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Posted by jwick25 (Member # 15190) on :

Does anyone here experience symptoms after spending time in the hot weather?

I recently had to do this twice, and I'm feeling fatigue and general icky symptoms for a couple of days now.

I know that I can't tolerate the heat anymore, but I wonder if it's typical to still be feeling the effects days later.

Wondering if my body just needs to recharge and rest...?


[ 06-15-2017, 01:23 PM: Message edited by: jwick25 ]
Posted by Keebler (Member # 12673) on :
Yes, it is typical to feel the effects days, even for a week (or more) later.

Heat can be a worst enemy for someone with lyme / tick borne infections. It can be very serious and the various nervous systems are just part of it.

And the adrenal system get "fried" nearly literally it's so very profound.

Even just two degrees too warm can be sickening. It took me a long time to figure this out.

Look up the effects of heat on MS. That's the deal, though, for some with more advanced stages of lyme, heat can cause permanent damage, too, as with some variations of MS (which is often lyme undiagnosed).

Still, the heat with MS issue is much the same so take a page out of the MS playbook on this.

Inflammation, too, is a key as when the body / brain is already inflamed, heat just sends it to a new dangerous.

No, it's not "just" that your body needs to "recharge and rest" - it goes beyond that to the hit the nerve fibers & mitochondria take.

Yet, sometimes, all we can do is rest and recharge but with repair in mind, too, when possible. Resting might be the only tool we have after such a hit.

Be sure to avoid heat as best possible. Ice pack yourself if needed. See hints in the threads below
Posted by Keebler (Member # 12673) on :

Many threads with more detail. Search archives, in Medical Forum, subject bar for:

Hot Bath

Also be sure not to be confused by sauna use. With lyme, INFRARED sauna may be recommended but they are LOW HEAT, never intended to be hot. There is a huge difference in cozy warmth that soothes us and encourages circulation

and a heat that makes us worse. Though, often, we don't know until AFTER the fact that the heat was too much --- very much like other energy outputs.

A hot tub is something that really set me back. It felt so good at the time but caused me to not be able to walk right for months. I tell you this not to scare you but to shine a light so others don't get heat damage as, yes, it can be so very real.

Also keep in mind that, with lyme, THE HEART can be damaged with too much heat.

Likely, in another week or so you will feel back to your normal. It tends to work that way for me when I've not been able to control the weather.

I hope you have an air conditioner. If so, get ahead of heat and don't wait too long to turn it on.

When out and about, PLAN ahead and try to never put yourself in an unprepared situation. Even one or two degrees can tip the scales. Keep your body ahead of it. A cooling vest might be helpful.

Take care.
Posted by Keebler (Member # 12673) on :
Looking ahead (though it may be a long road), many who've recovered from lyme / TBD report they can better tolerate elevated warm temps again.

Again, there is a huge difference in cozy warmth and when it crosses that line.

As I recall in a lecture by a top LLMD years ago on a video I saw, spirochetes really hate 3 top things:

heat; vibration; & cold.

They will spew forth more toxins in protest and try to burrow deeper to avoid these disturbances on the surface.

I often wonder if, in addition to inner ear issues, this is partly why "music" even a mile away, it seems, with deep base & pulsing vibrations is my very kryptonite.

Same with pulsating physical therapy machines. Even Burrascano says to avoid those, though, in his guidelines.
Posted by Keebler (Member # 12673) on :

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Ice packs

There are also some softer kinds of neck ice packs. Keeping a not too solid or not too cold pack on blood vessels that go to the brain is a good idea. The neck, etc.

When you go to friends or family and can use a freezer while you are there, you can ask to put in your ice packs for the return trip home. Even if a car has AC, it can be too dangerous not to "ice up" when getting in. Open all doors for heat release first, too.

In any place of food, you can ask for some ice just before you leave. Keep some freezer zip locks with you.
Posted by shoeless joe (Member # 45835) on :
dysautonaumia- POTS syndrome
Posted by sixgoofykids (Member # 11141) on :
Could you be dehydrated? You also might be low on electrolytes.

When I was sick, the heat made me feel bad, but it didn't last for days.
Posted by jwick25 (Member # 15190) on :
Keebler - Wow! Thank you so much for taking the time to provide such helpful information (and lots of it!).

I'm still feeling tired, weak and anxious, so I need to read through everything you sent.

I even woke up feeling exhausted, which scares me because that was a big lyme symptom of mine.

Really hope this passes. I was glad to learn that it's normal to feel the effects for many days because I'm worrying about whether I got bit again.

When I think about it, I felt similarly for 2 days after getting (my first and only) massage a few years ago.

If that required bouncing back, heat exposure definitely would.

Sigh. Hope I get back to my norm without any new infections, flares or new issues.

Time to read!
Posted by madisongrrl (Member # 48682) on :
I'm heat intolerant to a scary degree. Lyme-induced small fiber neuropathy is the root cause.

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