This was one of the first symptoms I had after I got Lyme. Now it seems to be getting worse again.
Whenever I go out (to church, shopping, dentist, etc.) I've been feeling really tired and very, very irritable afterwards. It lasts for about one to three days and then all of a sudden I feel normal again.
If I just stay home, I feel about 90- 95 percent, except I'll have times where I feel really bad for an hour or two and then it goes away,(but I've been sick for so long that 100% normal is probably not really 100%)
Going to my naturopath doesn't bother me much and neither does going outside for a walk/run.
I keep thinking about trying to get some kind of job or something but this just seems to happen whenever I go out. I also can't seem to handle any kind of pressure.
One theory I have is I just keep picking up some kind of cold every time I go out, because there are so many things going around. I have only noticed this since maybe september.
Or maybe my body is so busy fighting the Lyme that it doesn't have energy for anything else.
Posted by Tincup (Member # 5829) on :
Lyme248,
Have you considered the florescent lights might be scrambling your brain a bit, causing you to go on "overload", then when you remove yourself from the source you are exhausted and miserable?
This happens quite a bit to a number of patients, with some not being able to tolerate those lights at all.
Just throwing the notion out to you for consideration!
Posted by Tincup (Member # 5829) on :
BTW- I go down for a couple of days after going out too- for that reason.
Posted by Pocono Lyme (Member # 5939) on :
Sounds like adrenal fatigue to me. Can be tough to find someone to understand and treat this.
I found good treatment with a bioidentical hormone replacement doctor. My first LLMD recognized it but didn't treat it properly. When treated properly, you feel a Huge difference.
Posted by MannaMe (Member # 33330) on :
I agree with the adrenal fatigue suggestion...... Most doctors don't recognize it because they have no drugs to treat it. There are some adrenal support supplements that are helpful.
My hubby uses Dr James Wilson's Adrenal Rebuilder and Adrenal C.
My SIL uses Gaia Herbs Adrenal Health and the night time blend also.
Posted by Brussels (Member # 13480) on :
If adrenal fatigue is the reason, when you work at your house, or garden, you SHOULD get the same fatigue too.
If you don't get so tired after working AT HOME, it may mean something outside messing your system.
The most common cause is electrosmog.
Dozens of threads in the past about that. Many many lyme patients suffer from e-sensitivity.
I don't have lyme anymore, but if I go around, I get symptoms of e-sensitivity: in my case it's either some head symptoms, headache, fatigue, fog, or something on my kidneys (back pain), or even in my stomach area (tummy pains).
I feel crap after, and it takes hours to come back to myself.
If I carry a device with electronic impulses against e-smog, I will have only about 10-20% of normal symptoms.
Fatigue is one symptom that ALWAYS comes when my body is exposed to too much e-smog
Posted by Lyme248 (Member # 51011) on :
Thanks for the replies. I will look into adrenal fatigue.
Also, I think I am bothered by fluorescent lights Maybe I'll wear my yellow sunglasses next time. They seem to help.
Posted by Pocono Lyme (Member # 5939) on :
I used Cortef. It's a physiologic dose in the amount that your body would normally produce on its own but doesn't.
Posted by Pocono Lyme (Member # 5939) on :
I also forgot to add this. I would be OK working in the yard. When I told my doctor this he said when physically active, your body will produce the needed amount if able.
In my case though, I have to keep going or I can't. Like: a body in motion stays in motion. That's not good in adrenal fatigue.
Posted by Keebler (Member # 12673) on :
- You don't say anywhere in your posting history about whatever treatment protocol you did / completed or are still doing that addressed / addresses lyme or other coinfections.
If such infections were not adequately - or are not being directly addressed still - fatigue may be a sign that more work is to be done.
You might also reassess your adrenal support methods:
Cortef ? Physiological replacement dose range of hydrocortisone is discussed here. -
Posted by Keebler (Member # 12673) on :
- A hearty "ditto" to Tincup's suggestion, too:
" . . . Have you considered the florescent lights might be scrambling your brain a bit, causing you to go on "overload", then when you remove yourself from the source you are exhausted and miserable?" (end Tincup quote)
Scented products, too. Chemicals in places you go (or even from within your car with the petro off-gas issues - air your car out before getting into it each time . . . sounds, noise, etc. -
Posted by Lyme248 (Member # 51011) on :
I think I probably have adrenal fatigue. I also have a little bit of insomnia (sometimes I have trouble falling asleep).
I did have low cortisol at one point, but I never took the hydrocortisol, and it ended up going away. Right now I'm trying to go the natural route.
Right now I am treating with a whole bunch of herbs.My bartonella rash is getting better, but I probably have a little bit of a dormant babesia infection.
I'm not getting too many other symptoms besides this fatigue and some brain fog so I'm assuming I'm improving.
Posted by Keebler (Member # 12673) on :
- So, if you are dealing with Bartonella . . . and an active rash (even if it's getting better)
and "a little bit of a dormant babesia infection"
Such chronic infection take a huge toll on the adrenal system. Adrenal fatigue is the result of infections, in many cases. Of course, adrenal support is vital but be sure to also address the infections with very specific measures.
All the adrenal support in the world just won't work if the infections are not also dealt with systematically. You don't say anything about treatment so just want to be sure that's included.
Also, be sure not to take anything to "boost" energy. That can be dangerous and boomerang. Sturdy, gentle support should help, though. Glad you see some improvement.
Good luck. -
Posted by Keebler (Member # 12673) on :
- A chronic babesia infection can create anemia, and that's a major factor in fatigue. The red blood cells can be very much affected.
I hope you have a way to have clear, direct & assertive treatments for bartonella and babesia. -
Posted by Lyme248 (Member # 51011) on :
I think I have finally figured this one out...
I don't think I'm sensitive to florescent lights.
Every time I go in a building with mold, I feel awful, but if I go somewhere That isn't moldy I feel fine.
I had a hard time figuring it out because I can't smell the mold myself, but I noticed the places that other people say are moldy are the ones I feel bad in.
I feel almost 100% normal now if I stay out of moldy buildings. Problem is, a lot of the places I like to go are moldy...
Posted by Lymetoo (Member # 743) on :
That's good that you figured it out....really bad that most places are moldy!
Posted by Keebler (Member # 12673) on :
- Glad to hear your detective skills kicked in. A musky or moldy building will knock me out the second I open a door and enter.
It's like kryptonite to me. My only superpower is that my body just crumbles when entering such a space. I should hire myself out as a human detector. -