I notice every time I get out of a hot shower, I'm exhausted. My neurological symptoms are worse as well, such as a hand intention tremor and buzzing in my feet.
Is this a giveaway that I have Multiple Sclerosis? I haven't been diagnosed with MS.
I've had Neuro Lyme, but for some years now, my doctor seems to believe the Lyme isn't as much a problem anymore.
All I know is showers are somewhat incapacitating and I'd love to know if that means I have MS, or if others with just lyme experience the same.
Thanks so much.
Marc
Posted by Rivendell (Member # 19922) on :
You can have neurological problems due to Lyme, some of which may not heal after treatment.
Sometimes, a person can't adjust to heat or cold quick enough.
So, if it started with Lyme, the nervous system never healed, or you still have Lyme. Sometimes MS can a manifestation of Lyme disease.
So. for you, not sure which it could be.
Just giving you my very limited knowledge on all of this.
Good Luck!
Posted by skimpbiz (Member # 4433) on :
I appreciate this thoughtful reply, Rivendell. Thank you.
Posted by lisaloo (Member # 12909) on :
I've often had this. Especially early on with lyme. Just lyme, no MS.
Posted by skimpbiz (Member # 4433) on :
I value your experience, Lisa.
Posted by orrn71 (Member # 50137) on :
So sorry you are dealing with this skimpbiz! I
totally understand this one. I feel like I avoid
showers, because it is so exhausting. I am NOT a
"dirty" person either. I used to be a shower a
day type person, but I just can't do it any more.
It just takes all my strength and energy. I have
become almost agoraphobic also, with not being
able to shower one of the main causes. My
doctor has suggested being tested for MS, but I
know I have been treating for Lyme and co-
infections pretty aggressively for several
months, but it is not getting better, but worse.
I didn't think there was a specific "test" for
MS.
Posted by Lymetoo (Member # 743) on :
Go for tepid water and see if that helps.
Keep us posted on what you find out.
I know many who have MCAS or MCAD have troubles with showers.
PS..orrn is correct .. there is no test for MS .. It's a diagnosis of exclusion.