Some of you have been following my journey since I got a puncture wound in September, which gave me a mild case of tetanus and re-activated my babesia. I'm here to post an update for you. I also posted this update on the mild hyperbaric thread, here: http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/125201/23?#001732 - since most of my questions at this point relate to hyperbarics.
I wanted to also post the update on a separate thread, though, because I don't want to hijack the mild hyperbaric thread. If you want to respond to me about my issue in relation to hyperbarics, please use the above-linked thread.
If you want to respond to me with information unrelated to mild hyperbaric, please do so on this thread here.
Thanks for your help and I'm happy to "see" all of you again!
Bryan Rosner
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UPDATE feb 26 2017
Hello everyone!
I've been lurking here for a few weeks now.
Some of you may have read of my recent troubles. I had been feeling very good for a number of years until a puncture wound on my foot in September. This wound gave me what I believe to be a mild case of tetanus. I began to have muscle spasms and tightness for the first time in my life, almost immediately after the wound. I was in and out of the hospital several times last year.
The trauma also caused my Babesia to flare. I hadn't had symptoms of Babesia for years. Air hunger, hot flashes, headaches, fatigue. The symptoms were immediately recognizable to me as Babesia. I had long battled Babesia back in the early 2000's.
Fast forward to today. While I seem to have improved and stabilized a bit, I'm still not out of the woods. My foot still hurts and burns like crazy, right where the wound is, and in surrounding tissue. I've even noticed that the hurting and burning has gone up my ankle and into my leg a bit, which is terribly scary. However, all of my tests for osteomylitis and other serious infections have so far come back negative. Plus, tetanus isn't a highly invasive bacteria, so it wouldn't make sense that tetanus is causing this.
So, knowing that tetanus is averse to oxygen, I have been using a prescription to obtain medical grade tanks of oxygen and using a mask I have been breathing oxygen periodically, about once every day or every other day for a period of 20-40 minutes.
This is where you guys come in. I need your help!
There's no question that breathing this oxygen has helped me. But it has also seemingly made the babesia symptoms considerably worse - air hunger, shortness of breath, hot flashes, fatigue, etc.
So on the one hand it is helping me but on the other hand it is hurting me.
I don't want to get into the whole debate about HBOC flaring Babesia. I've read a few people on this thread who say it has flared their babesia, and a few people who say it hasn't. Do we really know for sure? I don't think we know for sure.
Phoiph has been kind enough to call me and speak with me. I believe her hypothesis that we need to get the immune system back online, instead of chase bugs, is a very valid approach.
One strange thing that has been happening to me is that breathing the oxygen has made the pain in my foot and lower leg WORSE, not better. This leads me to think that whatever is in my leg, is Babesia perhaps!? Why else would it get worse? Unless the oxygen is increasing inflammation and causing my body to fight more?
I'm considering getting a chamber because as I mentioned, the breathing of oxygen has helped me in some ways. But I'm also worried that it has seemed to make Babesia symptoms worse, and also has made the pain in my leg and foot worse.
Would love any input or ideas. I've tried a ton of things since September, already, but I'm open to new ideas, especially new analysis of what the heck is going on in my body, if anyone has any guesses!
Thanks in advance for your help and ideas.
Sincerely,
Bryan Rosner
Posted by sixgoofykids (Member # 11141) on :
Once I felt better after photon treatment but still had fatigue and air hunger from the babesia, I just drank a high quality tonic water a couple times per day and it was enough to keep the load down so my body could fight it off.
I wouldn't say the tonic water was strong enough to kill it all, I think my immune system did, but it certainly gave me relief. I liked Fever Tree best. Q Tonic is also good. Sometimes when I was away from home I drank just regular Schwepps.
Posted by Catgirl (Member # 31149) on :
Ondamed is great for healing things.
Posted by dan67 (Member # 20344) on :
Thanks goofy. There appear to be a number of choices. Which did you prefer?
Hi Dan, gosh, I had no idea!!! I just used the one with the yellow label, the premium. They're tiny bottles and I drank two per day.
Posted by BryanRosner1 (Member # 49076) on :
Six, most of these appear to have sugar added. I don't know about you, but I hate drinking sugar soft drinks. Did you find any sugar-free?
Posted by sixgoofykids (Member # 11141) on :
Bryan, I know, that's the downside. But at least it's cane sugar and not corn syrup. I don't drink sugary soft drinks either.
Q Tonic has agave, but I'm not an agave fan either.
Posted by sixgoofykids (Member # 11141) on :
It's only 16 grams of sugar per bottle vs 65 grams in a Coke.
Posted by BryanRosner1 (Member # 49076) on :
Yea, well I've worked so hard to get rid of sugar from my diet, I'm not sure I want to drink liquid sugar!
But I think Nutramedix Quina product is pretty much the active ingredient in tonic water, anyway? Six, did you ever compare taking Quina, with tonic water?
Posted by Brussels (Member # 13480) on :
Glad you are feeling better.
If you do think it's babesia, why don't you try Artemisian annua, whole herb in decoction?
This was extremely powerful for me, sort of unbearable herxes, I had to go very very slow (sipping MINIMAL amounts).
The hardest herxes I ever got were while treating babesia.
Have you tried also MSM in powder? MSM was the only thing that added to my cocktail of binders, could make air hunger from babesia better.
I took about 1 or 2 teaspoons, full, in water, and drank that many times a day. It really helped me with babesia.
Another thing is cryptolepsis, in tincture.
For cysts, two things helped me: either white cardamon in powder, or Noni tincture (not the juice).
If you'd like to hit babesia only with herbs, and your immune system is still weak from tetanus fight, Buhner says: herbs will work only in COMBINATION.
Right combination, right amount, right intake frequency. That is how herbs work, that's how the Chinese have been using herbs for MUCH longer than our modern science uses drugs.
Alone, herbs may be too weak (unless your immune system kicks in and helps). In combination, in my opinion, they are MUCH better than drugs because they do much more than only killing.
Posted by BryanRosner1 (Member # 49076) on :
Brussels, I've read many of your Babesia threads, and in fact I put my Babesia into remission years ago with your help!
Now, today, I have lots of Babesia herbs - all of the ones you mention. And they DO work to put Babesia down. The problem is, whenever I do oxygen, Babesia comes back. I could just stop the oxygen but I feel it may be necessary to help my body recover.
So it is kind of a Ketch-22 situation. Any thoughts?
Posted by MannaMe (Member # 33330) on :
Are you rifing for Babesia? Rifing was helpful for my hubby.
Posted by Lymetoo (Member # 743) on :
Good to hear from you, Bryan. Hope you find the answer to this very un-fun riddle.
Posted by sixgoofykids (Member # 11141) on :
I didn't have any luck with quina. Maybe a stronger quinine would be similar to the tonic.
I've never had candida issues and don't really have sugar trouble (I don't eat much of it and don't crave it), so the sugar was a non-issue for me. If sugar was an issue for you, I totally understand wanting to avoid it.
Posted by BryanRosner1 (Member # 49076) on :
So the pain and burning in my foot has risen up into my ankle, and my ankle is now a bit swollen and tender. Is this osteomylitis? What do I do?
Posted by foxy loxy (Member # 47053) on :
Hey Bryan,
Interesting you bring up the Babesia and mHBOT thing again...
I too have the exact same classic babesia signs that you have... (minus the foot thing of course) but hot flashes, occasional night sweat, and AIR hunger.. (lots of that)
Before mild hyperbaric, I only had veeery occasional night sweats. When I started mild hyperbaric, I right away flared with what seemed was a Babesia flare...
Since faithfully diving for over a year, I would say my babesia infection is WORSE than ever! [Frown] I am so frightened that the mild hyperbaric has held me back!
I developed air hunger and my fatigue worsened. I recently (and reluctantly, I actually like diving) decided to quit hyperbaric and see what happens. I have been off it about a month and I so far I haven't worsened.
I did start high doses of arginine two months ago which made my air hunger worse,(but helped Sensitive hearing PTL!!!) and It seems l arginine and mild hyperbaric work in a similar way, by creating nitric oxide. I have been thinking about quitting that too... I don't knoooooooooow!!!!
I certainly don't want to be antagonistic... It obviously doesn't harm everyone with babesia as we know by Dear Phoiph and others... but what IF?? There are some people it DOES?!!!
Posted by foxy loxy (Member # 47053) on :
BTW!! SORRY to hear about your foot! That sounds very scary... I wish so much I could help. I am sure you know about everything I am on for babesia.
I have read black seed oil and turmeric are good inflammation, bacterial, viral, fighters. Couldn't hurt to add it to your regimen if you can afford it?
Posted by BryanRosner1 (Member # 49076) on :
Foxy, thanks for the info. Did you make other gains doing mhbot for a year? Other symptoms improve? Breathing pure o2, I feel Babesia has worsened but other symptoms may have benefited. Not sure if it's a worthwhile tradeoff though...
Or perhaps, diving with just pressure and not o2 would be a compromise?
Posted by Brussels (Member # 13480) on :
Bryan, I was just wondering...
When you add oxygen, it is like a change in the whole milieu of your body that is 'killing' pathogens, to my understanding...
A little like: you give your body good fuel (as oxygen is life's fuel) and then your body starts doing what it couldn't do before, for lack of fuel.
And also, adding oxygen is also changing the internal pH of the body, if I understood the whole thing well.
so it's a BIG change in the internal milieu.
So just think what could be happening: we all have LOADS of dormant pathogens, ALL LYME COINFECTIONS never go out, like Borrelia never really goes out of our bodies.
They are there, waiting for their next show. A weakness, and the show starts again.
Like your tetanus story. Show a weak point, lower your immune guns ,then: "Hello guys, here are us again: borrelia, bart, babesia, mycoplasma, and all the rest for the show."
So just suppose that now, finally with oxygen as fuel, as a pH 'alkalinizer', your immune system got a kick in, and it is going after what it COULDN'T go before.
I have seen that so many times for me. The moment I find a GOOD TREATMENT, which means, the internal milieu changes, or I give fuel to something, good nutrition, high voltage (which is an amazing fuel too), well, my immune system goes for the big cleaning.
When it happens, MANY dormant pathogens get activated BECAUSE my immune system is going after them.
Before that, for lack of energy, my immune system couldn't go after them, so dormant pathogens remain calm, waiting for their next opportunity to open their theater season.
Have you tried heavy metal detox? Pathogens get mad at that. You chelate metals off, meaning, you take off a huge burden for your immune cells, then you'll see a wake up of so many bugs you never thought you had, specially candida and fungi.
Then you think: oh, chelation is making me sick. But no, in fact, it is the healing treatment to do, the only way out.
I do suspect that bee venom therapy, high magenetic plasma therapies, chelation, oxygen therapies, extreme high antioxidant therapies, extreme diets or fasting, ...
...they all go after the basic problems of our health, and then if you wake your immune system again, it will go after dormant pathogens.
They go and start killing them. The moment pathogens feel attacked, they fight back in rage.
You do think: they are winning again. But no, they are losing!!
They get so angry because that is THEIR LAST BREATH.
All animals, when they know the end is close, will use their WHOLE energy to fight back and keep alive.
So do pathogens.
Our immune system is so intelligent. So smart, wise, even.
It's the only way out of chronic infections, in my opinion. So maybe, you're just on the right track.
Keep on doing oxygen, add some babesia killers PLUS BINDERS (otherwise, toxins will make you go backwards again).
That's just a guess, though. The problem with lyme or any chronic condition is always that:
improvement ALWAYS comes with big drastic changes, ...
...and we keep wondering if we are going totally to the good path or totally to the wrong path.
I can ask your 'saliva' if you allow me... Posted by foxy loxy (Member # 47053) on :
Bryan, my Dr. does a fair amount of mild hyperbaric therapy. He did admit to me that it seems the hyperbaric doesn't help Babesia, (I take that to mean directly, obviously for some it did) for whatever that is worth...
My primary symptoms are odd nerve sensations inside my head and nose. I didn't see any improvement that I can definitively say. In the beginning, it almost seemed like it was helping.
I had increased dreaming, and seemed like it may have relieved a certain aspect in my head... but then it kinda petered out and nothing else happened.
Because of the increased babesia symptoms after my first half hour dive, I only did the pressure for a while. I didn't react as badly with that, but not sure I saw improvement either?
Oh, and my dr did say that he often sees some sort of improvement in his patients that use hyperbaric. He thinks it can keep lyme infection down without antibiotics. That's a pretty powerful thing to say!
I will say, I did go off lyme antibiotics and didn't crash... but they also didn't seem to be improving me either...
I hope my unbiased viewpoint is helpful... I am experimenting myself!
Oh, I also had a neighbor that tried mild hyperbaric for about six months. He thought it made him worse, and quit and improved some.
I don't know! There are a LOT of variables in here. I used antibiotics and antimalarials in conjunction, so maybe that's the reason hyperbaric didn't work for me. Maybe I didn't have enough faith to let it be my sole therapy!
If anyone has any advice or wisdom on my babesia problem, I am all ears and am VERY open minded to suggestions...
Posted by BryanRosner1 (Member # 49076) on :
Foxy, to avoid our double convesation here, maybe we should continue on the mild hyperbaric thread since our conversation seems to be focused mostly on mHbot.
BRUSSELS, great info. Yes, I have wondered the same thing you are saying. I've done a LOT of heavy metal detox, over the years. I feel at this moment, it would be too much for my body.
I sent you my saliva a few months ago, remember, and you said it was one of the highest worst you've ever seen, remember? Ugh.
I do want to keep going with oxygen but Babesia is so big and mean, with lots of emotional symptoms, it is very hard to continue. I need to make some decisions soon though. Still feeling pretty confused and discouraged, especially since foot seems worse, infection possibly spreading up into ankle.
Posted by Brussels (Member # 13480) on :
Which foot is it, right or left ?
If you tell me which foot, I can try to guess something from here (it's really just a guess).
Is it swollen?
If yes, what are you doing for your kidneys or lymphatic system?
Posted by map1131 (Member # 2022) on :
skyking, have you considered that you actually picked up another pathogen when being treated in hospital/medical office?
Have you tried rifing for strep and staph to see if you get any hits in that festering sore?
I'm sorry this injury has dragged you back down.
Pam
Posted by BryanRosner1 (Member # 49076) on :
Brussels, left foot. Yes, it is very slightly swollen. Not doing much for kidneys or lymph at the moment.
Map, good idea. Any good staph frequencies? Maybe I'll pick up Char Boehm's.
Posted by Brussels (Member # 13480) on :
If you want to do skype, I'm there.
If not, I need your help:
- hold your adrenals (put your fingers or one palm on your back, exactly at the spine, height of nipples). I hope you are flexible enough for that.
If not, you got to push against a door knob or something alike on the adrenals.
While you hold or push the adrenals, you got to touch the K27 (it's exactly on the collar bone). Better if you can tap that point. What I do, I also make a fist, and hit slowly on the collarbone, a bit like a gorilla....
Meaning of this all: your adrenals are FLAT and are so bad that they block your regulation.
I need your regulation open to make questions. If you do that NOW , I may 'see' it from here.
I need you tapping for about 1-2 minutes.
if you are there, either enter skype or send me a message here.
Once your regulation opens, I can try to make my guesses better! If they are close, I get zero answers....
Posted by dan67 (Member # 20344) on :
Brussels I just did that and I did seem to feel something. What's next?
Posted by Way2Go (Member # 49960) on :
Hi Bryan Sorry to hear that you're back on the merry go round Loved your book s and found them very helpful Have you tried the Bioenergiser ionising foot bath? Or chiropractic? My chiropractor saved my life when I had an embolism. I use the Bioenergiser on his reccomendation and it definitly improves circulation and eases pain In my opinion.it also fights infections and parasites especially these strange new half lyme half filaria creatures Maybe it would help you? Best wishes
Posted by dbpei (Member # 33574) on :
Bryan, I have really enjoyed your books. I am sorry to hear you are having a rough time. I think it is great that you are reaching out here to others on Lymenet. I know how frightening all of this can be.
You have mentioned fear of osteomyelitis. Has any type of 3D scan been done to determine whether this might be a possibility? Are there any blood tests to determine this as well?
If the bone is infected, would surgery be the only option? Could IV ABX be of any help?
Posted by Brussels (Member # 13480) on :
Hey Bryan, we're on different continents, so a bit of time lag problem....
Continue doing the tapping at least 3x a day. It won't take you long, just a couple of minutes a day.
this is acupressure. It works as well as acupuncture, but you have to keep doing, so that your regulation is open.
Then I can check you from here.
The tapping will help your adrenals (they are in trouble, it seems), so keep doing that 3x day, anyway.
Wait a bit, I'll get your saliva again to tell you what I found.....
Posted by Brussels (Member # 13480) on :
You're open!
Very fast: - After you did the first thing above (hold the adrenals + tapping K27) = first treatment (this treats a bit your adrenals)
-you gotta tap K27 alone (tap for 40 seconds 3x day, use your fist like the gorilla): kidney meridian is in big trouble = 2nd treatment (this treats your Kidney meridian)
- small intestine also in big trouble: hold the belly button area with one hand, while you tap under the arm, side part of your body (exactly at the nipple height). Same time (40sec, 3x day) = 3rd treatment (this treats your small intestine)
- the 3 things above will help regulate a bit your body, I think.
- hold the wound on the L foot with one hand and connect your other hand at your spine, lowest part (just 2 fingers above your tail bone). You keep your hands like that, just connecting, for about 1-3 minutes.
Then if you feel like, you can tap the spine (never stop holding the wound^while you treat the spine).
There seems to be some connection between the left foot to a blockade in the spine (I don't if that makes sense to you). See if this helps a bit your L foot.
give me some time to find out which infection might be there in my nosode box... Babesia comes negative, as well as borrelia.
Posted by Brussels (Member # 13480) on :
OK, I'm very tired, it's almost 1 am, so I'm not totally sure what I got:
Mycobacterium tuberculosis on the L foot.
I can't find tetanus there (it doesn't mean there isn't). It's just that it is not coming in the tests.
what comes is the sanum product called Sanukehl Myc D6.
You can do your own search. It's fully homeopathic, so no side effects.
It's testing about 10 drops 2x day, under the tongue, do not brush your teeth nor eat or drink 10 minutes before and after intake.
I gotta re-test tomorrow, when my energy is better (now I'm really tired).
If it is TB, you gotta treat this, and well.
Mine didn't go down with Sanum only, I needed other things.
I gotta go to bed now. Just let me know if you tapped already, and how did it go.
Posted by Brussels (Member # 13480) on :
If I'm right about the tapping above: one thing is clear, both liver, kidneys are overcharged meaning = you are loaded with toxins!!!!
Any body full of toxins will not heal, no matter what you do.
So take your herbs or supplements to treat the liver and your kidneys too, and do the tapping on top. No drugs, only natural herbs or homeopathy, or nutrition as medicine.
Posted by Broxin (Member # 52040) on :
Bryan, how are you doing? Any updates in general?
Posted by BryanRosner1 (Member # 49076) on :
I've been doing extreme mold avoidance for 2 years and it has given me back my life. It's crazy and hard to believe but there are some fascinating mechanics at work. Check out the Facebook group practical mold avoidance for more info!
Posted by Broxin (Member # 52040) on :
Oh, very interesting. Are there test kits out there where i can send in some dust from my home to check for mold?
Posted by BryanRosner1 (Member # 49076) on :
No, it's a different paradigm. You have to do A "mold sabattacal" https://youtu.be/1bUFrFMGdNs Posted by D Bergy (Member # 9984) on :
Hello All.
So what is your current status Bryan? Hope you got a handle on your set back. These posts are a bit dated.
Dan
Posted by Marnie (Member # 773) on :
Look at potassium permanganate foot soaks - 20 min. Purplish colored water. Will temporarily stain your skin brown.
Google: potassium permanganate and tetanus...for starters.
Yes, avail. OTC. USE TOPICAL ONLY!!!
I had to do the foot soaks daily for about a week when I was a teen with a severe athletes foot (fungal) infection from a public pool. it really worked.
Posted by BryanRosner1 (Member # 49076) on :
Current status - in remission with extreme mold avoidance And ten pass ozone
Critical to keep your bowel healthy to deal with mycotoxins (toxins from mold).
Remove mycotoxins:
Numerous studies have demonstrated that many LAB (lactic acid bacteria) species can remove mycotoxins.
Removal efficiency ranges from small amounts to almost complete removal.
The most efficient species are Lactobacillus rhamnosus, L. acidophilus, L. plantarum, L. lactis, Streptococcus thermophilus, and Bifidobacterium bifidum.
Each species acts differently and on different mycotoxins.
The most versatile seems to be L. rhamnosus, which efficiently removes several mycotoxins at once (96, 100-103).
I used to be mold sensitive, dust sensitive, mite sensitive, pollen allergic...
All gone with diet.
I live in a house about 300 years old, wooden walls, structure, and on the ground, no isolation - so humidity can climb in certain rooms.
It's still the same house I fell ill with lyme long ago.
I used to feel like dying in some rooms, and since lyme left me, I dreaded cleaning boxes with old clothes, books, objects, because of extreme reaction.
Last year, I cleaned most boxes and did not sneeze even once. No need to rest, no need to spend days or weeks in between each box...
I didn't even wear masks.
I also cleaned the ground bricks (all wet 100% of the time, as they are in direct contact with earth under them) in a small room, under the steps, that I dreaded like devil before.
Also, no reaction, no sneezing, no runny nose, no dizziness, no fatigue, nothing.
Last week, I opened the vaccuum cleaner bag and emptied it without collapsing, like before. I don't even do that outside, but inside, then I clean it all with wet cloth.
No problem : no brain fog, no dizziness, not feeling like total collapse, fatigue, like before.
What did I do?
Celery juice taken often, in the nostrils on and off, and cut off all allergenic foods such as eggs, dairy (everything 100% without butter, creams, etc), gluten, and also soy, corn, canola oil.
Yes, it's the Medical Medium diet.
I eat low fat, low protein, loads of fruits (about 8-10 portions a day) and loads of veggies, potatoes, squash etc.
I'm on month 15 eating this way, not ready to come back eating like before, because I don't want these mold allergies and sensitivities back.
I also suffered from several food allergies, fruit allergies, tomatoes, that are all gone exactly for 1 year.
Before I started that diet, in that same year, I had such an attack of pollen allergy that I felt acid was poured in my eyes...
It took me hours to be able to open my eyes again (I could only do it because I did my own homeopathic nosode from that same pollen).
In my opinion, all these nose allergies / eye allergies are related, like cousin diseases: mold, dust, mite, pollen, and G- know what else affecting our eyes/ nose...
I guess mold avoidance is one way to deal with one problem, but not everyone can move out in the desert.
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