Hello, everyone! I haven't been here in a long time. I have overcome Bart, Babs and Brucellosis but still fighting lyme. I am much better and functioning fairly normal about 5 days per week. I have done everything but attribute most of my healing to Colloidal silver, treating parasites, yeast, diet and exercise.
I think I have a Mast cell disorder or at least a histamine intolerance. I live on Benedryl and herbal supplements for allergies. I am just learning about HI and MC. I can't find too much on it. Where do I begin?
Where can I find diet info or sample diets? Thank you all! Be well!
Posted by hopingandpraying (Member # 9256) on :
Here is a very informative thread poster Lymetoo started over in "General Support":
I'm very sorry to hear this, mvdr.. but at least now you know what to avoid and how to treat it. There is another VERY LONG thread I posted last year. You can search for it under my member #743.
Great article for family and friends .. even for doctors.
Posted by aklnwlf (Member # 5960) on :
MVDR-Welcome to the club! I was recently diagnosed with MCAD thanks to the wonderful info posted here on Lymenet.
Good luck in your journey to health and wellness!
Posted by Mvdr (Member # 43034) on :
thank you all! I am learning a lot about this and already feeling better after identifying trigger foods.
Posted by Lymetoo (Member # 743) on :
Good to hear!! I hope you have a good doctor too!
Posted by Mvdr (Member # 43034) on :
Hello, Lymetoo! I do not have a good doctor, sadly! I have a good herbalist and essentially treating myself at this point. I live in Pittsburgh and there is no one here!
I cannot tolerate traditional medicine and the doctors I've been to for Lyme just want to give me antibiotics which I feel have caused more harm than good.
I am pretty much on my own, like so many of us! Trying to find a traditional doctor to do MCAD testing but that is challenging, too.
Be Well, M
(breaking up the post for easier reading for many here)
[ 04-20-2017, 01:22 AM: Message edited by: Robin123 ]
Posted by Christopher J (Member # 46401) on :
quote:Originally posted by Mvdr: Hello, Lymetoo! I do not have a good doctor, sadly! I have a good herbalist and essentially treating myself at this point. I live in Pittsburgh and there is no one here!
I cannot tolerate traditional medicine and the doctors I've been to for Lyme just want to give me antibiotics which I feel have caused more harm than good.
I am pretty much on my own, like so many of us! Trying to find a traditional doctor to do MCAD testing but that is challenging, too.
Be Well, M
Without antibiotics I dont think you have a chance against Lyme. I am in cycles of many antibiotics all the time and that is the only thing that has reduced symptoms and knocked down Lyme to a manageable state.
When you first start taking them, it always seems very dark and you have a worsening of symptoms. But you should absolutely NOT use that as a justification to stop. Infact it means its working.
Over the years, the ABs will have less and less of a dramatic impact and you can pop them without thinking about it. This means the Lyme is under control.
There are so many times early on that I wanted to stop, but thats the Lyme telling your brain to ease up on the killing
(breaking up the post for easier reading for many here)
[ 04-20-2017, 01:24 AM: Message edited by: Robin123 ]
Posted by GretaM (Member # 40917) on :
Some good info on here. Also some links not working yet, but this is run by volunteers
Want to chime in here - there is no one-size-fits-all when it comes to treatment - we're all unique in our responses.
For some, longterm antibiotics is the answer. For others, not, like me, I'm allergic to antibiotics, and I go a natural treatment route.
Many are treating with herbs, like the Buhner herbs, Cowden protocol, Zhang herbs, etc. It's a matter of finding out what we respond to best.
I have elevated mast cells too and I have not figured it out for myself yet. I know there's many triggers for it. Hope to have more understanding some day about it.
Posted by Lymetoo (Member # 743) on :
Christopher... for some of us the initial and MAIN problem is the mast cells, not the Lyme.
![[Big Grin]](biggrin.gif)