I see my LLMD in 3 weeks. She wanted redo my Igenex, the Bartonella test. I am going more and more downhill with my health and nothing is working. It's,frightening
I'm afraid she's gonna add in more tests/panels ($$$) but unfortunately this might be the only way to figure stuff out.
I knew this for a while what they charge. I no longer have Medicare as it states this is the only insurance that'll cover/reimburse. It says Igenex doesn't offer payment plans as well.
Both times I had tests in the past Medicare covered 100% (I was on disability for 10 years) I now work fulltime and have an insurance subcontracted with Blue Cross through my job. I don't even know if its worth submitting my Igenex test to new insurance, couldn't hurt right?
Maybe have my LLMD do the Bartonella test just to rule that out? I tested positive for Relapsing Fever too.
If it's anything I think its the Bartonella that's causing trouble but like anything else I'm not 100%. or if this is even Lyme/Co's anymore...
Thanks 💚
Posted by Lymetoo (Member # 743) on :
You can ask for only the Western Blot .. then it should be about $250.
MANY years ago I got my insurance to pay for mine, but it took me 9 months of harassing.
My LLMD believed in doing a trial run of meds for each major coinfection. He wouldn't rely on testing alone.
If you herx badly, then you know.
Posted by Mountainsky (Member # 51857) on :
Sadly every treatment protocol I was on made me sicker, to the point it was quedtuoned if these were even herxes.
As I said I just cannot justify shelling out more money out of pocket for these tests and visits unless there truly is solid proof I have the infections.
I was told it could be protracted withdrawal syndrome from years being on psych meds. I was told it could be EBV still. I was told it could be my thyroid. I was told it could be MCAS. I was told it could be heavy metal toxicity or mold. I was told it could be Covid long haulers syndrome.
What gives? I'm getting worse and slipping away mentally and physically.
To add insult to injury ppl like us get robbed of $$$ just to live normal, healthy happy lives as everyone deserves.
Posted by Lymetoo (Member # 743) on :
Withdrawal syndrome is very possible.
Posted by buratinos (Member # 52207) on :
It is at times like these that it is important to understand that an insurance policy is necessary. My sister had a similar situation, so I understand what you're dealing with. It's pretty fixable if you go to the right insurance company. If you don't know where to find these resources, I can advise you one of the blogs that helped my sister find the right insurance policy for her situation. I think this is an important choice because life is very unpredictable. You have to be prepared for anything, right?
[ 01-03-2022, 03:45 AM: Message edited by: buratinos ]
Posted by LisaK (Member # 41384) on :
no regular western blot ever showed anything for me from any lab other than Igenex. I have had mixed results from there also. My first Igenex test a dr. tested me for lyme and bart and lyme showed up but not bart even though I has the typical rash and other symptoms.
So I was diagnosed clinically. Then I had more Igenex tests later with my current dr. in that one they did various Babesia testing and duncani showed up. So that was usefull. But, my lyme dr is the only dr. that will use that information.
I have a lot of health issues and al my specialty docs won't even acknowlegde I have babesia or lyme or any of that.....
So , wo it useful? yes, but only to me and my lyme dr. and she pretty much already knew I have babesia anyway.
It is all like playing the lottery to me. and for me all those charges went on plastic which just piles up year after year.