I have morgellons.
Posted by Tincup (Member # 5829) on :
Thanks jory!
Not trying to be nosy, just trying to help, so what makes you think you have Morgellons?
Posted by jory (Member # 50029) on :
Besides the diagnosis by my dermatologist, I had a 5 month parasitic battle (head, back, legs, chest), black specs appearing from under the skin, painful sharp granules that I have to massage out for pain relief, and blue/black fibers that appear everywhere and also tangled up in those sharp granules. I also have white colored fuzzballs/eggs/cysts (?) that come pouring out when I apply a 50/50 coconut oil mixed with colloidal silver.
Edit: I also have lesions since July 2016 that don't heal. The recent use of Dudu-Osun African Black soap has made a huge difference though. I've also had terrible arrythmia and breathing problems, 2/3 immunoglobins are low, elevated liver enzymes, low rbc, and a drastic lactate imbalance. Trying to stay positive today, herxing badly.
Posted by randibear (Member # 11290) on :
jory, have you looked up morgellons? sounds similar...
Posted by jory (Member # 50029) on :
Hi Randibear,
Yes I was diagnosed with morgellons by my well-read but lyme illiterate dermatologist.
Doctors here in Canada know nothing of lyme, bartonella, and babesia. Morgellons is so far removed from their understanding that it will take a new generation of healthcare people to undo the damage done. Unfortunately many of us will never get any help by the time this happens.
I am surviving by way of Amazon.ca, eBay, and my local health food stores. Burrascano, Klinghardt, Cowden, and Mau are my gurus. Yes Mau is looked down upon as he is not a doctor, but fate would have it that I found him first.
I am posting in the thread "NB Protocol" if you want to see my updates.
Jory
[ 03-25-2017, 06:22 PM: Message edited by: jory ]
Posted by Tincup (Member # 5829) on :
Were you planning on sharing the photos? Is that why you posted here?
Posted by jory (Member # 50029) on :
You asked so I posted them. At this stage whatever I can do to help raise awareness is a good thing in my opinion.
Posted by Tincup (Member # 5829) on :
Well thank you. That's very nice.
Posted by jory (Member # 50029) on :
I can send you more images if you need them, different types of things.
Posted by Tincup (Member # 5829) on :
Jory,
Sorry I got distracted and didn't get back here as soon as I wanted. Nice photos! Thanks for offering to share them.
Needed to ask if you had a "key" or explanation about the photos at the second link you provided.
Of course I know lab test result pictures, but not sure about some of the others. I can guess, but would rather not. For example...
Picture #3 of fingernails- what is that showing?
Then all of the pics below the lab test results. Want to be sure my explanation is accurate before sharing them and getting it wrong.
I don't need more than a few words for each picture about what it is so I can put them in the proper categories, if you don't mind?
Thanks!
Posted by Tincup (Member # 5829) on :
And many thanks to those who have shared already.
The collection is getting more complete and is actually helping people (and doctors) who are looking for answers.
I'm sure you know what it feels like to finally get some confirmation for a strange symptom or rash, and many newer folks do too. They are relieved to see what they have in your photos with some explanation for it.
Will accept more photos if anyone cares to share.
Thanks again!
Posted by jory (Member # 50029) on :
Hi Tincup,
Key to my pics:
1- extracted white morgellons fuzzballs at 45X 2- extracted white morgellons fuzzballs no magnification 3- my strange nailbed development 4- extracted morgellons "crystals" with fibers at 45X 5- blood test results 1 6- blood test results 2 7- blood test immunology results 8- combo pic: left to right top to bottom: infected lesions, second tick bite in stages of healing, black specs on my abdomen, mites under my fingernails 9- combo pic: left to right top to bottom: head lesions, lesions all over my chest, lesions on my back, lesions on my forehead
Hope this helps!
Jory
Posted by Tincup (Member # 5829) on :
Perfect! Thank you!
I am too worn out now to add these to the site- I shouldn't have gone outside...
But I did have a question on one description I matched to the photos.
Actually a couple questions, but I am so very sorry, I've plum worn my brain and body down to a speck of life and am getting worse by the second it seems, so will have to get back to you on that.
Will just say thanks for now!
Posted by randibear (Member # 11290) on :
I'd love to helpbut I'm totally clueless about uploading and all.
I can't even attach anything to email.
Posted by jory (Member # 50029) on :
No problem Tincup, whenever you feel up to it.
Randibear, http://imgur.com is super easy to upload images and get links. Here's a tutorial:
I just e-mailed some photos in two separate zip files to [email protected].
My PM on this forum has been broken for a while and tried to send webmaster many messages to help get it fixed.
Check on my photos so they don't go to spam or junk buckets.
Posted by Tincup (Member # 5829) on :
Thank you both for sharing the photos!
I finally got them on the site in between the server needing to dig up my old lines and burying new ones next week.
They will help with educating many!
TB666- I reported your post to the moderators in hopes they can help with your PM issues.
Just so you know, I don't use PM at all, so email is best. Thanks again to both of you!
Also got a couple more from some LLMD's to share.
Anyone else who has photos- I'd love to have them for the album so we can help others. It really helps when folks can see pictures.
Posted by tickbite666 (Member # 43399) on :
New postings of donated pictures look great. Keep up the good work.
Posted by Tincup (Member # 5829) on :
Thanks TB. For donation and kind words too.
Posted by Tincup (Member # 5829) on :
Just added a few more. Still looking for more donations to the effort. Thanks!