For those that have MCAS, are you continuing Zantac despite the health damaging chemicals in it and if not, what are you taking in place of it?
I am really struggling off of Zantac with increased symptoms that I can't get to go down. Seeing my allergist and llmd in several weeks but not wanting to wait that long to get on something.
Would love to hear what others that have actual MCAS are doing or what your docs have recommended. Thank you!
Posted by aklnwlf (Member # 5960) on :
My allergist put me on maximum strength Pepcid AC. I buy the generic brand which saves me a ton of money. I haven't had any issues with it and been on it for a couple of years.
Posted by Lymetoo (Member # 743) on :
I’ve always taken Pepcid because Zantac made my stomach hurt. My husband takes Zantac. I need to go buy the extra strength Pepcid tomorrow.
Posted by unsure445 (Member # 15962) on :
Thanks for your replies. I like my stomach acid/digestive fire intact if possible. Such a drag that these are the only options.
If I hear of any herbal or supplemental remedies I'll post back on here.
Thanks Lymetoo and aklnwlf!
Posted by unsure445 (Member # 15962) on :
Do either of you do/take anything to replenish stomach acid? Do you get concerned about Sibo or GI imbalance on these PPI's?
Posted by Lymetoo (Member # 743) on :
I'm sure the lack of acid is a concern, but I have no evidence that I have a lack of it.
I don't tolerate adding any acid. I've tried.
Posted by unsure445 (Member # 15962) on :
Thank you Lymetoo.
Posted by rosiegeorge (Member # 27518) on :
I'm trying not to dose every day but am still using. I have severe MCAS that it's even reached my bone marrow from my last bone marrow biopsy. Dr's are worried it will convert into mastocytosis.
None of the other GI meds worked for me so I'm quite torn. A huge game changer for me was starting on cromolyn oral solution & nasalcrom also. This has helped leaps and bounds. Enough to reduce my other mcas meds. If you haven't tried it yet definitely ask for a prescription! As of now, I can't go more than 3-4 days without Zantac. I'm hoping only taking it 1-2 x week will lessen my risk vs. daily dosing.
Posted by unsure445 (Member # 15962) on :
Thanks Rosiegeorge. I can't imagine where I'd be without Cromolyn, its a lifesaver. I succumbed to Pepcid for now to get things back under control.
Pepcid has its adverse affects too so hoping to find a healthier solution in the near future.
I'm so glad that just a few doses of Zantac per week is helping you.
Posted by LisaK (Member # 41384) on :
just wondering if anyone has any updates to this question- I mean answers.
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Posted by Lymetoo (Member # 743) on :
I don't think Zantac is available, so it's a moot question.
Most of us take Pepcid.
Posted by Lymetoo (Member # 743) on :
I LOVE my cromolyn sodium! Total lifesaver .. nasalcrom too.
Posted by LisaK (Member # 41384) on :
yes, raditadine (sp?) is still purchasable I think and I notice lots of people still use it, so they either stockpiled before removal, or they are getting it somewhere. Posted by spookydew (Member # 8432) on :
What is MCAS? And what does an antacid have to do with allergies? Sorry for the dumb questions but I have been gone many years. How would an antacid help allergies?
Posted by Lymetoo (Member # 743) on :
I'll bring you a link, spooky... Lots of us have it, either diagnosed or as yet undiagnosed.
Pepcid and Zantac are H2 receptors, which help block histamine responses.
There are about 60 links here, so just pick one and GO!! LOL
Oh my I thought I just still had multiple chemical
sensitivities but I had anaphylactic reaction to
honey bee and have lesser reactions to most insect
bites. My arm swells a lot with a little tiny
sweat bee. I never thought that could be something
else. Also, one of the links talks about certain
probiotics Lactobacillus rhamnosus and
bifidobacter species reducing histamine. So I've
been eating sauerkraut for probiotic effect for
the atbs and just now read that these two species
are in sauerkraut. Anyway I just felt so good this
week eating it. Could this help and work that
quickly? Just reading all these links today have
made me feel like a hypochondriac all over again.
I wouldn't have figured this out on my own. I'm
much older than when I was here last and just not
really up to all that I used to be.
Thanks for all the good links
Posted by Lymetoo (Member # 743) on :
My problem with sauerkraut is that some of the strains are not good for histamine. That was my trouble.
So just eat small portions. Don't overdo it.
Sounds like you could have MCAS. Posted by spookydew (Member # 8432) on :
I was surprised to see this about MCAS. I'm glad I found it. I only eat two forks full of sauerkraut each day 9am and 9pm same time I did probiotics. I have to be careful of the goiter I've had since early 90s. It feels so much better not taking all those capsules and not worrying about them getting stuck in my throat.
Posted by LisaK (Member # 41384) on :
I can never eat sauerkraut any more. right now everything I eat, (just about) gives me a mast attack.
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