I am starting out tomorrow on Alinia for Babesia Duncani. I had to switch from Mepron/azithromycin for various reasons. Along with the Alinia, I'll be on rifampin, doxy, and Ceftin. Please share your experiences with a Alinia... the good and the bad. Thanks!
Posted by k84 (Member # 32738) on :
Alinia hit something (probably some parasites), but never managed to get Babesia Duncani under control. I have gotten much better mileage out of Bactrim, or Coartem/Primaquine as a therapy.
Note: Us with Babesia Duncani have a much tougher strain to get rid of compaired to those with Babesia Microti.
Posted by BartHeart (Member # 49759) on :
I agree with k84, haven't found Alinia to do much for my babesia duncani. It feels like it's doing something, but it didn't seem to be that strong for b. duncani. I just started IV clindamycin.
Posted by HW88 (Member # 48309) on :
k84, do you take Bactrim for babesia?
Sorry, I have no experience with Alinia.
Posted by foxy loxy (Member # 47053) on :
I am having a VERY hard time dealing with mine... I am now on just about every med there is. Mepron Clindamycin Azithromycin coartem artimesinin cryptolepis
But, what seems to have bee really hitting it is l arginine!! WOW, did it ever give me more air hunger... I am taking l arginine 8 grams daily.
My opinion is that it might now work for everyone, but Stephen Buhner claims L arginine alone can really kill babesia and possibly eliminate it.
Man, this stuff is TOUGH! Oh, and Alina didn't help me, but it has helped others. I don't think it kills babesia much.
Posted by k84 (Member # 32738) on :
quote:Originally posted by HW88: k84, do you take Bactrim for babesia?
Sorry, I have no experience with Alinia.
Yes, I have taken bactrim for basesia after it became resistant to Mepron and zith.
I managed to keep Babesia duncani under control for 7 months with large daily dose(s) of bactrim. Then I had to stop bactrim due to gut issues,and within a week babesia was rip roaring back.
Back in 2014 I threw a 1280 IGM for babesia duncani through Igenex, so that's as positive as one can get for having it.
Posted by Catgirl (Member # 31149) on :
Foxy lady, arginine also feeds protmyxzoa rhumatica (FL1953) and can cause increased air hunger (something to consider).
Posted by foxy loxy (Member # 47053) on :
Hey thanks Catgirl!
That IS something to consider. I did a quick google, and it looks like Dr. Fry is not certain that arginine feeds proto, BUT.... hmmm never checked to see if I had that infection.
I always assumed I didn't because, I don't respond to ivermectin or other anti parasite meds like alinia...
Thena again... not responding much to anything! Except more air hunger from arginine.
I will say it isn't getting worse.. if anything it does seem to be easing up.. I dunno!!!!!!!!!!!
Posted by ukcarry (Member # 18147) on :
Just a note about proto: betterhealthguy (Scott) reports that Dr Fry is now thinking that protomyxzoa rheumatica is funneliformis mosseae, which is more of a fungus (rather than a protozoa). He also reports seeing a type of algae in some patients' blood.
[ 02-02-2017, 04:49 PM: Message edited by: ukcarry ]
Posted by foxy loxy (Member # 47053) on :
Wow, thanks for that info ukcarry! Your always full of good info!
That is an interesting slant on things. Hmmm wonder what nitric oxide and arginine does to fungus?
I thought about getting tested, but it seems like nobody knows what to do with it anyway!
My brother in law has it and lives a normal life on ivermectin. I have a neighbor with it too and he struggles a lot more.