I could really use your good wishes, kind thoughts, and prayers right now.
I've been in the hospital for Acute Pancreatitis since Thursday (3rd time in two years...).
The pain woke me up Thursday morning at 3am but I didn't want to admit that that was what was going on. So only broke down & went to hospital at noon when in absolute dire agony.
So plan is simply to keep hydrated for now with IV & try to keep pain tolerable. Should get better over next couple days.
We are unsure why I keep getting the Pancreatitis. Hopefully we will figure that out soon.
5 days before Pancreatitis, started having fevers, felt sicker in general, had aversion to food, & when did eat felt much sicker.
Thanks for caring...
Posted by SickSam (Member # 45330) on :
I'm sorry to hear this Sammy, prayed for you tonight! Hope it will pass soon for you. ):
Posted by Notti (Member # 43843) on :
This is such a complex disease. It's very hard. I hope you'll be able to figure out what's going on soon.
We don't know each other personally, but I am wishing you strength, courage and hope, from the other side of the world.
Keep fighting, Sammy.
Posted by Bartenderbonnie (Member # 49177) on :
So sorry for your current condition.
Pain is the absolute worst.
I wish for you...
Compassionate nurses, competent doctors, pain controlled, answers to questions, and a return to your home.
Posted by sammy (Member # 13952) on :
When admitted, was diagnosed with uncomplicated Acute pancreatitis. If so, my symptoms would have begun to subside.
The docs are now concerned that it is actually complicated Acute pancreatitis. This can cause very serious complications.
Tomorrow they will begin to run a battery of tests to find any possible complications. So will you all please think of me?
We were supposed to start testing today but had to hold everything when my Peripheral IV lines failed repeatedly. Tomorrow the "PICC team" will use ultrasound (+experience) to attempt placement of an "extended dwell line". Please pray, cross fingers, etc...
Thanks friends!
Posted by hopingandpraying (Member # 9256) on :
Holding you up in prayer. God bless you, sammy, and may everything go well tomorrow.
Posted by Rumigirl (Member # 15091) on :
Oh, no, sammy!! I am so sorry to hear this! You have been through so much; you most certainly don't deserve this.
I'll have to look up what "complicated Acute Pancreatitits" means. Obviously, NOT good!
And now your port lines not working?? Arghhh! Did they try CathFlo? I'm sure that they, or you, would think of that, if that were appropriate.
Extended dwell line? Again not sure what that means, more research.
Oh, sammy, I will be praying for you for them to find the cause of both problems and to be able to help you quickly and well.
Are they giving you good pain control?
May God cradle you with grace and love and protection.
Posted by Rumigirl (Member # 15091) on :
PS I hope that you are in the best hospital available! Are you? If you have any doubts, can you be transferred to the best one available, ie, a teaching hospital with a really good reputation?
Posted by Lymetoo (Member # 743) on :
Prayers for you, sammy!!!
Posted by Rumigirl (Member # 15091) on :
Yes, continuing prayers and concern for you, sammy.
Posted by Tracy9 (Member # 7521) on :
So sorry to hear this! I spent Christmas in the hospital with pancreatitis and have had it 3-4 times myself. It's painful and it sucks! Praying for a fast recovery!
Posted by HW88 (Member # 48309) on :
So sorry!!! Thinking of you and hoping for relief soon.
Keep us posted!
Posted by randibear (Member # 11290) on :
thinking of you and hoping things are going well.
Posted by Rumigirl (Member # 15091) on :
Anxiously awaiting news.
xoxo
Posted by Rumigirl (Member # 15091) on :
Oh, dear, sammy, still praying and sending love.
xoxo
Posted by Sammi (Member # 110) on :
sammy, I am sorry you are dealing with this.
How are you doing now? I hope much better.
Posted by hopingandpraying (Member # 9256) on :
Any news?
Posted by sammy (Member # 13952) on :
Thank you all so very much for your kind thoughts & prayers. Your friendships mean so much to me.
I'm having a very difficult time expressing myself here so please bear with me.
Things have been so nightmarishly difficult for me over these past couple years that it became obvious to me that I should no longer post directly about myself. My life, my health, & my experiences are not typical so could easily promote undue fears/ anxiety.
Yes, I have Lyme. But the picture of my health does not primarily revolve around Lyme. It's far more complex.
So about this rare topic, we aren't sure why I've been getting acute pancreatitis. This is the 3rd time in about 15months. Causes have been extensively investigated with no lead.
While inpatient, I was under the care of a well respected university hospital. The GI team had immediate access to all other important specialists records. They also consulted regularly with my own GI specialist.
So I had excellent care. Even though I'd suffered complications, I was happy when they finally discussed discharge.
Despite my best efforts, I haven't been able to meet my daily nutrition/ hydration goals. I'm unable to control the severe pancreas pain & nausea.
The clock is ticking though, no time to be sick. My life is ruled by other more important variables...
Posted by Sammi (Member # 110) on :
sammy, I am so happy you updated us. I am glad you are home, but I am very sorry things are still difficult.
This is a place for support. We each have unique medical issues and challenges. We all benefit from the experiences and support of others. I really hope you do not stop posting. You are an inspiration. You have helped many with your thoughtful, well-informed posts and replies. You have helped many with your dogged perseverance.
I am sorry for the multiple challenges you are contending with now. I am sending you a big hug. Hang in there.
Posted by randibear (Member # 11290) on :
sammy, I respect your decision. pleasek know we are all here for you.
I, too, am going through very stressful situations.
if you ever need to vent please email me at any time. I'm usually up most nights.
Posted by lymehope (Member # 48581) on :
Hi Sammy Thinking of you. I am also going through a stressful time. It all shall pass, and work out. I am also praying for you.
Posted by Lymetoo (Member # 743) on :
Thinking of you and praying for you, sammy. Hang in there!
Posted by Rumigirl (Member # 15091) on :
Dear sammy, I am so relieved to hear from you. However, it sounds terrible that you are still in so much pain and nausea and that you can't meet your nutritional and hydration needs!!
It sounds like you need TPN, much as no one wants to have to do that. Please, please in spite of the other intense issues going on, don't neglect your own health. I know you may think that you have to, but this is life and death for you.
Did your port start working again? Or did they replace it? I don't know if TPN is done through a port or not.
I'm sending love and prayers to you and your mom.
Posted by DKat (Member # 30941) on :
I'm so sorry you're not past this yet. I always read your post as my Dad has had several attacks of pancreatitis, the last one 3 months ago. He has lyme (which he refuses to treat) and doctors can't figure out the cause of his attacks either.
Thank you for sharing even in the midst of this storm. You matter to so many here. You're in my prayers.
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