Hi- I was diagnosed with dementia 4 years ago-MCI by another doctor and I've had a few symptoms that have come up within the last few months that I think is due to Lyme, and/or my dementia getting worse. I've fallen about 4 times in the past 6 months when i was a tripper before. My memory, balance, loss of words, confusion and all that has gotten worse. I drop things, spill, dribble, spit and I can get extremely tired mid-morning-no matter how much I sleep.My pain really concerns me as well because it wakes me up-leg pain and right hand rigid swollen and painful. I also can get very sweaty durng the day and night. Any ideas-you guys are far more knowledgable than many others. Thank YOu!
Posted by Garz (Member # 52095) on :
lyme can certainly do all of those things and many more - but they are all pretty much non-specific so its very hard to get a diagnosis on symptoms alone. Dr Horowitz - perhaps the most respected Lyme doctor - has published work showing that pain that comes and goes or migrates, in the context of ongoing illness with many of the usual non-specific symptoms similar to those you mention, is the single best indicator of a lyme infection.
by this he means stabbing, burning, shooting pains that come and go - or pain in muscles, joints or nerves that is in your ankle one day - then a few days later it is in a knee or a shoulder.
his books and website have a questionnaire you can use that gives an indication of how likley you are to have a Lyme infection - which could be a guide for whether its likely to be productive to go down thsi path.
day or night sweats - esp if severe or with fever are typically quoted as a symptom of Babesia - but Lyme on its own can also interfere with the autonomic nervous system which includes sweating.
I would certainly advise testing by one of the recognized labs as if positive you have a lot more certainty of what's going on and helps stop you chasing your tail for years trying to get a diagnosis by other methods.
Posted by jo3 (Member # 6317) on :
Hello and thank you for such a detailed explanation. I definitely will look into the doctor you said. I do o have late stage chronic Lyme since ‘98, and have been to the specialists over the years, took all the meds, etc But the money ran out and do fix the hope but my symptoms are getting worse. There is when I am concerned- or rather just living day by day with all these worsening symptoms.
Posted by marie (Member # 3980) on :
I have had burning, numbness, itching that is now widespread. Prev rashes different ones and rashes on esrs.Night sweats other symptoms. Might be paresthesia. Is this lyme or fibromyalgia.
Posted by jo3 (Member # 6317) on :