain killers to respond (I asked.)
I did the survey to check it out and it is just a bunch of typical study questions about your drug use for pain (not antibiotics thankfully) and if you are depressed or anxious, etc.
Nothing too personal or invasive. You only share one piece of personal identifying info- and like always it asks for it at the end of the survey.
BUT, it is only if you want a chance to win an Amazon gift card. Then you just need to give them your email address which even the survey person can’t see.
If you don’t want a chance to win (I like you best if you don’t- better chance I will win), the survey answers you provide will still be counted.
The lead investigator is Lyme literate, but the study is not just for Lyme patients. If I remember right there are no Lyme related questions there.
Posted by Tincup (Member # 5829) on :
From lead investigator...
Hello,
I need your help as I attempt to address the current opioid overdose epidemic in the United States---specifically among women.
In this era, we all know women, and most have had PAIN. Please take the survey if you qualify, and PLEASE, PLEASE forward via your list-serves and various networks.
Please share with people in your network and consider participating. If you decide to share the link to the survey, please use the following link:
Your support in this effort is greatly appreciated. More information about the survey is noted below.
Thank you very much, Jolaade Bademosi
For a chance to win a prize ($$$), please take the
PAIN AND PAINKILLER USE SURVEY FOR WOMEN
IRB PROTOCOL NUMBER: 17-104
The Research Group on Disparities in Health (RGDH) within the Department of Health and Behavior Studies at Teachers College, Columbia University, in New York, New York is conducting a study to learn more about the experiences of women with a history of pain and being prescribed an opioid/pain killer medication by a medical provider.
• Participation in this online survey is limited to the first 200 participants
• Participation in the study takes about 35-45 minutes
• After 200 people complete the survey, all those who took the survey more than once will be eliminated from study participation.
Then, the Webmaster will run a program to randomly select 3 e-mail accounts without in any way linking your identity to the survey results.
The 3 e-mail accounts will be the winners of a $100 bar-coded gift certificate for use on www.amazon.com
• Please use the link below to review the informed consent form, learn about your rights as a participant, and continue on to take the survey.
NOTE: Participants have a 3 in 200 chance of winning a $100 bar-coded gift certificate for use on www.Amazon.com.
THANK YOU FOR YOUR PARTICIPATION!
JOLAADE BADEMOSI, MA, Doctoral Candidate, Department of Health and Behavior Studies, Pre-Doctoral Student, Research Group on Disparities in Health, Teachers College, Columbia University, Box 114, 525 W. 120th Street, New York, NY 10027; [email protected]
BARBARA C. WALLACE, Ph.D., Director, Research Group on Disparities in Health, Professor of Health Education, Clinical Psychologist, Department of Health and Behavior Studies, Teachers College, Columbia University, Box 114, 525 W. 120th Street, New York, NY 10027; [email protected]; Study Contact Number: 267-269-7411
Posted by Keebler (Member # 12673) on :
- Though this one looks much more credible than most, it's always a good idea to confirm the names listed are indeed with their academic institutions and they are, indeed, doing this survey.
With many of the chance to win or some kind of free gift for filling out a survey, although your email can't be seen by the worker,
your personal email address is often SOLD to the company paying for the survey and then used for their marketing forever and ever. With a personal email address, they can also find out much more about anyone.
And, if a survey event such as this is connected to a university, often a pharmaceutical company - or an insurance company - is paying for the work and will own the email addresses. I'd want to know who has ordered it / will be using the results.
Pharmaceutical companies pay for most of the research at colleges (by covering professors' salaries / supplies and such. Just helpful to know. -
Posted by Tincup (Member # 5829) on :
Keebler, that may be true.
I have just emailed the investigator concerning this possibility and will post a response when I get it.
Thanks for pointing that out.
Keep in mind too that if you are that uncomfortable, you don't need to enter to win a gift card, meaning you won't have to share your email address at all.
ONLY if you want a chance to win a prize do they ask for the email address because if you win they have to be able to contact you.
You can always complete it for the main purpose, which is to advance the science to help women.
Posted by MichaelTampa (Member # 24868) on :
Just to be clear though, on the same track of what Keebler said ... from the researcher's perspective, perhaps the purpose is to advance the science to help women. But, if funded by pharmaceutical company, then they will see the purpose differently, to help them make money (develop a new drug, defend continued use of their current drug, ...).
Posted by Tincup (Member # 5829) on :
You are right. We do need to "check the sources" because we've been burned numerous times in the past. Glad you are thinking in that direction.
Here is the response from the lead investigator.
"Thanks for your email. To address your comments, this study has been approved by the Institutional Review Board.
Ethically, it is not possible for email addresses [to be] sold to anyone else. Thus, we have taken great precautions to ensure the confidentiality of email addresses.
In addition, participants do not have to disclose an email address if they do not feel comfortable.
This study is for a doctoral dissertation (as mentioned in the informed consent); therefore the purposes of the study are for academic research.
That being said, participants have every right to not take the study or to withdraw participation from the study at any time for any reason.
I hope this answers your questions, please feel free to reach out with any questions or concerns. I appreciate your comments and feedback!"
Posted by paleogal (Member # 45991) on :
As someone who recently completed a doctoral dissertation (thanks to Lyme treatment giving me my brain back), this student probably is just really focused on getting data for his or her research, and not on making a buck selling emails.
Also, there are more and more studies coming out that indicate women are prescribed significantly less pain medication than men, are more often given psych referrals, and are generally less respected by doctors. So the more data the better!
Posted by Tincup (Member # 5829) on :
Thanks for sharing that Pale.
And congrats on completing your doctoral dissertation! How wonderful you are!