My husband has lot's of joint pain and muscle spasms. A doctor did at test and said he did not have lymes but had RMSF these they gave him antibiotics for 3 months he felt good while taking them and after he stopped got phemonua and the pain came back.
This is the test they gave him.
Lyme IgG/Igm Ab Wetern Blot Reflex <0.91
Lyme Disease Ab,Quant, Igm 0.82 marked High
Lyme Ab IgG by WB P93 Absent Lyme Ab IgG by WB p66 Absent Lyme Ab IgG by WB p58 Absent Lyme Ab IgG by WB p 45 Absent
Lyme Lyme Ab IgG by WB p 41 present
Lyme Ab IgG by WB p 39 Absent Lyme Ab IgG by WB p 30 Absent Lyme Ab IgG by WB p28 Absent Lyme Ab IgG by WB p23 Absent Lyme Ab IgG by WB p18 Absent Lyme AB Igm by WB P41 Absent Lyme AB Igm By WB P39 Absent Lyme AB Igm by WB p23
Reckettsial Fever Abs RMSF, IgG EIA positive Reckettsial Fever Abs RMSF, IgG IFA 1:256 very High
Reckettsial Fever Group IgG/M Spotted Fever Group IgG 1:64 marked High
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet!
Band 23 is Lyme-specific and IgM shows a current infection. One of the top Lyme-literate doctors explains the different bands in the following link:
"In my clinical experience, if a patient has symptoms suspicious for Borreliosis, and has one or more of the following bands, there is a very high probability the patient has Borreliosis.
These bands are 18, 22, 23-25, 28, 30, 31, 34, 37, 39, 41, 83, and 93."
RMSF is one of the co-infections of Lyme. Read about Lyme co-infections in this link:
Your husband needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
LLMDs are far and few between, unfortunately. He needs to go where they are. At least half of all Lyme patients go out-of-state to get proper treatment.
Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.
Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.
Lyme tests can be false negatives. They are a confirmation of exposure, diagnosis is clinical based on symptoms.
I'd find another doctor (you can post in seeking doctor for recommendations) if he felt bad as soon as he got off abx.
Is it Lyme? Could be. He'd need a full workup by a doctor knowledgable in treating Lyme.
Posted by Angie b (Member # 50623) on :
Get to a ilads LLMD
They will help
. . I thought I had Lyme and maybe a couple co-infections Like most people
But if I didn't get to a LLMD ilads this year I wouldn't ever know I had ..late stage Lyme disease and 6-7 coinfections One of them being Rocky Mountain spotted fever . . Funny I never had no symptoms for years , no rash , no fever ,never seen ever a tick on me , no bulls eyes rash ...., until one day out of the blue it all just hit me last year
. So yes get to a LLMD ilads Nothing to fool around with
Posted by Angie b (Member # 50623) on :
Hi
Also I have previously taken up to 4 Regular Lyme test (Elisa test) even bought one Elisa test online Always came back negative for Lyme Told by all doctors I don't have Lyme at all I believed them , and only got worse and worse Dumb me ...it's so complicated all this information
I Even took the Western Blot other Lyme test , that came back negative for Lyme aswell
These test the regular doctors give you will hardly come back positive for Lyme If you have Late Stage Lyme disease .
Which means you got bit ..years years ago and never knew the tick was on you , seen no rash , no symptoms , nothing
Til one day it just comes roaring up out of you
You need to see a Ilads LLMD and get the IGENEX test Yes I was skeptical Bigtime After all the run around with the regular doctors But now I feel I am getting somewhere with these nasty lil buggers of bacterias.. yikes . .
Posted by Lymetoo (Member # 743) on :
Even RMSF can go chronic .. so either way, you need a GOOD LLMD to get him well.
Posted by TF (Member # 14183) on :
Sunflower, it looks like you forgot to give us the last result on his test. You wrote:
Lyme AB Igm by WB p23
but you didn't say present or absent for this one. What did it say for the IgM p23? That is an important band.